Myeloma Forum | charlie67 | Activity https://forum.myeloma.org.uk/members/charlie67/activity/ Activity feed for charlie67. Sat, 02 May 2026 01:15:57 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 cd47af21acccdfe3cc48893bb91de264 charlie67 replied to the topic To Transplant or not to Transplant? That is the question? in the forum Under 50s http://www.myeloma.org.uk/forums/topic/to-transplant-or-not-to-transplant-that-is-the-question/#post-123834 Tue, 01 Sep 2015 10:19:40 +0100 Hi Helen, looks like we could be local ish, my harvest will be in Oxford and then the transplant at GWH Swindon.  I’m just outside Marlborough.  Where are you?

]]> be3c8e447662ff6b7467cfda6bc4f020 charlie67 replied to the topic To Transplant or not to Transplant? That is the question? in the forum Under 50s http://www.myeloma.org.uk/forums/topic/to-transplant-or-not-to-transplant-that-is-the-question/#post-123831 Mon, 31 Aug 2015 20:50:30 +0100 Hi Toby and Helen and Dusk

great to hear from you all.  Here’s where I’m at… I finished my fifth and final VTD on 22nd July, and achieved zero para proteins and minus 5% plasma cells.  Yay, break out the champagne! So even more the question to transplant or not raised its head.  So in mid August I’m referred to a new consultant who will ov…[Read more]

]]> 60f96c3c67d775bb1181d339fbe68af8 charlie67 started the topic To Transplant or not to Transplant? That is the question? in the forum Under 50s http://www.myeloma.org.uk/forums/topic/to-transplant-or-not-to-transplant-that-is-the-question/ Fri, 12 Jun 2015 01:05:50 +0100 Yes, it is 1.30 in the morning! It’s the Dex! So I thought I’d make use of this time and ask a question that is rattling around in my head and along with the Dex is keeping me awake.  I had a clinic appointment yesterday. A quick recap, I’ve had 3 months of CVD, amd then 6 weeks ago my meds were changed because my para proteins had reach plateaux…[Read more]

]]> 652c87c7857fd640fef0ca51be8a4378 charlie67 replied to the topic 10 Years this Tuesday in the forum Under 50s http://www.myeloma.org.uk/forums/topic/10-years-this-tuesday/#post-122562 Wed, 10 Jun 2015 17:33:15 +0100 Hi Richard, 10 years that amazing. What made you go for the allo graph, and did you have an auto graph first? Charlie Usher

]]> f87804f7569e41d6ee825638406ed061 charlie67 replied to the topic The Under 50s Group in the forum Under 50s http://www.myeloma.org.uk/forums/topic/the-under-50s-group/page/8/#post-121292 Mon, 16 Mar 2015 12:31:28 +0000 Hi can any one give me some advice about car insurance.  Am I obliged to inform my insurer of my diagnoses? My renewal is due soon, and I’m planning on staying with Tesco who I’m currently with, but not sure if I should disclose my cancer.

thanks

Charlie

]]> d68d9b13d103930c00858414c636ddad charlie67 replied to the topic The Under 50s Group in the forum Under 50s http://www.myeloma.org.uk/forums/topic/the-under-50s-group/page/7/#post-121052 Sun, 01 Mar 2015 15:16:22 +0000 Hi Matt

thanks for your kind words. Can you let me know what the process is for the SCT? Do you get admitted into hosp and then stay there until it’s all done, or is it done in stages?

Charlie

]]> 3de25ee2e31b3b8d69d6cea83b1559d2 charlie67 replied to the topic The Under 50s Group in the forum Under 50s http://www.myeloma.org.uk/forums/topic/the-under-50s-group/page/7/#post-121051 Sun, 01 Mar 2015 15:06:00 +0000 Hi Nicky

sorry you’re feeling so sick. You’ve been in my thoughts.

Charlie x

]]> 33a43c321ff6352213233fd3567a1445 charlie67 replied to the topic The Under 50s Group in the forum Under 50s http://www.myeloma.org.uk/forums/topic/the-under-50s-group/page/6/#post-120935 Mon, 23 Feb 2015 08:26:11 +0000 Hi Nicky, good luck today, I’ll be thinking of you. My sct is some months off, but when I think about it does frighten me.  It’s great to be connected with people who are in the same position.

Charlie x

]]> 9a4ec2899707c3fcfcd15b8b19e704eb charlie67 changed their profile picture https://forum.myeloma.org.uk/activity/p/37723/ Sun, 22 Feb 2015 17:09:58 +0000 0 d7c78287f240018d15e05c4abcea4c8f charlie67 changed their profile picture https://forum.myeloma.org.uk/activity/p/37722/ Sun, 22 Feb 2015 17:07:39 +0000 0 3af43db752a87ea1020f1ac0b02ac757 charlie67 changed their profile picture https://forum.myeloma.org.uk/activity/p/37721/ Sun, 22 Feb 2015 17:03:27 +0000 0 5b6c0c19fe43723384c69cb2c036d99a charlie67 replied to the topic The Under 50s Group in the forum Under 50s http://www.myeloma.org.uk/forums/topic/the-under-50s-group/page/6/#post-120925 Sun, 22 Feb 2015 15:01:59 +0000 Hi my name is Charlie (the female variety!). I was diagnosed with multiple myeloma on Jan 20 and started chemo on the 30th.  I’m 47 with 3 young children and a dog! All was going well for my first three weeks of chemo, my weekly cocktail on a Friday is an injection of Velcade, chemo pills and dexamethson.  I was feeling well, no side effects, a f…[Read more]

]]> 466ac8fd4ed403def460b33394cae20e charlie67 became a registered member https://forum.myeloma.org.uk/activity/p/37710/ Sun, 22 Feb 2015 09:16:19 +0000 0