Myeloma Forum | buzz | Activity https://forum.myeloma.org.uk/members/buzz/activity/ Activity feed for buzz. Sun, 26 Apr 2026 02:46:32 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 a5897eb4c23cfbbed108f2c6cb1ed701 buzz replied to the topic A short post. in the forum General http://www.myeloma.org.uk/forums/topic/a-short-post/page/3/#post-127107 Sat, 05 Mar 2016 13:02:04 +0000 Hi Dawn, hi all on this post!

Many thanks. And lots of luck to you too.

My lightchains are shooting up. Gone from 250 to 600 in 2 weeks so I start with Velcade and dexamethasone next Friday. Trying to stay positive but the fact everything seems to have come back  only 11 months post SCT and so quickly feels very worrying.

Any positivity you…[Read more]

]]> 0a6b56c84b2430dc558feb059aa4d4ce buzz replied to the topic It's back. Feeling lost and confused in the forum Under 50s http://www.myeloma.org.uk/forums/topic/its-back-feeling-lost-and-confused/#post-127007 Fri, 26 Feb 2016 11:55:28 +0000 Richard

Many thanks for the quick response.

Agree with the working and the exercise! Helped me no end so far.

Will keep you posted; hoping for an update in the next few weeks. Given the rapid rise in my light chain numbers I’m expecting to have to make a decision fairly quickly but will try to get as much info as I can beforehand.

Have a good…[Read more]

]]> ab29a1fa9404619bc26ed02d640041d3 buzz replied to the topic It's back. Feeling lost and confused in the forum Under 50s http://www.myeloma.org.uk/forums/topic/its-back-feeling-lost-and-confused/#post-127004 Fri, 26 Feb 2016 09:36:11 +0000 Hi Rob

Many thanks for your reply. It has helped me put a bit of perspective on the return of the myeloma. I think it is now time I started to try to understand this disease a bit more and also what my specific type is.

Having followed the Myeloma XI trial and got through it relatively well and then had  the SCT and again responded well I gave…[Read more]

]]> 023f15b8f6d17010c680182f2e1220eb buzz replied to the topic A short post. in the forum General http://www.myeloma.org.uk/forums/topic/a-short-post/page/2/#post-127003 Fri, 26 Feb 2016 09:28:54 +0000 Hi Jan

Just read through some of your earlier replies and looks like you have already answered most of my questions!

However happy to hear from you again if you get a chance.

Buzz

]]> 27b2cf5d7db31d36e04eba10908d32e3 buzz replied to the topic A short post. in the forum General http://www.myeloma.org.uk/forums/topic/a-short-post/page/2/#post-127001 Fri, 26 Feb 2016 09:18:46 +0000 Hi Jan

Many thanks for your reply. It has helped me put a bit of perspective on the return of the myeloma. I think it is now time I started to try to understand this disease a bit more and also what my specific type is.

Having followed the Myeloma XI trial and got through it relatively well and then had  the SCT and again responded well I gave…[Read more]

]]> 27b2cf5d7db31d36e04eba10908d32e3 buzz replied to the topic A short post. in the forum General http://www.myeloma.org.uk/forums/topic/a-short-post/page/2/#post-127001 Fri, 26 Feb 2016 09:18:46 +0000 Hi Jan

Many thanks for your reply. It has helped me put a bit of perspective on the return of the myeloma. I think it is now time I started to try to understand this disease a bit more and also what my specific type is.

Having followed the Myeloma XI trial and got through it relatively well and then had  the SCT and again responded well I gave…[Read more]

]]> 8d6df8f4617b8305e73567466b5f13d1 buzz started the topic It's back. Feeling lost and confused in the forum Under 50s http://www.myeloma.org.uk/forums/topic/its-back-feeling-lost-and-confused/ Thu, 25 Feb 2016 13:53:17 +0000 This is my first ever post on the forum. I was diagnosed in Aug 2014 and due to my youngish age (now 48) I opted to go on the Myeloma XI trial. I had CCRD for 4 cycles responding very well with levels of over 2000 dropping to virtually zero after 2 cycles then to nothing.
I had my stem cells harvested and had an auto SCT in February 2015, was also…[Read more]

]]> db149b719c3c7294049a65e9e8a66a63 buzz started the topic It's back. Feeling lost and confused in the forum Under 50s http://www.myeloma.org.uk/forums/topic/its-back-feeling-lost-and-confused/ Thu, 25 Feb 2016 13:53:17 +0000 <p style=”text-align: right;”>WProfile photo of Guy Buzzard</p>

<div class=”bbp-reply-author” style=”box-sizing: border-box; margin: 0px; padding: 0px; font-size: 13px; direction: ltr; float: left; text-align: center; width: 115px; font-family: Arial, Oswald, ‘Helvetica Neue’, Helvetica, Helvetica, Arial, sans-serif; -webkit-text-size-adjust: auto; background-color:…[Read more]

]]> e29b10c0bf4179224f1cbda152485bc8 buzz replied to the topic A short post. in the forum General http://www.myeloma.org.uk/forums/topic/a-short-post/page/2/#post-126990 Thu, 25 Feb 2016 13:37:48 +0000 Hi All

This is my first ever post on the forum. I was diagnosed in Aug 2014 and due to my youngish age (now 48) I opted to go on the Myeloma XI trial. I had CCRD for 4 cycles responding very well with levels of over 2000 dropping to virtually zero after 2 cycles then to nothing.

I had my stem cells harvested and had an auto SCT in February 2015,…[Read more]

]]> c16c399a94d12a872cd11fc802444e52 buzz became a registered member https://forum.myeloma.org.uk/activity/p/43613/ Thu, 25 Feb 2016 12:15:38 +0000 0