[carryanneParticipant]

Hello Tom,
Many thanks for the welcome Tom,you are wrght in saying that there are a lot of friendly people in the club,which I wish I had not had to join,but i am in so will try to make the best of it.

I have been on the treatment of CDT for 2 weeks,not been too bad as yet,but feel low when I come off the DEX.,but I feel as though I could climb Mount Everest when on,not getting much sleep.

I read on one of your post you have grandchildren,I am worried about infections,we have our 3 grandchildren 5 days a week.We take to school,pick up at 3pm,cook tea,and help with homework.Then they are collected at 5-30pm.by their mums and dads (cheap childminders ha ha):-) keeps us busy.How do you cope with their colds etc etc?? My consultant at the Churchill Oxford,said to me its ok to be in the same room,but don't let them get to close.What do you think Tom?? as we are very active grandparents,full hands on.

Hope you are keeping well,did you have SCT.and what treatment are you on?? look forward to hearing from you,thanks again for the welcome.

God Bless
carryanne 🙂

[carryanneParticipant]

Dear Vicki and Colin,
Thankyou very much for welcoming me to the club,there are such nice people in here.Many thanks for your advice on keeping records of all what is happening to me,and writing the questions to ask the consultant.I found that very helpful,my lovely hubby of 47 years went,and got me two diaries to put every thing down.Like you Vicki he helps with the questions,not yet up with the technical details eg,light chains that i keep reading of,blood counts,etc.et.,but learning.

I hope Colin is doing well,he seems to be a tough cookie to me,with going through SCT.I keep reading how hard that can be.One of my consultants spoke about SCT for me,when I have been on CDT treatment for 6 months,If all goes well he said I can go down that path as my kidneys are in good condition,as yet!!!though I think with my past history that could be doubtful.

I would like some advice about do's and dont's regarding Infections as Colin seems to be the expert on this.We have our grand children 5 days a week,when mums and dads are at work, cheap childminders ha ha We take to school,pick up at 3pm,cook their tea,help with home work.Then they are picked up at 5-30pm,It keeps us active,hope I can still do It,as time goes on,what do you two think,with this MYELOMA.

Hope all goes well with Colin,keep being a tiger Vicki,be thinking of you both.

God Bless
carryanne 🙂

[carryanneParticipant]

Dear Jo
Many thanks for a nice welcome to the club,which I would not have joined by choice,as all the lovely people on this forum would think the same.I think like all the positive people that are on here you have to make the best of It.
I hope the CDT will be as effective for me as It was for you.I to dont get much sleep on DEX,last night only two hours.My feet are puffy and leg is a bit swollen,but dont know if I should ring up about It,as going up to hospital early next week to have a bone Infusion,and to see the consultant.The Infusion Is (PamIdromate) and is going to be monthly,I think thats the word I can't read his writing.
Hope you are keeping well,and hope to hear from you soon,not too good on computer as yet but getting there,so please all bare with me.
I will be thinking of you Jo,
God Bless
Carryanne 🙂

[carryanneParticipant]

Dear Eva,
Hope all goes well with you,I will certainly be thinking of you and when the treatment is all over hope to hear from you,god bless
carryanne.

[carryanneParticipant]

Hi Eva,thankyou very much for your imformation,it was very helpful,reading everyone's post,I feel such an idiot,It must be because I am new to all this,you all seem to be P.h.Ds and me starting on O level HA ha.
I had never heard of Myeloma,untill diagnosed just before Christmas,It was such a shock,20 months ago I had breast cancer,and had a mastectomy,all was going well,so I thought,then this come's along,It looks as though I have a lot to learn about this Myeloma.
What type of questions do I ask,when I go and see consultant?? I am usually a positive person,and the sort that say's come on carryanne pick yourself up and get on with it,I am sure I will when I find out about this horrible thing a bit more.
I start the second dose of cyclophosphamide on Monday,still early I know for side effects,you have all welcomed me to the club,didn't want to join, but looking at all the letters, what a lovely bunch of people you all are.:-) I am one of these silver surfers,but getting there.
thanks eva once again and hope to here from you soon.
carryanne 🙂

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