Good morning Eve,
Thank you for all your advice. We do get AL but it certainly isn't anywhere near £73, more like £50. I will look into that. We have a toilet adaptor and a special mattress for the bed. We are also in the process of getting a stair lift installed and we have a Blue Badge. I know exactly what you mean regarding 'decorating t…[Read more]

Hello Min,

I have just read your reply to me and also your post regarding Peter's funeral. I have lain in bed many nights worrying about that same thing.
Your story and the many replies you received have been a great source of comfort to me. I saw a quotation somewhere which goes 'I know God won't give me more than I can handle, I just wish…[Read more]

Thank you Eve, it is comforting to know there is some hope. David,too, ended up in ITU after having both hips nailed due to the damage done by this horrible disease. He was unable to have a GA because of his chest problems so had it done under an epidural. He had an embolus that travelled to his lung. Very scary but his recovery from that was…[Read more]

Hello Bridget,
Thank you for your words of encouragement. May I please ask how long it took for you to feel better again? David seems to have been going nowhere forward after eight months of treatments which have had no impact on his condition. He is in and out of hospital, which he hates, his potassium levels rise and he is given treatment to…[Read more]

Hello Eve,

Thank you for your encouraging reply. It is so hard to see a loved one visibly shrinking before your eyes. David too was very fit, keen DIY'er, did all the jobs about the house and garden. To be reduced to the state he is in now is distressing him – he cannot even shave/shower/dress himself without my help, but he remains positive…[Read more]

Hello Bridget,
Thank you for taking the time to contact me. The reason the treatment is being changed is because they are not happy with the amount of improvement there has been, they feel the light chain count should have come down a lot more than it has. Having said that, at least there has been some improvement which is encouraging for…[Read more]

Hi, I am too am new to the forum and a carer. My son gave his dad a big hug last July. It fractured a rib and crushed a vertebra and that is how our journey began. It took from July to February to come up with the diagnosis. What distresses me most is that my husband seems so much worse since he started the treatment. He has lost so much…[Read more]

I too am in some distress. My husband was diagnosed in February and what I find so difficult to come to terms with is the fact that he seems 100 times worse now than before he began his treatment. I am plagued with doubts. What would he have been like if he had never started the treatment?
He seems to have aged 10 years since diagnosis (he's…[Read more]

I have managed to register OK but I am very frustrated because I cannot work out how to start a discussion! Help.