Myeloma Forum | lesleyhunt | Activity https://forum.myeloma.org.uk/members/charisma4/activity/ Activity feed for lesleyhunt. Sat, 11 Apr 2026 15:28:35 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 5e4bf14b5ee70c72fa0cf1079383961e lesleyhunt replied to the topic Still finding it extremely hard to cope with my dad being ill in the forum Newcomers http://www.myeloma.org.uk/forums/topic/still-finding-it-extremely-hard-to-cope-with-my-dad-being-ill/#post-118791 Wed, 15 Oct 2014 17:31:23 +0100 Hi Rhiannon,

you sound like a fantastic young man,strong of character, and a real credit to your dad. I have a hunch that your dad thinks that by not talking to you, he is protecting you.

I am 64 and have had MM since December 2012. My children are 40 and 43 years old, and I have grandchildren of your age.I went through the motions of trying to…[Read more]

]]> 09138daf5390df9fdf7fcc5d9ae45c24 lesleyhunt replied to the topic The pain is back... in the forum General http://www.myeloma.org.uk/forums/topic/the-pain-is-back/#post-118260 Sun, 21 Sep 2014 17:24:19 +0100 Hi Tom,
I am 11 months post sct,and my pains returned several weeks, ago and I feel very tired. I have had x-rays, and blood tests, which have found nothing untoward.Consultant’s advice is to get more rest, as it is still early days post sct. My son-in-law is an oncologist, and he told me that aches and pains are nothing unusual, and that I’m…[Read more]

]]> eca714a54061d6156329de0f6e026ae1 lesleyhunt replied to the topic Help needed! in the forum General http://www.myeloma.org.uk/forums/topic/help-needed-2/#post-118259 Sun, 21 Sep 2014 17:05:22 +0100 Done.

]]> 2b7688ec5bfce9f1cddb17c5f0e3d124 lesleyhunt replied to the topic Cake recipes please ! in the forum General http://www.myeloma.org.uk/forums/topic/cake-recipes-please/#post-111881 Fri, 10 Jan 2014 21:32:36 +0000 Hi Liz,

Well done on raising £230, gosh no pressure then !! I have the forum pack and have picked up on some of the tips. I think that mine will be a much smaller gathering though. I think that maybe if I hold it on a weekend, more people will be free to come along.
Thanks for the advise.
Love Lesley x

]]> f592d197c2fd938d1343932a20f5a65c lesleyhunt started the topic Cake recipes please ! in the forum General http://www.myeloma.org.uk/forums/topic/cake-recipes-please/ Thu, 09 Jan 2014 17:00:24 +0000 Hi everyone,

I am holding a coffee morning to raise funds for Myeloma UK in a few weeks time . Do any of you have a tried and tested favourite cake recipe that I can use please. I have thought of all the usuals, but am in need of inspiration !

Many thanks,
Lesley.

]]> a90746dda4d7291e12912d1bc25008fa charisma4 replied to the topic Hair loss in the forum Side-effects http://www.myeloma.org.uk/forums/topic/hair-loss/#post-111652 Mon, 30 Dec 2013 12:26:20 +0000 Hi Carol,

Good Luck on Wednesday, take a hat as you will really feel the cold when your hair has gone.Is someone going with you ?

Just keep reminding yourself that hair loss is a small price to pay. My nan had a great saying “all times pass ” and it has been my mantra over these last unpleasant few months.
My teenage grand daughters tell me I…[Read more]

]]> 7ab42d145a1dd11905925649e6b09069 charisma4 replied to the topic Hair loss in the forum Side-effects http://www.myeloma.org.uk/forums/topic/hair-loss/#post-111649 Mon, 30 Dec 2013 11:17:17 +0000 Hi Carol,
Hi Carol,
when I had my pre SCT chemo,in August, my hair began to come out within a few days. I was frightened to comb it even . However,it became such a nuisance ( hair in everything – washing up bowl, sandwiches, gravy !!) that I got my daughter, a hairdresser, to shave it all off. We both cried silent tears while it was being done.Oh,…[Read more]

]]> 14e18a48731d27db68ed70f434460a91 lesleyhunt replied to the topic A question for the ladies in the forum Side-effects http://www.myeloma.org.uk/forums/topic/a-question-for-the-ladies#post-105180 Mon, 01 Apr 2013 20:27:16 +0100 Hi Pat,
thanks so much for replying.

I have decided to 'bite the bullet' and have taken your advise .I went out on Friday,and on your advise bought Olia AND I have chosen a more daring colour than I would normally choose. I am yet to apply it, as I have had a couple of not feeling so good days, am feeling a bit brighter today so….tomorrow…[Read more]

]]> 749fee034d5a1aaf4d507c677f045da9 lesleyhunt replied to the topic A question for the ladies in the forum Side-effects http://www.myeloma.org.uk/forums/topic/a-question-for-the-ladies#post-105174 Wed, 27 Mar 2013 09:50:50 +0000 Ah Tom, I knew you would have to have a sneaky peek when you read the headliner !

Like you, I don't want to put a name to the condition when I finally tell my grand daughters, and 'dodgy bones' is a good one. I have the problem though that the girls live with me, and therefore witness my bad days however hard I try to mask it. Still, enough to…[Read more]

]]> 1941bfe06a8be180d2fa3f2014b3242e lesleyhunt replied to the topic A question for the ladies in the forum Side-effects http://www.myeloma.org.uk/forums/topic/a-question-for-the-ladies#post-105176 Wed, 27 Mar 2013 09:42:21 +0000 Hi Helen,

thank you for taking the time to reply.

I think that I might do as you did and use a colour that doesn't contain bleach. After all, what's the worst that that can happen – my hair might fall out a bit sooner that expected that's all!

I agree about the morale factor, I am feeling so dowdy at the moment.So, in a few days time,…[Read more]

]]> 9da6bb3b13419b353b5064b3a7623810 lesleyhunt replied to the topic A question for the ladies in the forum Side-effects http://www.myeloma.org.uk/forums/topic/a-question-for-the-ladies#post-105175 Wed, 27 Mar 2013 09:35:06 +0000 Hi Jan,
Thank you so much for replying.

Gosh you've have had a time of it haven't you .

I must say I am very tempted to put a colour on, I feel so dowdy.Also,I have always had poker straight hair and would be so pleased if, after SCT my hair grew back with a bit of curl !Every woman understands the confidence boost of a 'good hair day' -…[Read more]

]]> 51070cdf29e57548f0527ceee8cbc8c8 lesleyhunt started the topic A question for the ladies. in the forum Side-effects http://www.myeloma.org.uk/forums/topic/a-question-for-the-ladies Tue, 26 Mar 2013 15:34:14 +0000 Hello girls,

I am on my third cycle of MM trial. I am getting through it not too badly apart from feeling very tired, and looking slightly rounder and greyer!I do hope my question doesn't sound silly and trivial, but do any of you girls know of a hair colour that would be gentle on my hair ? It isn't all about vanity on my part, more the fact…[Read more]

]]> 1eaf17e98cac348d6fc5f7e0a670eb26 lesleyhunt replied to the topic New to this in the forum Newcomers http://www.myeloma.org.uk/forums/topic/new-to-this1362133361/page/2/#post-87306 Sat, 02 Mar 2013 19:30:32 +0000 Hi Jane,

I'm Lesley, and I became a member of the 'club' at Christmas. I am so sorry that you have had to join, but I think you will find it invaluable as I have, for advise .

I have already had so much support shown to me, and no question goes unanswered. They are a wonderful bunch, it's such a shame that we all had to 'meet' under such…[Read more]

]]> 4483e618061f5a812d03ca67ff4d8a2f lesleyhunt replied to the topic About to begin treatment - but which one ? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/about-to-begin-treatment-but-which-one-/page/2/#post-87153 Thu, 24 Jan 2013 21:57:06 +0000 Hi Tim,

thanks for getting in touch. The candidates for myeloma XI are chosen randomly by computer, after you have agreed to take part. So if the 'computer says NO'…..now which comedy sketch is that phrase from !?

It's so good to know that you are well, so encouraging for us newcomers to this horrible illness.

Are you actually…[Read more]

]]> 7e087a47c63cbb640b7abf57386ca681 lesleyhunt replied to the topic About to begin treatment - but which one ? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/about-to-begin-treatment-but-which-one-/page/2/#post-87146 Thu, 24 Jan 2013 21:42:29 +0000 Hello Mavis,
thank you for your kind words and encouragement.I don't know your present health circumstances, but I hope things are going well for you.
Kind regards,
Lesley x

]]> e26ef59aea6a82c1abe8a1d040f4f682 lesleyhunt replied to the topic About to begin treatment - but which one ? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/about-to-begin-treatment-but-which-one-/page/2/#post-87147 Thu, 24 Jan 2013 21:38:06 +0000 Hello Vicki and Colin,

thank you so much for your input and advise, and for 'telling me as it is'.I started today, and felt quite 'befuddled' sorting my pills out. I've made my own list of when and best times to take each set of tablets, this afternoon, so hopefully, there will be no slip-ups !

Everyone on this site has been so helpful and…[Read more]

]]> f24a21c847cde4e35e8a0a2b79f70cc3 lesleyhunt replied to the topic About to begin treatment - but which one ? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/about-to-begin-treatment-but-which-one-/page/2/#post-87157 Thu, 24 Jan 2013 21:25:11 +0000 Hi Graham,

thank you so much for getting in touch. I have started RCD today, and your story has given me some much needed mental strength.Getting through all those tablets on day 1 takes up some time though! The consultant thinks I will need 4-6 cycles.

I had a peep at your profile, oh dear you were so young to have this horrible 'thing'.…[Read more]

]]> e69735749e9c9a6ce6cc1a8a7ab57d87 lesleyhunt replied to the topic About to begin treatment - but which one ? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/about-to-begin-treatment-but-which-one-#post-87139 Thu, 24 Jan 2013 10:53:20 +0000 Hi Helen,

Oh how I echo your sentiments! I signed the papers on Monday and spent the rest of the day mourning my 'normal life'I started treatment today -revlimid,but didn't sleep last night worrying about the horrible chemicals I was about to put into my body.I don't usually go in for self pity,I am a no nonsense sort of person…[Read more]

]]> 98e42353851069561cbdd7491bb369cc lesleyhunt replied to the topic just been diagnosed in the forum Newcomers http://www.myeloma.org.uk/forums/topic/just-been-diagnosed#post-87167 Sun, 20 Jan 2013 12:52:07 +0000 HI Tebebe,

I was diagnosed with MM on Christmas Eve, so am going through the
same emotions as you at the moment. I'm sorry but I don't know anything about your condition, but I do know that people on this site have been so supportive, helpful and extremely kind. So stick with us !

I live in Four Oaks ,Birmingham.Be happy to chat anytime…[Read more]

]]> ca9a6a45e48275da552d54aca5a266a3 lesleyhunt replied to the topic About to begin treatment - but which one ? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/about-to-begin-treatment-but-which-one-#post-87137 Sat, 19 Jan 2013 09:10:03 +0000 Morning Helen,

Thankyou for the information and for sharing your experience with me. I'm glad to hear that you are doing so well, long may it continue.Your story gives me some much needed courage.I think that I am only just coming to terms with the reality of it all, and the irony of it is that I feel so well – next week will change all that…[Read more]

]]> 8247236020efa713973b2861c0947143 lesleyhunt replied to the topic About to begin treatment - but which one ? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/about-to-begin-treatment-but-which-one-#post-87134 Fri, 18 Jan 2013 22:41:38 +0000 Hi Tom,

Thanks for your kind wishes.

You always make me smile with your cheery face and your "onwards and upwards"

Kind regards,
Lesley

.

]]> 6c7332987340772475eed3763551c017 lesleyhunt replied to the topic About to begin treatment - but which one ? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/about-to-begin-treatment-but-which-one-#post-87130 Fri, 18 Jan 2013 22:38:08 +0000 Hi David,

Another face that I am getting to know ! I can see that I have joined a very select club – membership only given to the very best of human kindness.

Kind regards,
Lesley

Lesley

]]> 07339baa309b9896477d2ba1ceb212c4 lesleyhunt replied to the topic About to begin treatment - but which one ? in the forum Newcomers http://www.myeloma.org.uk/forums/topic/about-to-begin-treatment-but-which-one-#post-87135 Fri, 18 Jan 2013 22:23:15 +0000 Hi Adrian,
thanks so much for your prompt reply. Your advise and personal experience of revlimid has really helped me with my decision,and has given me a much needed boost of courage.

I am so happy to hear that you are doing well. All good wishes for your stem cell transplant.

I may well need more details from you as I go along, if that's…[Read more]

]]> 853f9e643223bc126fb1357f82215223 lesleyhunt started the topic About to begin treatment - but which one ?. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/about-to-begin-treatment-but-which-one- Fri, 18 Jan 2013 12:01:27 +0000 Hi Everyone,
I am a newcomer who was diagnosed on Christmas Eve.My first post on here was headed ' I feel so frightened' Well, the fear has now been replaced by total confusion !!

I have been asked to join the Myeloma XI trial. I have a couple of days left before a decision needs to be made. I have talked to doctors and nurses…[Read more]

]]> 34f77b5210a6899cbfbd74f72863d2d0 lesleyhunt replied to the topic I feel so frightened in the forum Newcomers http://www.myeloma.org.uk/forums/topic/i-feel-so-frightened#post-87115 Fri, 11 Jan 2013 16:27:45 +0000 Thankyou all so much for the advise, you sound a lovely caring bunch.After reading your stories, I am feeling much calmer now and ready to fight every inch of the way (stubborn Taurean !).
Lesley

]]> a0587244fec3aff41087e3db6f598d6c lesleyhunt replied to the topic I feel so frightened in the forum Newcomers http://www.myeloma.org.uk/forums/topic/i-feel-so-frightened#post-87110 Thu, 10 Jan 2013 15:24:08 +0000 Hi Michele,

Thankyou for replying, and for your very sound advise.

You asked me to tell you a little about myself. Well I'm 62, married,and retired living with my husband,daughter and two teenage granddaughters.I live in Birmingham.

My MM was discovered through a simple blood test for cholestrol.I have spent the last 18 months working…[Read more]

]]> 767f40b80c424bc69e898aa2f5dc6b87 lesleyhunt started the topic I feel so frightened. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/i-feel-so-frightened Wed, 09 Jan 2013 21:10:26 +0000 Hi everyone, I was diagnosed on Christmas Eve 2012. I feel shellshocked and very frightened .My initial treatment begins next week. Any tips on coping would be greatly appreciated.
many thanks, Lesley

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