Hi David
I’ve just had two cycles of Daratumumab ,dex and velcade (6 weeks) and am delighted to say that, other than peripheral neuropathy ( velcade) and sleepless nights (dex) I’ve been absolutely fine and able to lead a normal life. As have all the others that have started with
me. After three weeks my paraproteins had more than halved and I’m hoping that they will have reduced substantially again when I see the consultant next week. The first two infusions are very long but they then speed up. Still, be prepared to put the hours in at the hospital. I only had a small adverse reaction on my second infusion – a rash which cleared up with copious amounts of drugs and they continued after half an hour. No reactions at all since. Good luck with the treatment – all of us on it at the hospital are great fans as it’s a world away from my induction therapy which made me sick for seven months.
