I am so sorry that you have had this awful news. I hope this helps. I was diagnosed in 2005 at the age of 50 – then considered quite young for this awful disease. I had my first transplant in February of this year after a year of quite difficult times. Anyway, despite fearing the very worst, and having a fairly worrying and slow recovery time…[Read more]

Hello everyone,

I'm Christin's mum.

To say the least this has been some roller coaster ride so far. The side effects of the steroids are not very pleasant but we can manage..just need to stay calm! Its the pain that David is in is very concerning and hard to watch someone you love being so uncomfortable! We are having an appointment on…[Read more]

Thanks to everybody for your good wishes. Well, It does seem to be a slower pace than the first SCT but it is moving forward, if slowly. Stephen's appetite has returned with a renewed vigour and he makes DEMANDS (cheeky so and so!) OOOHH I realy fancy shepherds pie/sausage casserole/ spag bol. He is having a bit of a problem swallowing so his food…[Read more]

My heart goes out to you Angelina for all that you are going through. My husband (Stephen) is the mm person in our life.

We had a very lazy morning laying in bed until about 8 am and chatting. I told Stephen about your posting and we came to the same thought.

A memory book is a wonderful idea. I did one for my mother in law when Stephen's…[Read more]

I am so sorry to read your post regarding your wife's death. We all take our blood for granted as a nothing and then,when we get into the world of blood problems, we start to realise just what can go wrong.

I do hope you are starting to come to terms with your loss and wish you well

Gill

I wish I had an answer Bridget. Stephen always seems to self medicate (ie takes more than he is prescribed) but it never takes the pain in his back away completely

I do hope that they find a cocktail of drugs to help.

Gill xxx

OK I must have something very wrong here. Stephen has been having Velcade through his PICC line and has had very bad (and I mean bad) diarrhoea. His Specialist asked for a sample but was very surprised and thought it was nothing to do with the velcade. Gill (or confused from Orpington)

Hi Lorraine

Off load all you like. I cannot help with advice on the revlemid as husband Stephen (mm) has not yet been on it, but it looks like it could be on the cards.

Do keep us posted as to how you are doing Gill XXX

I am so sorry that Kevin has gone. I just want you to know that I am thinking of you. Gill xxx

Dear Tina

I am so sorry for your loss. I am sure that it is of little help at the moment but please know that I, like everyone else on this site, am thinking of you.

Gill xxx

PHEW I have not been on for a while and am reading posts from newest backwards. I thought I read that you HAVE got bowel cancer.

So pleased everything is fine love from Gillxx

Hi Sally

Welcome to the site. I am sure that you will get a great deal of information and support from everybody on here. It is my husband who is the mm person, and I have found a great deal of support and information on here. Good luck

Gill

I cannot imagine what you put in your post to cause offense as I have not been on here for a while, but I think it would take a great deal to offend us lot. After all the greatest offense is getting this b**tard disease!!!

I am so glad that Slim seems to be on the mend. Fingers crossed that he keeps on improving.

Gillxx

Oh Kay I wish you had scrolled a little lower and read "from devastation to elation". Thank you for your kind thoughts and wishes but they checked again and Stephen [b]has[/b] got more frozen cells and they are viable He will be going in for a second SCT after all.

Hope you are well love from Gill xxx

So pleased that they seem to have got Slim's problem into touch. Let us know how it goes Gill xxx

Dear Mary

I am so sorry for your loss. Painfree and comfy is all any one of us asks for at the end, and the fact that he was able to tell you that he had enjoyed his life is really nice to know.

Love from Gill xxx

Hi Bridget

Why didn't they think to ask your friends on here? We could have told them about you (and the rest of us) being weird:-)

Stephen seems to be similar to you with mm. PP not too bad but boney damage very bad.

Stephen's consultant is not sure which way to go. He meets with a group of specialists regularly (TBM tumour board…[Read more]