Dar Jane
I was overwhelmed by your response, you are beyond kind to get back so quickly and with such helpful advice. I will pursue all those avenues you suggest and my husband, Neil, is keen too which is good. I just need to stay strong for him and our daughters.
I am finding it so hard to read all the patient stories from the USA that say how treatments not available in the UK, have transformed their lives. It seems so cruel.
I will let you know how we get on.
My kindest regards
Carol
