[buskerscatParticipant]

Cygnet, thanks so much for taking the time to explain what happened with you.

I went back to a different doctor yesterday with my a copy of my blood tests, she said as the IgM level are so low (3.<span style=”color: #454545; font-family: UICTFontTextStyleBody; font-size: 17px; text-decoration: -webkit-letterpress;”>37 g/L) it may not even be MGUS and I will have to just wait and have the test again in a few months. I had raised levels in bloods/urine that were kidney and pancreas related but she said they just weren’t high enough to do anything with… So end result was that I’m being referred for ME and have anti depressants for my back.</span>

Thanks again for your help x

 

[buskerscatParticipant]

Hi Cygnet, thanks for your response. I am guessing it was low as the second test was ok. I hadn’t heard of MGUS so I didn’t really know what questions to ask – when I read it was symptomless it has left me with more questions!  The problem was, that when I said that I still have these symptoms, the doctor said that all my blood tests were fine (except the immunoglobulin) and the ultrasound was perfect so really I should just be pleased it’s nothing serious!

Were you referred for a biopsy as a result of your levels or is it standard that everyone in your area gets the biopsy?  Would you mind me asking what symptoms took you to the Drs in the first place to get this diagnosis?

Thanks for the info on pp levels. Maybe I should try to get hold of my blood test results to help understand it all a little bit more.  Think I need to be more assertive 🙂

 

 

[buskerscatParticipant]

Thanks for responding Ian, yes I guess that’s my question really and I’d be interested to know other’s experiences as I assume most people have discovered they have this following tests for other things.

I have been told to make an appointment in 3 months. I just think I’d be more reassured if I had been referred to a specialist but perhaps my results were just too low?

[buskerscatParticipant]

Thank you very much for replies. It’s just left me a little bit confused, I suppose, that I have been diagnosed with something ‘symptomless’ and then sent on my way without actually Dr looking at what I went there for originally. I feel like this has sort of side tracked treatment or diagnosis for other things, i.e. Abdo/back pain for 6 months doesn’t seem really right to me and I wonder if they would have investigated further if it wasn’t for this MGUS?

I guess I just wonder if this is common treatment of patients with MGUS in the UK?

I have been looking at the myeloma beacon website, thank you 🙂

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