What a Bummer!!!

I am so sorry to hear your news. I think it must be worse when you feel well. Stephen got about 18 months and felt brilliant when back ache started and he got told OOPs it's back. I am not sure about the exact time as I was the headless chicken that managed to hide my headlessness from everybody but collapsed into myself. Janet…[Read more]

Kay if you click on which ever of the discussion forum headings that you want to start a new thread under and then scroll down to the bottom you should see an option to start discussion. EG click onto discussion forums click into treatment scroll right down to the bottom of the page and click on start discussion Regards Gill

I am not sure if Stephen heard his chemo nurse correctly (I shouldn't let him out on his own:-| )

He remembered to ask about platelets and pp levels and was told that his platelets were up from 40 to 70 and should be 140 and his pp level was 70 which sounds high. He also got told that his bp was fine. mm or not that man is always so laid back…[Read more]

Hi Sandra

My husband was diagnosed in 2008 He has had one auto SCT and is now needing a second. Fortunately when he was harvested he managed to produce enough stem cells for 2 autos.

One of the first questions he was asked when first diagnosed was how many siblings he had. Answer none. We had no idea at the time why the question was asked…[Read more]

Hi Amanda

I think it is great that your mum does not need treatment yet. My husband was diagnosed in 2008 and was treated straight away because his mm was so virulent (sp?).

He is still here. He is 55 and is hoping that he gets "another year" 5 to 7 years would be wonderful for us

For every day we get I am grateful to some god or other…[Read more]

Thanks for the tip about the health insurance Jean. We are hoping we will still be covered by our exisiting long term insurance policy. It was annoying to pay for MIA and then find we were already covered. Talk about over egging the pudding. Never mind it did mean peace of mind.

By the time Stephen's Velcade stint is drawing to the end Anya…[Read more]

Hi Nigel

We tend to go to France for about 3-4 weeks at a time. We go to the Creuse (a very long journey) and feel that it is not practical to go while Stephen is on Velcade. I realise that it is probably different for you as you live in France I believe.

Regards Gill

PS to Bridget we no longer have a "puppy" she is known as the poo-pee…[Read more]

I'm so sorry to hear that you have lost your friend and companion. We have 2 Westies 1 is 2 and one 3 months but the thought of parting from either of them is horrid.

Dogs are not children nor human but yes they are part of your family and take a space in our lives and what a big dog sized hole there must be in your home at the…[Read more]

I am so pleased our crossed fingers worked Good for You !!!

Hi Andy

My husband has mm and was diagnosed in 2008 aged 53. He had an SCT in the summer of 2009 after chemo had got his mm down to "hardly showing" He relapsed after 18 months and is going for a second SCT later this year. After seeing his consultant today we are aware that he will probably not get as long in remission as last time but he has…[Read more]

When I Am Old is one of the many poems sayings etc that I have on my office cork board.

I think it scares my grown up kids to think I might get like that>:-)

Gill

Oops maybe I am

It is Stephen who is ill but probably me that needs the ambulance laughed so much I got a coughing fit and nearly choked!!! Makes my "wart on left thumb please remove" (yes junior surgeon removed thumb abolutely true) look pretty tame

Thanks for great fun gill xx

HERE'S ONE I MADE EARLIER 🙂 To add to the suggestions you have already had

My husband was in Kings College Hospital London in the summer of 2009 for his first SCT. We made a list of suggestions at the time of things that were quite handy to have but obviously it was geared for Kings and I am sure that other hospitals are different. We were…[Read more]

Roz you must be psychic!! My daughter plus husband 2 children and new puppy came over for the day on Saturday (hectic but fun) I managed to get a few quiet moments with my daughter and we spoke about Stephen, obviously, mm and this site.

I mentioned you and Michael and asked Donna whether she thought you would like to hear from me or whether…[Read more]

PS Min

Puppy (Anya) still gorgeous but sooo proud of mistakes!! Still squatting in front of us and being very pleased with herself.

We do shout "bad girl" and move her to her pee mat but neither Stephen nor I sound cross enough methinks. It is getting better though and she is a complete lovebug.

Luckily her "honoury aunty" (our 2 year…[Read more]

Hi All

Isn't it great that on a site that caters for a very unpleasent illness there can still be some fun.

I had forgotten all about liberty bodices. Mine had ribbons and I seem to remember that I had a "prettier one" for birthday parties etc (never seen but you knew it was your best one)

Gill xx
PS No wonder the under 50s got their…[Read more]

Hi Ruth

What a horrid time you are going through. I am no expert but I will tell you about my husband. Stephen has mm, and had a Stem Cell Transplant in the summer of 2009. He may have a second one later this year.

I can only tell you what happened to Stephen when he had his Stem Cell Harvest and Transplant. Others may have a different…[Read more]