https://forum.myeloma.org.uk/members/caroled/activity/ Activity feed for Carole D. Sun, 05 Apr 2026 15:01:06 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 8dca1a1b9dbe6abaa24dd5104af3103f https://www.myeloma.org.uk/forums/topic/fund-raising-help-required/ Fri, 05 Aug 2016 18:39:23 +0100 Hello Everybody -Having been a periodic contributor to the Forum for a number of years (husband first diagnosed with MM 2009, several chemo treatments and two STCs later and doing ok) I would like to ask if anyone can help me raise funds for MyelomaUK. Basically, I have been an avid machine knitter for over 30 years and still have a stock of yarn…[Read more]

]]> ef92a12435443435be7e12016a62be6c http://www.myeloma.org.uk/forums/topic/hi-4/page/2/#post-123426 Wed, 29 Jul 2015 14:46:47 +0100 Hello Bijou – with regard to your blood tests it could be that the initial tests showed some abnormality and they wanted a 2nd test to test for these “light chains”. I don’t think the light chains are routinely checked in initial blood tests but I believe that there are only a couple of centres where the testing of light chains is done so the…[Read more]

]]> 4c7885d8509ff6a0d805013cb2d5b29e http://www.myeloma.org.uk/forums/topic/hi-4/#post-123381 Tue, 28 Jul 2015 08:34:35 +0100 Hello again – just to say that your breathlessness could be due to the lesions you mention – if they are near your lungs, ie on the ribs, could be due to their pressure on the lung. That’s what happened to my husband but after initial sessions of radiotherapy the breathlessness went. I can understand the “Alice in Wonderland” feeling but reme…[Read more]

]]> bfd78df860d374b686cf7d5fd93670c8 http://www.myeloma.org.uk/forums/topic/hi-4/#post-123375 Mon, 27 Jul 2015 19:10:47 +0100 Hello Bijou! Can’t really add anything to the other posts but just to confirm there is life after diagnosis of myeloma. Husband diagnosed in Jan2009 after discovering a lump (turned out to be plasmacytoma) on his ribs. 20 sessions radiotherapy got rid of the lump , then followed 6 months of CDT (chemo) which wasn’t too bad and then stem cell…[Read more]

]]> eb0c3789d2790fbeaef25cfe60205fda http://www.myeloma.org.uk/forums/topic/feeling-anxious/#post-121373 Sat, 21 Mar 2015 18:06:56 +0000 Hello Adelaid- Agree with Carol S about avoiding infections when your husband comes home. Self-imposed quarantine has worked for my husband – no visitors, no supermarket shopping etc (for him) for 3 months. Follow eating regime and go with the flow. My husband slept quite a bit when he came home, but then  started getting up later in the m…[Read more]

]]> 1022912eccd45018cdc163141ff16e4d http://www.myeloma.org.uk/forums/topic/getting-my-husband-to-eat/#post-121322 Wed, 18 Mar 2015 19:13:31 +0000 Hello – don’t know if I can help or not – perhaps someone else can if I can’t. Quick resume – my husband just had his 2nd SCT after 5 years drug free. When he came out of hospital he had no appetite and his taste had completely gone. Started off just giving him what he fancied and easy to eat eg pancakes, scrambled egg, omelette, rice pudding in…[Read more]

]]> 1c7879f9983c8cc306ac8c4c53498e84 http://www.myeloma.org.uk/forums/topic/tips-while-in-hospital-having-sct/#post-118419 Fri, 26 Sep 2014 17:59:52 +0100 Hello Graeme – cannot really add much to the advice already given. Have you got a copy of Myeloma UKs book “The Small Things That Make A Difference”? It is a collection of snippets from the “front line” and there are quite a number of them relating to SCT. My husband had his first SCt 4+ years ago and is now being lined up for his 2nd one. Every…[Read more]

]]> d975addf1e3744d4569bff9185d8bd71 http://www.myeloma.org.uk/forums/topic/cvd-2/#post-117587 Sun, 17 Aug 2014 19:35:22 +0100 Hi – My husband is on the same regime and is just about to finish his fourth cycle, out of six. He has a Velcade injection every week, a Zometa intravenous every month and cyclophosphamide every day and dexamethasone two days a week. The first night of taking dex he has trouble sleeping and his voice goes “croaky” for 24 hours. He also has a…[Read more]

]]> ef2a1d44c605f61cd8e9adbb3a94d085 http://www.myeloma.org.uk/forums/topic/relative-newly-diagnosed-and-we-dont-have-a-clue/#post-116594 Mon, 14 Jul 2014 08:13:50 +0100 Hello – just to let you know there is life after diagnosis. My husband was diagnosed in Jan 2009 at age of 62 and after going through standard regime known as CDT and stem cell transplant was free from any symptoms until Dec 2013 and we got on with normal life, such as holidaying and put MM to back of our minds, although you do get “twitchy” at…[Read more]

]]> 8693204da8400fc3beb941f7b0cbac06 http://www.myeloma.org.uk/forums/topic/cake-recipes-please/#post-111879 Fri, 10 Jan 2014 19:25:05 +0000 Hi Lesley- Have recipes for several “orange” cake mixes (if you wanted the myeloma UK colours) including an easy make delicious chocolate and orange. Otherwise, have quite a number of others which have always proved popular at previous cake sales. If interested, please email me (billcardunk@hotmail.com) and I will be more than happy to send a…[Read more]

]]> cc67acd14ef898a2a7e648a37b11e80e http://www.myeloma.org.uk/forums/topic/travel-insurance1327064755#post-92066 Fri, 20 Jan 2012 19:06:59 +0000 Hiello Lin – It is almost two years since my husband had SCT, is OK, and since then we have used Vital Health a few times. From ringing around and online enquiries to numerous firms, they came up with the most reasonable rates.
Their address is: 308-314 London Road Hadleigh Essex SS7 2DD and telephone no:0844 826 2696. (Sorry, don't know what…[Read more]

]]> 97360fbf34d6c09edf7e2d5661b7fc73 http://www.myeloma.org.uk/forums/topic/is-there-anyone-here-from-south-walesposs-link-between-prostate-cancer-mm/page/2/#post-98662 Sun, 15 Jan 2012 20:21:16 +0000 Hello WelshHelen – just to say my husband had prostate cancer in 2005 and didn't have chemo or radiotherapy – just had the entire prostate removed and since then his psa has been negligible. He was diagnosed with MM in Jan 2009 and the prostate consultant (lovely chap) was quick to say there was no link whatsoever. Interesting though that Roger,…[Read more]

]]>