On a more serious note do we not all get a little more confused as we get older? As far as I am aware I do not have an "end of life" illness but I am hopeless when it comes to what day? what time? etc Gillxxx

aged 35 NO? OK 45 NO? 55? NO

61 retired live and adore an mm person

2 shillings and sixpence

Was it not known as half a crown Dai OOPS just shown my age

Good luck to all of you that can still do some excercise Stephen is hoping that after another visit for radiotherapy , he will be able to once more walk the dogs, even if it is just round the block rather than the 4 or so miles he did after his first transplant.

He has been most unwell since the second SCT. I am hoping it is just taking longer…[Read more]

I did not post when I first heard that Gaye had died because I did not know what to say. I still don't. Everybody on this site has become so important to me and it is heartbreaking to know that somebody has gone.

What a lovely woman. Goodbye Gaye

Gill

I simply don´t understand why adults who are fighting a life threatening condition are now allowed a record of their treatment progress.
Whilst I was undergoing my conditioning chemo prior to sct I asked my specialist for a photocopy of my prescription which included my monthly blood results including neutrophils etc. etc. I was on such a…[Read more]

Hello Everyone

Just a lne to thank you all for your lovely messages following my good news – a zero paraprotien level. You have all been so encouraging and just wanted to say that the last year has been made so much easier having such a support network to turn to. Nice to know that we are all welcome whatever our news is – good or bad.
I…[Read more]

Hi all – a little bit of GLOOD NEWS!

Re: Myeloma 11 trial

We saw the specialist yesterday who was really pleased (pp still at 0) and has reduced the revlimid from 25mg to 10mg so I am hoping that some of the side effects reduce. I have lost quite a bit of weight so I am hoping that will stop now and my appetite improve. I don´t have…[Read more]

Hi Dai
We have something on those lines and maybe everyone does. Anyway, we got a folder when we first started treatment which logs all visits and treatments – it also provides a brief intro to chemo,basic glossary etc. To be honest I haven´t really used mine as it was just yet another thing to cart around (and lose on bad days) but I can see…[Read more]

Thanks for the good wishes for tomorrow – we have crossed fingers, toes and everthing else!

If the Specialist thinks it´s wise for me to go so far we are thinking of investing in a horse transporter but my husband would have to drive down to Cataluña where our place is and I would have to fly. I did ask if I could go down with him and help b…[Read more]

Hi Meera

My husband has plasmacytoma in more than one area but his mm was diagnosed before this was found. The fact that your medical team are aware that you may develop mm is a plus as they will be able to jump on the tiniest symptom should it show up.

Good luck Gill

I am sure that you can shout very politely so think that maybe the time is right to shout. I am sure as Bridget says you are exhausted but know that a fight can give one an extra spurt when needed.

Best of luck Gillxx

Hi Sarah

It must have been so hard for all of you to do the things that were already planned before Gordon died. The fact that your close family raised so much money is fantastic and Gordon's red tractor will be remembered by all on this site for a very long time:-)

Please stay in touch, at least for a while to let us know how you are…[Read more]

Dear Julie
Thank you so much for your promt an informative reply.

I do understand how difficult it is to compare the two lifestyles as our house in Spain is also mainly on one level but rather big. Basically I can do what I want when I want there and my husband is proposing that we take our horses on holiday with us as we have facilities for…[Read more]

Hi Bridget
So very sorry to read of your rotten news. You are most certainly allowed a good long rant because I know having read your posts over recent months that the minute your short lived (by my standards) rant is over you will brace up, buckle down or whatever expression suits and once again face whatever you have to with determination and…[Read more]

Thank you Dai – perfect.
Do you think it would be good to hear from people who are enjoying some of the ·good new· times or perhaps setting themselves a goal, big or small and how they get on? It would certainly help keep me motivated in trying to achieve my own little ·daily/weekly etc. goals. It can´t be all doom and gloom or this stupid ill…[Read more]

Hi Sally
As usual all the lovely people on this site have given you some excellent advice but I just wanted to say a quick hello. All I can say is that I thought I appreciated my husband before I started treatment last year but having got through the transplant and a slow recovery I have felt so sad for anyone who has no one to support them…[Read more]

Hi Meera
I don´t have any knowledge of plasmacytoma I´m afraid but I did see a mention of it under one of the other topics. I´m sure you will get plenty of response from people with experience of this as soon as they see your post. I´m sorry your struggling with the tiredness – I am very tired and stuggle to even do the housework let alone loo…[Read more]

Hi Julie
Glad to hear you are stable.
I am curious to know if you feel spending a lot of time in a sunny climate helps with some of the effects of MM? We lived in Spain until three years ago when we had to return to England as we had an elderly mother who was beginning to need care. However, we are now in a position whereby we could spend…[Read more]

Hi
So sorry things have not gone as smoothly as they should have done.
RegaIrding the Myeloma 11 trial I have been on it for the past year. I can only tell you that in the main I have been very well looked after and the only time when I have not felt quite so confident was when I went for my sct and was not under the direct care of my own…[Read more]

Hi
Just a quitck note to say welcome to you and your family and sorry your Dad is having such a rough time of it.
You and your Mum are doing a smashing job and I am sure your Dad must feel so grateful to have the support of such a lovely family even if he can´t always show it when he has to take some of the medications – they do make people…[Read more]