We have just come to this forum having had a recent diagnosis of Multiple Myeloma. I knew nothing about multiple myeloma until about one month ago and things seem to be changing all the time e.g. the current thinking seems to be to treat MUGUS rather than adopting a ‘wait and see’ approach ….. we now know what we will see if we wait.
I have four suggestions: contact the Myeloma Society and get a copy of their ‘Info pack for newly diagnosed patients’ if you don’t have one; ask them also for a copy of ‘Your patient dairy’ look at page 28 for normal blood measurements; join a local myeloma society support group – ours has been fabulous; give your GP facts about multiple myeloma, ask for a new referral to a haematologist, and if the GP is resistant then consider changing your GP – your life may depend upon it
