Good thought Tony and we must thank all those internationally doing research to to find a cure. I think we should also remember all those who didn’t make it this year, let’s be positive about our future as so many of them were for theirs.

Oh and Leicester City FC are still working miracles so lets see if we can.

Richard

Morning Andy,

Things are ticking along here quite nicely. My IgG is far lower than post SCT so the medics are looking at reducing Rev to 15mg and Dexy to 20mg. I’m waiting on the results of the latest blood test. I still have to provide a urine sample and did have a MRT last month. The scan showed no increase to the bone lesions so my consultant…[Read more]

Hi Andy,

Sounds like another near miss, if a cat has 9 lives how many have you got? Good to know you’re on the mend.

Richard

Hi Andy,

everything OK? Not heard anymore for 6 days.

Sorry Jeff, if your talking about the MP for Rutland and Melton, don’t hold your breath and I speak from personal experience. He will not do anything to upset his mates, I believe he also has one of the worst records for attending debates in the House. Remember the protests against David Wilson Homes building on Dalby Airfield? He couldn’t even be…[Read more]

Hi Helen,

Just for your interest, I live in Germany, post SCT here they like to do a BMB 4 weeks after SCT. The first I had the doctor said it will be no worse than visiting the dentist to which I replied after you must have crap dentisits in Germany. The second, by another specialist was a lot better. But for the third post SCT, I discussed the…[Read more]

Er, can we keep political views out of this and just stick to the facts and perhaps how we can lobby to have the policy changed.

Sorry Ann, haven’t heard from Tom as I don’t use social media either. I’m sure if anything happens he will post and let us know. As for David, I wonder if he’s finished his coffin yet.

Richard

Hi eve,

So good to hear from you again. Your posts about Slim and your life were really a bit of inspiration at times and sometimes full of hope as well as sadness. I have to say that you along with Tom and Vasibite helped me in particular to deal with MM.

Life has moved on for all of us and although I do not have the self determination and will…[Read more]

Dear Vicki,

we are bothsaddened to hear of the loss of Colin. You both battled so hard, especially over the last couple of months and you achieved some notable things, your marriage for one. Now it is time for grieving but please remember you have a life to live as well. I know when it’s my time I would want my wife to go out and start living…[Read more]

Like your attitude Bernard, for some, post SCT can be an anti-climax but for most it’s another chance. Whilst we will never be wealthy enough for me to take early retirement or just not worry about finances, we have totally reassessed what is important to us as a family and me as the inflicted. I’m afraid I don’t have much patience with those who…[Read more]

Morning Andy,

An attitude can be a really positive thing, It’s just difficult when you’re right and everyone else is wrong and they don’t know it 🙂
As for my exams, passed the first two and presently doing a practical in an old people’s home. I’m supposed to be doing care work but helping more with activities such as gentle exercise, crafts and…[Read more]

Good news Andy, Does it have anything to do with attitude? Enjoy the rest of the summer.

Richard

Wey hey! Bit of a surprise. Good on you for doing it. If Colin can get to the Church then he can have the energy to ensure he enjoys a lot more time with you.

What about the honeymoon?

Fatigue comes from the Dexy. It is one of those things that cannot be helped. Unfortunatetly that is the way it is. The thing is both of you need to reassess what can be done and what can’t and then readjust your lives accordingly. Life will never be the same again, it takes time to adjust to the change. Expecting things to be how they were will…[Read more]

Hi Vicki,

Very sorry to hear your latest news. As I said before, it’s not over until the fat lady sings, strange things have happened in the past and can again. Be prepared for the following emotions from Colin:

denial, anger, hope/ wishes for the future, depression and acceptence.

He must believe there is hope. Having read your many posts in…[Read more]

Hi Carol and Maureen,

I was just so pleased I had to let it be known. Really it’s about not giving up. My original diagnosis was just weeks after moving out here. My original plans were blown out the water and it was a case of finding something that I could do to ensure that I have as normal a life as possible, hence the start of retraining for a…[Read more]

Really sad to hear about your predicament. Just remember it’s not over until the fat lady sings. Who knows what’s around the corner. Is there no chance of a donor or does he have any Stemcells left that they can implant? Sorry if I sound a bit thick but sometimes solutions come from asking dumb questions.

If they are certain that nothing can be…[Read more]

Hi there,

I might fit into your criteria. I had SCT after 6 courses of VCD, my IgG dropped from 52 down to 36 and then leveled out. As I don’t live in the UK, there was no criteria of proteins to be below a certain level before SCT. Post SCT my IgG dropped to 24 and stayed there for just over a year. I am back on treatment again because since…[Read more]