Myeloma Forum | chevgr | Activity https://forum.myeloma.org.uk/members/chevgr/activity/ Activity feed for chevgr. Fri, 17 Apr 2026 16:18:40 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 b33a6613dffe3a3c0de11067bd4b53ec chevgr replied to the topic Revlamid in the forum Treatment https://www.myeloma.org.uk/forums/topic/revlamid-2/#post-133129 Fri, 21 Apr 2017 12:33:46 +0100 Thanks for your reply. What other drugs were revlamid used with jellytot?

I didn’t have revlamid in the end. The suggestion was VRD but the insurance company said revlamid isnr authorised yet for frontline treatment.  So I’m on VCD .  Just completed one cycle now on the second.  No change in paraprotein levels but it’s early.

 

 

 

]]> fd0dadebbfda466fd3e6871b966aa524 chevgr started the topic Revlamid in the forum Treatment https://www.myeloma.org.uk/forums/topic/revlamid-2/ Fri, 17 Mar 2017 10:52:44 +0000 Has anyone ever had Revlamid suggested as initial treatment? I am recently diagnosed and haven’t begun treatment yet. I was initially told I would start on VCD but now there is talk of Revlamid being used as initial treatment. I don’t know why/have details yet.

I fully trust my doctors and will go with whatever they think best, but, just…[Read more]

]]> 00c214813c1a2cc2b47812023987b385 chevgr replied to the topic Just been diagnosed!! in the forum Under 50s https://www.myeloma.org.uk/forums/topic/just-been-diagnosed-2/page/4/#post-132330 Fri, 17 Mar 2017 10:47:33 +0000 thanks alex

]]> de431ccf2912e7ae1fdc1b44a113eccb chevgr replied to the topic Just been diagnosed!! in the forum Under 50s https://www.myeloma.org.uk/forums/topic/just-been-diagnosed-2/page/3/#post-132262 Mon, 13 Mar 2017 13:46:35 +0000 Thanks

]]> 3375775cbbb5858e21a48b76b65882d4 chevgr replied to the topic Just been diagnosed!! in the forum Under 50s https://www.myeloma.org.uk/forums/topic/just-been-diagnosed-2/page/3/#post-132254 Mon, 13 Mar 2017 06:46:14 +0000 Great to hear.

On the question of exercise. Do you do all the usual gym training now?

Can one exercise during treatment as long as one feels well? The dr told me not to use weights. I guess because of potential bone issues? What about other forms of gym work anyone have experience?

Thanks

]]> c5527ce47c7223839a8a9f917a39f8dd chevgr replied to the topic Holidays while having treatment in the forum Treatment https://www.myeloma.org.uk/forums/topic/holidays-while-having-treatment/#post-132252 Sun, 12 Mar 2017 19:45:33 +0000 Thanks for the reply. Good news you managed to get away

]]> 7725bd2e84669d39f8c3d92198dea3e0 chevgr started the topic Holidays while having treatment in the forum Treatment https://www.myeloma.org.uk/forums/topic/holidays-while-having-treatment/ Sat, 11 Mar 2017 19:31:12 +0000 hello. I hope this doesn’t seem like a trite question but are you allowed to go on holiday while having the initial pre SCT treatment e.g. VCD or VDT? If it’s somewhere nearby e.g. France or Spain?

I know drs are cautious but I think some sun and change of environment can really help a patients mood and sense of well being?

Thanks.

]]> 7330233796199928718cf623c29a2e57 chevgr replied to the topic Just been diagnosed!! in the forum Under 50s https://www.myeloma.org.uk/forums/topic/just-been-diagnosed-2/page/3/#post-132105 Mon, 06 Mar 2017 12:11:08 +0000 Oh that’s annoying the last message came out as HTML!

I’ll repost:

“thanks for the reply. My paraproteins are 49 so I guess that means I’ll start treatment soon? Is that high or does it mean it’s advanced?

How long does each cycle last and can you work in between or are you off work for a while?

Good news yours have come down so much

]]> 6da8f3bda951ec1bfc071e1113bc02dc chevgr replied to the topic Just been diagnosed!! in the forum Under 50s https://www.myeloma.org.uk/forums/topic/just-been-diagnosed-2/page/3/#post-132105 Mon, 06 Mar 2017 12:11:08 +0000 Oh that’s annoying the last message came out as HTML!

I love repost:

“thanks for the reply. My paraproteins are 49 so I guess that means I’ll start treatment soon? Is that high or does it mean it’s advanced?

How long does each cycle last and can you work in between or are you off work for a while?

Good news yours have come down so much

]]> 8130b71678969aad2d4c1a3f8e88155e chevgr replied to the topic Just been diagnosed!! in the forum Under 50s https://www.myeloma.org.uk/forums/topic/just-been-diagnosed-2/page/3/#post-132104 Mon, 06 Mar 2017 12:08:52 +0000 <p style=”text-align: left;”>Hi Rob</p>
<p style=”text-align: left;”>thanks for the reply. My paraproteins are 49 so I guess that means I’ll start treatment soon? Is that high or does it mean it’s advanced?</p>
<p style=”text-align: left;”>How long does each cycle last and can you work in between or are you off work for a while?</p>
<p…[Read more]

]]> ce7d95ff40267073bb6615eef4f6e719 chevgr replied to the topic Just been diagnosed!! in the forum Under 50s https://www.myeloma.org.uk/forums/topic/just-been-diagnosed-2/page/3/#post-132092 Sat, 04 Mar 2017 22:02:54 +0000 Hello all

I read this with interest. I’m newly diagnosed, 47, male. Inspired by the stories of good response to treatment.

I have no idea what my treatment plan will be yet.

 

]]> 50ed0abf35a5409a73f31001bd6c8471 chevgr became a registered member https://forum.myeloma.org.uk/activity/p/48784/ Sat, 04 Mar 2017 03:53:48 +0000 0