charlie67 replied to the topic To Transplant or not to Transplant? That is the question? in the forum Under 50s 9 years, 7 months ago
Hi Helen, looks like we could be local ish, my harvest will be in Oxford and then the transplant at GWH Swindon. I’m just outside Marlborough. Where are you?
charlie67 replied to the topic To Transplant or not to Transplant? That is the question? in the forum Under 50s 9 years, 7 months ago
Hi Toby and Helen and Dusk
great to hear from you all. Here’s where I’m at… I finished my fifth and final VTD on 22nd July, and achieved zero para proteins and minus 5% plasma cells. Yay, break out the champagne! So even more the question to transplant or not raised its head. So in mid August I’m referred to a new consultant who will ov…[Read more]
charlie67 started the topic To Transplant or not to Transplant? That is the question? in the forum Under 50s 9 years, 9 months ago
Yes, it is 1.30 in the morning! It’s the Dex! So I thought I’d make use of this time and ask a question that is rattling around in my head and along with the Dex is keeping me awake. I had a clinic appointment yesterday. A quick recap, I’ve had 3 months of CVD, amd then 6 weeks ago my meds were changed because my para proteins had reach plateaux…[Read more]
charlie67 replied to the topic 10 Years this Tuesday in the forum Under 50s 9 years, 10 months ago
Hi Richard, 10 years that amazing. What made you go for the allo graph, and did you have an auto graph first? Charlie Usher
charlie67 replied to the topic The Under 50s Group in the forum Under 50s 10 years ago
Hi can any one give me some advice about car insurance. Am I obliged to inform my insurer of my diagnoses? My renewal is due soon, and I’m planning on staying with Tesco who I’m currently with, but not sure if I should disclose my cancer.
thanks
Charlie
charlie67 replied to the topic The Under 50s Group in the forum Under 50s 10 years, 1 month ago
Hi Matt
thanks for your kind words. Can you let me know what the process is for the SCT? Do you get admitted into hosp and then stay there until it’s all done, or is it done in stages?
Charlie
charlie67 replied to the topic The Under 50s Group in the forum Under 50s 10 years, 1 month ago
Hi Nicky
sorry you’re feeling so sick. You’ve been in my thoughts.
Charlie x
charlie67 replied to the topic The Under 50s Group in the forum Under 50s 10 years, 1 month ago
Hi Nicky, good luck today, I’ll be thinking of you. My sct is some months off, but when I think about it does frighten me. It’s great to be connected with people who are in the same position.
Charlie x
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charlie67 replied to the topic The Under 50s Group in the forum Under 50s 10 years, 1 month ago
Hi my name is Charlie (the female variety!). I was diagnosed with multiple myeloma on Jan 20 and started chemo on the 30th. I’m 47 with 3 young children and a dog! All was going well for my first three weeks of chemo, my weekly cocktail on a Friday is an injection of Velcade, chemo pills and dexamethson. I was feeling well, no side effects, a f…[Read more]
charlie67 became a registered member 10 years, 1 month ago