Hy all it’s good to see familiar names I have not posted either for a while. Had a stem cell in sept 2015  and still in remission all bloods are normal. Occasional chest infections but nothing major touchwood. I am on revlimid 5mg have got occasional neuropathy in my feet and dry skin . As Andy says every day is a gift and I am very grateful. Xxx Dawn

Hi I commenced maintenance treatment around March time after my SCT.  I am on the myeloma IV trial and was randomised to Revlimid.  I started on 10mg but had mild neuropathy in my feet and fingers going numb so it was dropped down to 5mg and seem ok on this.  I’m giving it a go and my pps are stable at 2 at the moment.  I am back at work now alt…[Read more]

Hi buzz i too was diagnosed in june 2014 .no treatment for the first year as asymptomatic .In may 2015 started cdt and my pp had jumped to 29. And my light chains 7000.  Had melphalen and sct in sept 2015. My pp now 2 and light chains 12 so very happy at the moment. I too have been randomised to revlimid 4 weeks ago so i am also waiting with…[Read more]

Hy jan my name is dawn x

Hi jan Iv just had excellent results 3mths post SCT. Pp 2 and normal bone marrow result.  I will be monitored every 8/12 weeks or so. My light chains have always been on the high side 700 prior to SCT and 2400 prior CDT in March so much lower.  Did you have any treatment when they rose or is it a watch and wait. My cons not concerned about light c…[Read more]

Hya Andrea, Ian, Peter and all   Just an update I have had my results 3 months after SCT and feeling very happy, pp 2 and bone marrow normal,  hope it lasts, feeling well now probably able to return to work albeit reluctantly, thinking of retiring,  I know nothing is guaranteed with mm but for now I’m happy,.  Hope you are all well and happy new year xx

Hya andy glad you seem to be doing ok. I’m 3 months after SCT my bloods due after Xmas so fingers x. Feel well though I must say. X.  Dawn

Hi Ian, Peter and Andrea   Hope you are all doing ok.  I have been home now for nearly 4 weeks after my SCT at the HAllamshire Hospital in Sheffield.   I am doing OK now and starting to feel more human.  I had a problem with sickness all the way through it really and mucositis mainly in my throat and Gastro. Intestinal tract.  Very painful.  The…[Read more]

Hi mike I have been at home now for 3 weeks after my SCT.  Feeling quite well now only occasional nausea . The energy levels are still low but improving.  On the whole the downside for me was the sickness and the mucositis which not everyone has but it doesn’t last . The staff at the HAllamshire were amazing.  Hope you are doing ok.  Good luck wit…[Read more]

Hi Ian , Peter and Andrea   I am going into Sheffield Hallamshire tomorrow for my stem cell transplant.  I am a little anxious now but I am sure I will cope.  Everybody has a different story to tell but everyone says it is doable.    Fingers x I will cope with all the side effects.   Dawn  x

Hi dino I am going into hospital for my stem cell transplant tomorrow.  not looking forward to it as there are many different reviews on it and everyone has a different story to tell but it is part of the recommended treatment and I feel I have to see it through.  I was diagnosed with myeloma last year and commenced 6 cycles of CDT in March this y…[Read more]

Hi dave sounds like you have had an excellent response. I finished my 6th cycle last week and have a stem cell harvest bookd for 24th aug the stem cell transplnt might be 3 or 4 weeks after that.  We wanted a holiday and they said said they could work around us. Is there a possibility they could  wait to do the actual transplant after your sons w…[Read more]

Hi Andy glad you are doing well.  I have just completed my 6th cycle of CDT have to say tho the last cycle was rough.   and my stemcell harvest is booked for 24th August so finger x.  My proteins are now 2 and im hoping they stay there and not creep up. xx

Hi Mike hope you are well.  I have just completed my 6th cycle of CDT that last cycle was rough and struggling with muscle cramps in my legs presumable from the Thalidomide.  No meds at the moment and I feel relatively normal but still have muscle cramps in my legs. My paraproteins are now 2 , light chains 900 but were 7000.  I think they wou…[Read more]

hi Andrea, Ian and Peter

Sorry you havn’t been so well Andrea , Ian and Peter you both seem to be doing well apart from the odd side effects.  I have just completed 6 cycles of CDT , the last last cycle was rough with constant diorrhea and muscle cramps in my legs from the Thalidomide I presume.  I feel relatively normal at the moment with no m…[Read more]

That’s good news mike. I’m hopefully going to have the SCT early sept at sheffield if all goes to plan. Para proteins now 4 after 4 cycles but not taking anything for granted hope they stay down. Hating the days when I’m on the dex. But otherwise coping reasonably ok.  Have already been in hospital with a chest infection.  Good luck with your j…[Read more]

Hope you soon on the mend Ian . My SCT  pencilled in for early sept all being well. Not looking forward to it. Two more cycles of CDT making it 6 then harvest early August.

The info days sound informative peter I really must get myself booked onto one of these.  Dawn