buskerscat replied to the topic MGUS diagnosis – but doesn’t explain my symptoms in the forum Smouldering myeloma / MGUS 8 years, 4 months ago
Cygnet, thanks so much for taking the time to explain what happened with you.
I went back to a different doctor yesterday with my a copy of my blood tests, she said as the IgM level are so low (3.<span style=”color: #454545; font-family: UICTFontTextStyleBody; font-size: 17px; text-decoration: -webkit-letterpress;”>37 g/L) it may not even be MGUS…[Read more]
buskerscat replied to the topic MGUS diagnosis – but doesn’t explain my symptoms in the forum Smouldering myeloma / MGUS 8 years, 4 months ago
Hi Cygnet, thanks for your response. I am guessing it was low as the second test was ok. I hadn’t heard of MGUS so I didn’t really know what questions to ask – when I read it was symptomless it has left me with more questions! The problem was, that when I said that I still have these symptoms, the doctor said that all my blood tests were fine…[Read more]
buskerscat replied to the topic MGUS diagnosis – but doesn't explain my symptoms in the forum Smouldering myeloma / MGUS 8 years, 4 months ago
Thanks for responding Ian, yes I guess that’s my question really and I’d be interested to know other’s experiences as I assume most people have discovered they have this following tests for other things.
I have been told to make an appointment in 3 months. I just think I’d be more reassured if I had been referred to a specialist but perhaps my…[Read more]
buskerscat replied to the topic MGUS diagnosis – but doesn't explain my symptoms in the forum Smouldering myeloma / MGUS 8 years, 4 months ago
Thank you very much for replies. It’s just left me a little bit confused, I suppose, that I have been diagnosed with something ‘symptomless’ and then sent on my way without actually Dr looking at what I went there for originally. I feel like this has sort of side tracked treatment or diagnosis for other things, i.e. Abdo/back pain for 6 months…[Read more]
buskerscat started the topic MGUS diagnosis – but doesn’t explain my symptoms in the forum Smouldering myeloma / MGUS 8 years, 4 months ago
Hello I found this forum today as I have just received results of blood tests following high levels of immunoglobulin in the last lot of tests. Dr told me I have MGUS. Having since googled it, apparently it’s symptomless…
But my original symptoms that Ive had for 6 months and went to Drs for originally still haven’t been explained including…[Read more]
buskerscat started the topic MGUS diagnosis – but doesn't explain my symptoms in the forum Smouldering myeloma / MGUS 8 years, 4 months ago
<span style=”color: #454545; font-family: UICTFontTextStyleBody; font-size: 17px; text-decoration: -webkit-letterpress;”>Hello I found this forum today as I have just received results of blood tests following high levels of immunoglobulin in the last lot of tests. Dr told me I have MGUS. Having since googled it, apparently it’s…[Read more]
buskerscat became a registered member 8 years, 4 months ago