Myeloma Forum | cartdaw | Activity https://forum.myeloma.org.uk/members/cartdaw/activity/ Activity feed for cartdaw. Sun, 05 Apr 2026 20:30:08 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 d7914deec0dbb7d51d6269d1844c8e26 cartdaw replied to the topic I'm still here! in the forum General https://www.myeloma.org.uk/forums/topic/im-still-here/#post-131967 Tue, 21 Feb 2017 00:21:04 +0000 Hy all it’s good to see familiar names I have not posted either for a while. Had a stem cell in sept 2015  and still in remission all bloods are normal. Occasional chest infections but nothing major touchwood. I am on revlimid 5mg have got occasional neuropathy in my feet and dry skin . As Andy says every day is a gift and I am very grateful. Xxx Dawn

]]> d9c4557cb38f646bc297e42f1dcc1cc8 cartdaw posted an update: Hi Andrea ,Peter, Andy , Mike and all have not been on here […] https://forum.myeloma.org.uk/activity/p/47824/ Thu, 08 Dec 2016 22:18:22 +0000 Hi Andrea ,Peter, Andy , Mike and all have not been on here for a while so not sure where everyone is at. Andy g have just read your post glad you are ok . You are an inspiration. I am doing well so far bloods still normal after 15 moths after SCT.,taking lenolidomide 5mg on the myeloma trial. Get aching joints and legs but cope ok with that. Xxx

]]> 0 6504160cdfe15ad76dd802e24ff663d8 cartdaw replied to the topic Maintenance after SCT in the forum Treatment https://www.myeloma.org.uk/forums/topic/maintenance-after-sct/#post-127966 Mon, 16 May 2016 19:54:41 +0100 Hi I commenced maintenance treatment around March time after my SCT.  I am on the myeloma IV trial and was randomised to Revlimid.  I started on 10mg but had mild neuropathy in my feet and fingers going numb so it was dropped down to 5mg and seem ok on this.  I’m giving it a go and my pps are stable at 2 at the moment.  I am back at work now alt…[Read more]

]]> 3b4d70f8e4ff50a0c791eff5aeb5fc58 cartdaw replied to the topic A short post. in the forum General http://www.myeloma.org.uk/forums/topic/a-short-post/page/3/#post-127087 Thu, 03 Mar 2016 16:45:35 +0000 Hi buzz i too was diagnosed in june 2014 .no treatment for the first year as asymptomatic .In may 2015 started cdt and my pp had jumped to 29. And my light chains 7000.  Had melphalen and sct in sept 2015. My pp now 2 and light chains 12 so very happy at the moment. I too have been randomised to revlimid 4 weeks ago so i am also waiting with…[Read more]

]]> a9407b87e144e4cec5884f035f7fbf10 cartdaw replied to the topic A short post. in the forum General http://www.myeloma.org.uk/forums/topic/a-short-post/page/2/#post-125595 Fri, 08 Jan 2016 00:32:49 +0000 Hy jan my name is dawn x

]]> 27db6b0c8e77413e55f6ce9616892e0b cartdaw replied to the topic A short post. in the forum General http://www.myeloma.org.uk/forums/topic/a-short-post/page/2/#post-125594 Fri, 08 Jan 2016 00:31:45 +0000 Hi jan Iv just had excellent results 3mths post SCT. Pp 2 and normal bone marrow result.  I will be monitored every 8/12 weeks or so. My light chains have always been on the high side 700 prior to SCT and 2400 prior CDT in March so much lower.  Did you have any treatment when they rose or is it a watch and wait. My cons not concerned about light c…[Read more]

]]> e90b01883a08b4f04860b22e90eb6fff cartdaw replied to the topic No remission! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/no-remission/page/4/#post-125593 Fri, 08 Jan 2016 00:17:06 +0000 Hya Andrea, Ian, Peter and all   Just an update I have had my results 3 months after SCT and feeling very happy, pp 2 and bone marrow normal,  hope it lasts, feeling well now probably able to return to work albeit reluctantly, thinking of retiring,  I know nothing is guaranteed with mm but for now I’m happy,.  Hope you are all well and happy new year xx

]]> 425f0f686c8658283f595744a3f31889 cartdaw replied to the topic A short post. in the forum General http://www.myeloma.org.uk/forums/topic/a-short-post/#post-125364 Fri, 11 Dec 2015 23:08:36 +0000 Hya andy glad you seem to be doing ok. I’m 3 months after SCT my bloods due after Xmas so fingers x. Feel well though I must say. X.  Dawn

]]> a742b8c04fcbd112ae1b4399e26677ec cartdaw posted an update: @AndyG Hi andy have just read your recent post hope you […] https://forum.myeloma.org.uk/activity/p/41543/ Mon, 26 Oct 2015 11:30:29 +0000 @AndyG Hi andy have just read your recent post hope you are doing ok. I had pneumonia and sepsis 3 yrs ago was in hospital a month not ITU tho so not as ill as you were but I do feel for you it’s horrible. Looking back I think that’s when my myloma started. Have just had my SCT and doing ok. Hope you continue to do well fingers x for you.…[Read more]

]]> 0 45b2bd26328fd2ab55e0c340d3e2b216 cartdaw replied to the topic No remission! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/no-remission/page/4/#post-124726 Mon, 26 Oct 2015 11:22:28 +0000 Hi Ian, Peter and Andrea   Hope you are all doing ok.  I have been home now for nearly 4 weeks after my SCT at the HAllamshire Hospital in Sheffield.   I am doing OK now and starting to feel more human.  I had a problem with sickness all the way through it really and mucositis mainly in my throat and Gastro. Intestinal tract.  Very painful.  The…[Read more]

]]> c3091b0ea23279ecdd26e4400f806cee cartdaw replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/heading-for-treatment/page/4/#post-124725 Mon, 26 Oct 2015 11:10:22 +0000 Hi mike I have been at home now for 3 weeks after my SCT.  Feeling quite well now only occasional nausea . The energy levels are still low but improving.  On the whole the downside for me was the sickness and the mucositis which not everyone has but it doesn’t last . The staff at the HAllamshire were amazing.  Hope you are doing ok.  Good luck wit…[Read more]

]]> bfafa5b9b14b4772db42a062103a061a cartdaw replied to the topic No remission! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/no-remission/page/3/#post-123994 Tue, 08 Sep 2015 08:48:14 +0100 Hi Ian , Peter and Andrea   I am going into Sheffield Hallamshire tomorrow for my stem cell transplant.  I am a little anxious now but I am sure I will cope.  Everybody has a different story to tell but everyone says it is doable.    Fingers x I will cope with all the side effects.   Dawn  x

]]> 8604acf527715b0c8230e9c5836d0b34 cartdaw replied to the topic Starting Stem Cell Therapy in the forum Newcomers http://www.myeloma.org.uk/forums/topic/starting-stem-cell-therapy/#post-123992 Tue, 08 Sep 2015 08:44:17 +0100 Hi dino I am going into hospital for my stem cell transplant tomorrow.  not looking forward to it as there are many different reviews on it and everyone has a different story to tell but it is part of the recommended treatment and I feel I have to see it through.  I was diagnosed with myeloma last year and commenced 6 cycles of CDT in March this y…[Read more]

]]> 87c58558c3fed98dab1f7b3631d5b7aa cartdaw replied to the topic No remission! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/no-remission/page/3/#post-123528 Mon, 10 Aug 2015 18:09:55 +0100 Hi dave sounds like you have had an excellent response. I finished my 6th cycle last week and have a stem cell harvest bookd for 24th aug the stem cell transplnt might be 3 or 4 weeks after that.  We wanted a holiday and they said said they could work around us. Is there a possibility they could  wait to do the actual transplant after your sons w…[Read more]

]]> 166d48a95dbcaddc7808fdc05fe57889 cartdaw replied to the topic My latest Consult in the forum Treatment http://www.myeloma.org.uk/forums/topic/my-latest-consult/#post-123519 Sat, 08 Aug 2015 10:07:28 +0100 Hi Andy glad you are doing well.  I have just completed my 6th cycle of CDT have to say tho the last cycle was rough.   and my stemcell harvest is booked for 24th August so finger x.  My proteins are now 2 and im hoping they stay there and not creep up. xx

]]> ffe852cc668ee58036344e44966b6783 cartdaw replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/heading-for-treatment/page/4/#post-123518 Sat, 08 Aug 2015 10:00:25 +0100 Hi Mike hope you are well.  I have just completed my 6th cycle of CDT that last cycle was rough and struggling with muscle cramps in my legs presumable from the Thalidomide.  No meds at the moment and I feel relatively normal but still have muscle cramps in my legs. My paraproteins are now 2 , light chains 900 but were 7000.  I think they wou…[Read more]

]]> 361c911e17f318097cad52f7aae6ce31 cartdaw replied to the topic No remission! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/no-remission/page/3/#post-123517 Sat, 08 Aug 2015 09:46:00 +0100 hi Andrea, Ian and Peter

Sorry you havn’t been so well Andrea , Ian and Peter you both seem to be doing well apart from the odd side effects.  I have just completed 6 cycles of CDT , the last last cycle was rough with constant diorrhea and muscle cramps in my legs from the Thalidomide I presume.  I feel relatively normal at the moment with no m…[Read more]

]]> 5236fc04f8841fca3a49d5ed70f36b83 cartdaw replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/heading-for-treatment/page/3/#post-122594 Sat, 13 Jun 2015 22:20:19 +0100 That’s good news mike. I’m hopefully going to have the SCT early sept at sheffield if all goes to plan. Para proteins now 4 after 4 cycles but not taking anything for granted hope they stay down. Hating the days when I’m on the dex. But otherwise coping reasonably ok.  Have already been in hospital with a chest infection.  Good luck with your j…[Read more]

]]> e0f0a8f3321bec8c2d7cbd6d559d7bfa cartdaw replied to the topic Ian home after SCT in the forum General http://www.myeloma.org.uk/forums/topic/ian-home-after-sct/page/2/#post-122593 Sat, 13 Jun 2015 22:06:18 +0100 Hope you soon on the mend Ian . My SCT  pencilled in for early sept all being well. Not looking forward to it. Two more cycles of CDT making it 6 then harvest early August.

]]> 0c793687cf67383e0962edb6d842d971 cartdaw replied to the topic No remission! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/no-remission/page/2/#post-122590 Sat, 13 Jun 2015 18:14:31 +0100 The info days sound informative peter I really must get myself booked onto one of these.  Dawn

]]> d6ae827fdacb308cf036b4d6bdd14832 cartdaw replied to the topic No remission! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/no-remission/page/2/#post-122589 Sat, 13 Jun 2015 18:12:12 +0100 Hya Andrea Ian and Peter  Iv just completed my 4th cycle of the CDT . My para proteins are down to 4 . Have had an appt at sheffield hallamhire to discuss stem cell transplant. The harvest is pencilled in for around early August and the transplant around early sept. All being well. Not looking forward to it as you can imagine but now on this…[Read more]

]]> e762b4aaa093dcf7a5022c1a66e88071 cartdaw replied to the topic 4th Anniversary - where to next? in the forum General http://www.myeloma.org.uk/forums/topic/4th-anniversary-where-to-next/page/2/#post-122064 Tue, 05 May 2015 15:47:30 +0100 hi Helen, jan and andy have been reading your posts it all sounds very daunting. I have just started cdt treatment into my second cycle. my paraproteins have gone down to 8 from 29 already but I am not taking anything for granted as they will probably go up and down over the next few months.  I have been diagnosed for a year now.  first s…[Read more]

]]> fcddb107b0d712c1f670149ca53a37e2 cartdaw replied to the topic No remission! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/no-remission/page/2/#post-122063 Tue, 05 May 2015 15:26:17 +0100 hi andrea,  ian and peter.  hope you are all well and coping I have just completed my 2nd cycle of cdt and my paraproteins have gone down from 29 to 8 already.  hope they stay down fingers x.  but im not taking anything for granted.  havnt got the light chain results back yet so im hoping they have gone down as well.  I can cope with the thali…[Read more]

]]> 3f8a3a1ad44da6773c47a25edde02b96 cartdaw replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/heading-for-treatment/page/2/#post-122062 Tue, 05 May 2015 15:16:26 +0100 hi mike how are you doing have you started your treatment yet.  I am just completing my second cycle and my paraproteins have gone down from 29 to 8 already.  fingers x they stay down . havnt got the latest light chain results but they had fallen before I started treatment from 7000 to 5000.  good luck.

]]> 3718db695b62ca831a955c98905c78cd cartdaw replied to the topic No remission! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/no-remission/page/2/#post-121508 Tue, 31 Mar 2015 18:41:03 +0100 hi peter glad things are improving for you, feeling fine except I feel really shaky and dizzy mainly until lunchtime not sure if its the thalidomide which I take at night or the days off when I don’t have the dex.  Its just my first week so im not sure what to expect.

]]> f13b3efc397d36dd4d64cce18ef6ed05 cartdaw replied to the topic No remission! in the forum Newcomers http://www.myeloma.org.uk/forums/topic/no-remission/#post-121470 Sat, 28 Mar 2015 10:45:46 +0000 Hi Ian and Andrea hope you are both doing ok have been watching your posts as I have just started treatment as have gone from asymptomatic myeloma to active myloma my paraprotein in 26 and my free light chains have jumped to 7,000 which is high risk for kidney damage.  everything else is stable.  I have just gone into the myeloma x1 trial and r…[Read more]

]]> 7f0e0bdc17502bb4e121fb40700f7c77 cartdaw replied to the topic Day 5 of treatment chemo and stem cell replacement done in the forum Treatment http://www.myeloma.org.uk/forums/topic/day-5-of-treatment-chemo-and-stem-cell-replacement-done/#post-121326 Wed, 18 Mar 2015 23:19:15 +0000 It’s good to hear positive comments . I’m just about to embark on my first treatment after being. Asymptomatic for a year. Stem cell transplant in about 6 mths if all goes well with the initial treatment. Good luck guys  dawn x

]]> a6f9c4b061393510f81a9d8f01bbb840 cartdaw posted an update: @docmike Hi mike heading for treatment next week. Got the […] https://forum.myeloma.org.uk/activity/p/38203/ Wed, 18 Mar 2015 23:11:14 +0000 @docmike Hi mike heading for treatment next week. Got the info for the myeloma x1 trial. Light chains have jumped to 7,000. From October when they were 2,000. Everything else stable. Para proteins at 26. Good news for you tho .

]]> 1 f87436ed38e3648ef4a68f8f002a78ca cartdaw started the topic Progression to myeloma in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/progression-to-myeloma/ Sat, 14 Mar 2015 22:29:34 +0000 I have been smouldering for a year now but looks looks like I’m heading for treatment . Para proteins have jumped from 21 to 26 since dec.  my creatinine has increased slowly although have had a uti recently. Just waiting for my light chains to come back if these have increased  – well not looking too good. Quite anxious but positive. They t…[Read more]

]]> 57629be163eb4f949ed7b8c944447a28 cartdaw replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/heading-for-treatment/#post-121278 Sat, 14 Mar 2015 22:15:15 +0000 Hi mike good luck I don’t think il be far behind u x

]]> 0124eacfc79a7ec523908d7caa2e87e8 cartdaw replied to the topic Stem cell transplant booked for Sunday 15 February 2015 in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-booked-for-sunday-15-february-2015/#post-120773 Wed, 11 Feb 2015 15:34:36 +0000 My name is dawn Cartlidge  god knows y I put my username as cart daw lol

]]> 123e8a2c75289c2d5c8215131974e937 cartdaw replied to the topic Stem cell transplant booked for Sunday 15 February 2015 in the forum Treatment http://www.myeloma.org.uk/forums/topic/stem-cell-transplant-booked-for-sunday-15-february-2015/#post-120771 Wed, 11 Feb 2015 15:32:19 +0000 Hi Andrea hope all goes well for u. I may be going down the same route so please let me know how u get on. My para proteins are up to 24 so bloods to be rptd in 1 month.  If light chains r high May start treatment due to new guidelines although I’m well with no bone damage

]]> e63158c58914c9bacefa57c04fe16128 cartdaw replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS http://www.myeloma.org.uk/forums/topic/heading-for-treatment/#post-120770 Wed, 11 Feb 2015 15:16:12 +0000 Hi Michael I wish u well. Iv been to see cons today and para proteins have gone up to 24 . So all bloods have to be rptd in 3 weeks. If anything else raised then ie light chains may have to start treatment also   due to new guidelines. Otherwise I’m well . MRI ok

]]> ccb9055c25fa34520b3ea6485aee8057 cartdaw posted an update: Hi all have been diagnosed with smouldering myloma in June […] https://forum.myeloma.org.uk/activity/p/37542/ Wed, 11 Feb 2015 15:03:10 +0000 Hi all have been diagnosed with smouldering myloma in June 14 with para proteins of 21 and abnormal bone marrow cells of 70%. I feel weel no bone damage all bloods normal. But today my paraprotein is 24. So if my light chains are high in 1 month and para proteins still raised I may have to start treatment due to a change in guidelines . So feel…[Read more]

]]> 0 d337e226ba7bd635944a5c2c5c6c155a cartdaw replied to the topic Smouldering myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/smouldering-myeloma-2/page/3/#post-119512 Mon, 17 Nov 2014 09:19:01 +0000 hi all my friend has a friend who has had myloma for 20 yrs and is now in her 70s.  started with smouldering myloma but now myloma.  She apparently hasn’t always been well but has treatments and remission etc. and is still here. so I try to keep as positive as possible.  Most of the time myloma is at the back of my mind ( I was diagnosed as a sm…[Read more]

]]> 61fb5f69301e82bdc2cc2b94c0c3898c cartdaw replied to the topic smouldering myeloma;IMWG update criteria to predict CRAB features . in the forum Newcomers http://www.myeloma.org.uk/forums/topic/smouldering-myelomaimwg-update-criteria-to-predict-crab-features/#post-119140 Tue, 28 Oct 2014 20:24:07 +0000 Hi Michael it’s dawn I received ur message thank u .   Ur  post is interesting my plasma cells from the biopsy were 70% so  does this mean I may be offered treatment in light of this  new criteria .

]]> 3ad508ab5af1d09f9ccca22f3b704eff cartdaw replied to the topic Smouldering myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/smouldering-myeloma-2/page/2/#post-118998 Wed, 22 Oct 2014 08:32:40 +0100 hi its dawn. does anyone else feel tired with smouldering myloma although my iron  blood count is normal i feel extremely tired.  I work two twelve hour shifts per week as a midwife so busy but more tired than usual.

]]> dfe8f5a862dcb5097d3cfb26901fd51d cartdaw replied to the topic Smouldering myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/smouldering-myeloma-2/page/2/#post-118997 Wed, 22 Oct 2014 08:19:34 +0100 hi chrissie, im dawn. I too become anxious around hospital visits and I have to be seen every 8 weeks as although im smouldering my abnormal cell count from my bone biopsy was high. 70%.  although im well with no effects so far.  I would be interested how you get on with the aloe vera etc.  will try anything.  i feel im living my life in 8 wee…[Read more]

]]> fd4cf545dda849886d8c4539549ed5f0 cartdaw replied to the topic Smouldering myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/smouldering-myeloma-2/page/2/#post-118996 Wed, 22 Oct 2014 08:15:28 +0100 hi brian  my name is dawn I think iv mentioned earlier that I was diagnosed with smouldering myloma in april im 57. I am with what appears to be a very good team of haematologists at chesterfield royal. and appear to be quite knowledgeable re myloma.   I asked multi-vits and they said it wouldn’t hurt re iron count and well=being etc. but water is…[Read more]

]]> 4c66946636f2de7520759f2f8f50b640 cartdaw replied to the topic Smouldering myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/smouldering-myeloma-2/#post-118866 Fri, 17 Oct 2014 11:00:56 +0100 hi brian  I have also been diagnosed with smouldering myloma i am 57 yrs and feel healthy at the moment.  I have blood tests every 8 weeks and so far all still stable.  my paraproteins are 21,   Iv had the bone marrow biopsy which was quite high apparantley but the skeletal survey was normal thank goodness.   I hope to have a few years yet just smouldering

]]> 1e2b17b786cd9b8ceb00f5160e5fc06c cartdaw replied to the topic smouldering myloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/smouldering-myloma/#post-116458 Mon, 07 Jul 2014 20:09:33 +0100 thank you for your messages of support all of you , I am just getting my head around it.  Im 57yrs old and work part-time as a midwife so Im happy to smoulder  for a few years yet but hopefully will be better prepared if I have to have treatment.  I have to have my bloods taken every 2 – 3 months at the moment.

]]> c58cdd711a9d6a49083309ed95d26583 cartdaw started the topic smouldering myloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/smouldering-myloma/ Thu, 03 Jul 2014 12:34:03 +0100 hi my name is Dawn and after having been through hell for the past 3 weeks have been diagnosed with smouldering myloma.  Its is a very scary time and although no treatment at the moment , I am assurred it will turn into myloma at some time.  My family have been very supportive but its difficult to talk to them sometimes as I feel as if i am w…[Read more]

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