ChickenWing

Forum Replies Created

Viewing 9 posts - 1 through 9 (of 9 total)
  • Author
    Posts
  • #142853

    chickenwing
    Participant

    Thanks Geoff.

    I guess the ultimate driver will be the results of future blood tests etc. The minute there is any change I will have to reassess things immediately, I just want to take things one step at a time, to be sure and to be fully engaged all the way. My gut is saying put the SCT on hold and the blood results support that for now. At 62, I guess I have a little leeway:)

    Thanks again.

    #142852

    chickenwing
    Participant

    Thanks Tony, I’ll keep you posted.

    #142840

    chickenwing
    Participant

    Dear Tony642, thank you for your helpful response.

    I had a call today about harvesting my stem cells which I am definitely going to do in April. However in prep for the harvesting, I will have a further opportunity to discuss the SCT again and I’ll see if I change my mind about the next step. I is so hard to go for a treatment when I am currently in remission and well, knowing that the treatment could/might have such adverse side effects. I note and appreciate all of these responses and will keep you all posted on what I will do beyond the harvesting in April. In the mean time, keep well everyone.

    #142804

    chickenwing
    Participant

    Thank you kh0305 for this helpful response.

    Dear all,

    After receiving your helpful responses, speaking to the Myeloma Info helpline, discussing further with my family, having further discussions with my Clinical Nurse Specialist and my Doctors, I am now looking at the option of harvesting my stem cells and storing them. I am in remission at the moment and whilst I accept that I am deemed ‘fit’ and the the guidance is to move straight to the SCT, I am really reluctant to do so given the possible side effects that come with the SCT. As mentioned in my initial post, I am still suffering from peripheral neuropathy after just 4 cycles of VTD, which shows no signs of abating and is extremely uncomfortable. If I already got this side effect, I dread to think what the side effects of the SCT will be and the impact that could have on my life/family.

    I’ll take my chances and put the SCT on hold for now.

    Thanks again for all your helpful responses.

    #142790

    chickenwing
    Participant

    Hi Docmike,

    Thank you so much for your helpful response.

    #142789

    chickenwing
    Participant

    Hi Mulberry,

    Thank you so much for your helpful response.

    #142788

    chickenwing
    Participant

    Hi docmick,

    Thank you so much for this helpful response.

    #142756

    chickenwing
    Participant

    Dear Shropshiremum,

    Thank you so much for your helpful response.

    #142754

    chickenwing
    Participant

    Bear, thank you this helpful response.

Viewing 9 posts - 1 through 9 (of 9 total)