Hi everyone
this is the first time I have been on this site, my husband was diagnosed July 2014 he has had 6 cycles on the clinical trial of RCD and although his para protein came down from 43 to 2 as soon as he stopped taking any form of chemo it shot back up again. They gave him 3more cycles of Valcade and a similar thing happened again, he is now awaiting SCT but because they cannot give him time off medication as his MM is aggressive they are harvesting him in the next few weeks then he will be given large does of chemo to get his level down….then no delay straight to transplant. He is in terrible pain with nerve damage and can hardly walk so devastated does not come near. I feel for everyone on this long journey as this medication seems to effect everyone differently and I would appreciate any feedback as to how and what we can do for the pain?
Ann
