A very late welcome to both of you from me. Sorry for my tardiness but I have been a bit busy lately. It is my husband Stephen who is the mm person (diagnosed aged 53 in 2008)

You will find nothing but help on support on here. I am, like everyone else, just sorry that you had to join us.

Gill x

PS Don't believe a word that Tom says. Shy?…[Read more]

Dear Min

Please don´t be silent. Not only would we miss your kind, common sense approach you might just miss us too! Having been widowed I do know what a help friends can be when your going through such a traumatic time so pleae do make the most of us.

I´m really glad that the funeral went well – what a comfort for you all.

Try to t…[Read more]

Hi
I had my SCT in Feb and the last three months I have been back on Revlimid. In addition to the usual symptoms you mentioned I have felt quite strange at times. I describe it to my husband as being like a goldfish looking out as everything seems rather vague and distant. I have also had some worrying short term memory losses and there are…[Read more]

Hi Bridget
Thanks so much for letting us know how you are getting on. I often think of you but don´t want to pester.
Sorry you are suffering with the pain and just praying that they get on top of everything for you soon.
Prayers and very best wishes are with you
love Carol xxx

Hi Ivan – what fantastic news. I don´t understand all the "ins and outs" but I do know that such a drop indicates that they have the cancer on the run!
Best wishes for continued good news.
Carol xxx

Hi Keith and Helen

Luckily I didn´t have any problems like yours but I just wanted to send you my very best wishes as I know how under the weather you both must be feeling at present.

Keep your chins up – had my sct in Feb and for a little while wondered if I would ever feel stronger but yesterday I rode my new horse and cleaned lots of mud…[Read more]

Hello Graham

Just wanted to extend a very warm welcome to you. Seems we were diagnosed in the same year but I only had my stem cell transplant in Feb of this year and after further velcade am now in remission.

Good luck with the Harvest and very best wishes – hoping that the GMX has produced lots of the little wrigglers for future…[Read more]

Hi Aileen
Just popped into the site, saw your post and wanted to say welcome but really sorry that you find yourself needing to join us.
I have found this site to be a huge support and there is always someone who has had experience that they are willing to share with you or perhaps talk over what options etc.
Sometimes, I have even found…[Read more]

Hello Alexis

Just wanted to say welcome (but obviously sorry that you need to be here).
I too am on Revlimid and am always interested to share experiences with others who are also using or have used Revlimid.
Best wishes
Carol

ENDANGER

Gill xx

I love being able to back track on this thread for the posts that I haven't had a chance to catch up with when, like tonight, I cannot sleep.

I could be quite evil and post an I hate thread >:-( !! I would be interested to know what others think. It could be fun if kept very light
eg Tina posted that she loved cute puppies. With tongue in…[Read more]

LICHEN up next.

Anyone keep a

HEN (groan)

How lovely to find that this site is multilingual. I do realise that the swearing censor is a built in part of the site but I have been giggling by imagining a very tired, crotchety, elderly lady with a huge pile of grey hair on top of her head, pencils sticking out of this bird's nest of hair striking words out on her computer screen.

Dear Sarah.

You are certainly going through the mill. I just wanted you to know that I am thinking of you.

Love from Gill xxx

Took me ages to get this post on here. I forgot that the site won't let you talk about the hot place you go to that is the opposite of heaven:-/

I have not been in here looking at all the posts for a while and need to catch up with posts.

I am so glad you are feeling a bit better Bridget. It all seems to come in bursts doesn't it? Feeling unwell, treatment, feeling better, unwell again, more pills a bit of a break when all seems OK (heaven) and then it all starts again.

So sorry Slim…[Read more]

The best of luck Nettie. I am petrified of heights and I think you are very, very brave.

I hope you raise a great deal of money.

All the best Gill

HOODWINK

I have patted myself on the back for taking our minds off the dreaded mm with this silly game. Stephen's hospital appointment last night was fairly positive. (will post elsewhere over this.)

And PS to Roz you got it right but I think you made a typo with your alternative word. Did you mean seedling as in tiny plant?

C'mon…[Read more]

Fantastic News Dai! Here is too a very long remission time!!

David was supposed to start his 6th cycle today but he has been admitted feeling under the weather. So they are waiting to see whats what and do a few tests and a scan.

Hope the last two cycles are being kind to you!!

Love
Meike