Hi,

I can’t help with an idea of the cost of a SCT but your post worries me and probably a few others. After the government has decided to cut the Cancer fund and all the money wasted with more reforma, perhaps, you – the patients (I can’t, I live overseas) ought to start lobbying your MP’s or e-petition No 10. Afterall, it is your lives they are…[Read more]

Hi Eve,

I’m sure there’s a lot of us on this Forum that are thinking of you and Slim at the moment.You’re probably as strong as Slim is stubborn but that doesn’t mean people can’t help when needed.

All the best Richard

Just to add to Martin’s post, before seeing your consultant, write down a list of questions and don’t be afraid to ask. It will all help with you understanding your illness and living with it.

No, no ones trying to kill you, God just hates ex SNCO’s. They kept blaspheming and using bad language to the youth in their care. You could always repent and see if he lets you off. 🙂

Hi Alison,

you will find your illness will be catergorised. e.g. I have Multiple Myeloma IgG Kappa. The IgG refers to the actual Immuglobulin that is affected. Some are IgM, others are IgA, IgG is the most common. The kappa refers to the Light chain that is affected. I still don’t understand it all and there are some good Oracles who use this…[Read more]

Hi there, Think of Life of Brian and “Always look on the bright side of life”, the words are so true. I have a 7 year old daughter, she had just turned 6 when I was diagnosed and probably like you we were on the internet getting more and more scared as we read various stories and statistics. Anyway, 18 months on, post Allo SCT, I did not have a…[Read more]

Hi there, well, you’re a year older than me (hope you don’t think I’m rubbing it in) and in a similar position I believe. I too had an SCT in January this year and have not achieved total remission, in fact my IgG is at 22.5 and has been stable for the last 6 months. I was gutted when the medics told me my IgG level and they wanted me to have a…[Read more]

Hi,

We have adopted a “need to know” attitude with our daughter who is now 7. Last year we bought the Kelsy book which she read and refers to sometimes. The illness has affected her, especially when I went into hospital for a few weeks at a time and she keeps asking me or rather telling me to be careful so I don’t break any bones. On the whole…[Read more]

Well, they do say that the three big risk industries for MM are Agricultural, Nuclear and Chemical. Looking at the amount of chemicals used in modern farming let alone in everyday products and the increase in radiation in the atmosphere since the 60’s the question really should be why haven’t more of us got it. Beter be careful, MM can be used to…[Read more]

That’s really good news, a real case of not giving up. Still, to be expected although some call it being stubborn. Carry on being stubborn and let everyone read and digest – it’s not over ’till it’s over

mmm, third post in succesion that refers people to myelomacrowd. Though no doubt very useful, do they have more info than Myeloma UK?

Hi terry,
Know what you mean being 51, a young daughter, unable to work and little chance of increasing my pension pot – assuming of course I make it that far. However we don’t know DXS’s circumstances.

Our stress levels have been pretty high recently but there is a bit of light now that my MM has stabilised. I’m hoping the medics will sign me…[Read more]

What’s your Lucozide count like? It might be because the chemo has affected your white blood cell count and so you are more perceptible to coughs and colds and less able to fight them.

Hi there, if you at the thread Buddy’s wanted – Stem cell harvest – Dec 2013 – in Treatment, there is a lot of info from three of us that went through it at the start of the year. It’s like a diary so should give you some usefull insights on what to expect.

Hi Angela. Good news about Graham. I’m not too bothered just yet about the IgG level. The leader of the local self help group has had a IgG level of between 26 and 28 for the last 10 years and is managing OK. I haven’t got Kidney damage and my Calcium levels in the blood are normal. The last 3 blood blood test show no change in IgG also so it is a…[Read more]

I’m afraid it was slightly different for me as I live abroad. Here they always do it in Hospital. I believe a number of UK hospitals do the Chemo as an outpatient and then when the white blood cell count drops, they are admitted.

Sickness is normal, I assume they have given him Mephalan which is very very strong. I was sick for nearly two weeks straight after the mephalan. His medical team will be very experienced in this and so will be looking after him.

Hi there. Don’t think your complacent, just blasae maybe. Perhaps having lived with MM for a number of years makes it part of normal life. I suppose it’s the same for people in various walks of life – ex pats who live abroad and see how the new ex pats look at their new surroundings in wonder or forces personnel who have been at a particular…[Read more]

Hi Mavis, thanks for that, that’s the trouble with MM, it’s a real lottery.