I was diagnosed in June 2012 and especially the way the forum use to be , it was so useful and supportive . Why was the forum changed a few years ago? Who decides when it is changed ? Do the users have any say in it? . The changes made last time resulted in a number of regular users who were a great help and support to many of us beginning the…[Read more]

Hi Graham presumably your count started to drop again . I was disappointed when the dosage was reduced . Chris

I am on Revlimid maintenance as part of Myeloma XI trial .In March of this year (three years after SCT) I had to reduce my dose to 5mg due to neutropeania. Hope this is of some help

Hi Avril

I have just got travel insurance for a two week holiday in America with Avanti for £231 . I was diagnosed in June 2012 , and had my bone marrow transplant in February 2013 . I am in remission and not on any painkillers .Hope this is of help  Chris