[christaylorParticipant]

Hello John,

Glad to read you had the infusion all ok I hope that it works well, I had my zometa the other week the day after CDT and after 2 days had terrible shakes but it wore off.  And yes I also hope that it will help repair the bone damage, once a month for 2 years.  I took my CDT this morning 09:00 with breakfast, plus a glass of milk to help line my mouth and throat.  Drank plenty of water during the day just about to take my Thalidomide, don’t feel too bad.

Best Wishes, Chris.

[christaylorParticipant]

Hi Mavis,  Thanks for the message.

I agree with what you have written albeit I have not got one yet but I  certainly will do so, it can be parked in the garage ready to use at anytime.

Regards Chris.

 

[christaylorParticipant]

Hello Stanley , Many thanks for your message, I really appreciate the encouragement from everyone and the tell tale signs of the side effects. A nice cup of Horlicks just before I take the Thalidomide tablets seem to help, well what I mean is that’s my little treat with a biscuit then it’s sleep time ha ha. I don’t have any blood test results lately so not sure how much kappa light chain is coming down, due to see my Consultant next month hopefully will find out something before then.

all the best,

Chris.

[christaylorParticipant]

Hi John,  Good luck with the treatment I hope that the infusion indeed helps with walking, my legs are really painful at the moment not sure if it’s the CDT or what. Thinking about buying a mobility scooter just to get down the shops and around. Crying I do a lot of that, not too ashamed to say, for all sorts of things. I think the Dex sometimes causes emotional swings. Are you having bone strengthening infusion ?.  The hiccups any remedy welcome, after about 7 hours it was becoming intollerable my wife got me a glass of water with lots of ice with a straw, that and 1 anti sickness pill did the trick. We can swap notes on how the CDT is working like you say we are about the same  comparative stage me on my second cycle since restarting.

kind regards, Chris.

[christaylorParticipant]

Hi Rebecca & Tony,  just like to say thank you for your encouragement and knowledge about MM and the treatment. As you will both know it’s pretty tough at the moment and dare I say scary but reading everyone’s stories gives me strength knowing Iam not alone in this situation. My lovely wife has been a tremendous help in both looking after me and being so positive especially when I am feeling down.

Best Wishes,

Chris.

[christaylorParticipant]

Hi Mavis,  thank you for writing on my first posting,  I have been learning quite a lot from everyone’s comments and replies. Hopefully soon I will change the photo from a flower to one of me at least your see who I am. Once again thanks.

Take Care,

Chris.

[christaylorParticipant]

Hi Botope,  I am Chris diagnosed this June, me too have multiple lytic lesions, some fractured ribs, bad lower back and both legs. Anyway  the big bag of CDT chemo drug were indeed daunting when I first got them home from the hospital, my first 2 cycles were not good in that I developed an infection that they never really got to the bottom of , in the end had to take a month off. However  I have started again and I am on the first week of the second cycle, I seem to be coping better this time, the normal stuff Constipation, Hiccups, horrible taste are always a bit of an issue.  I hope you manage with all your medication and will understand totally any of the symptoms and not nice bits you may have. I wish you good luck and take care.

Regards Chris.

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