Myeloma Forum | ChristinePugh | Friends Activity https://forum.myeloma.org.uk/members/christinepugh/activity/friends/ Activity feed for ChristinePugh's friends. Tue, 21 Apr 2026 17:33:50 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 5cb9486ddd339a69aaa6d3bb698b89d6 RichardB started the topic Pantoprazole in the forum Side-effects https://www.myeloma.org.uk/forums/topic/pantoprazole/ Fri, 22 Dec 2017 19:11:22 +0000 I had been taking Pantopazole for the last 4 years to counter the side effects from treatment. So I’ve had 4 years of stomach cramps and constipation followed by diarhea. I ran out of Pantoprozole last month and decided not to rush to renew my prescription, I had a couple of days of nausea but since then, no cramps, no diarhea, no constipation.…[Read more]

]]> 08c8060c1fe225e796c9d94ac17d9bc0 RichardB replied to the topic Back again, in the forum General https://www.myeloma.org.uk/forums/topic/back-again/#post-136521 Fri, 22 Dec 2017 19:01:22 +0000 Hi Maureen, to say what happened was galling is an understatement. At least it’s over with and Ian is not in pain anymore.

I do hope you have a nice Christmas in London and that the New Year brings something good into your life.

Richard

]]> e378d0daabf828d931189ea881fefeaf RichardB replied to the topic Back again, in the forum General https://www.myeloma.org.uk/forums/topic/back-again/#post-136491 Tue, 19 Dec 2017 21:22:47 +0000 Well, a little update, I had a visit to the hospital today and my wife came along, She’s brilliant at research whenever the Medics come out with something new and acts as a very good interpreter as well (German Hospital). She’s also very good at sniffing out Bullshit which I’ve never had from this hospital.

Anyway, we discussed various options…[Read more]

]]> 0559ddd49731510f297d7d465c348529 RichardB replied to the topic Back again, in the forum General https://www.myeloma.org.uk/forums/topic/back-again/#post-135824 Tue, 07 Nov 2017 07:15:59 +0000 Hi Rebecca,
At least with Revlimid, we know that it will stop working at sometime, anyway I was bored with it, the neuropathy is just so boring and as for the stomach cramps, calf muscle cramps and the other side effects, I’ve had those and think I’m ready to try some new ones. Joking apart, I have an MRT at the end of next week and once the…[Read more]

]]> 4ee3b1c594717f575954cc06d4a2577c RichardB started the topic Back again, in the forum General https://www.myeloma.org.uk/forums/topic/back-again/ Fri, 03 Nov 2017 18:15:33 +0000 Hi, for those who don’t know me, I wwas diagnoseed Feb 2013, had a SCT in Jan 2014 which didn’t work, then after a year of relative stability started to take Revlimid which dropped my IgG to 7 but, unfortunately as predicted, the Rev has stopped working. IgG is now above 16 so will be talking to my local Medics about my options. I have an MRT in a…[Read more]

]]> ddffec15637e0f469ea42156047ba354 RichardB replied to the topic I'm so happy! in the forum Off topic https://www.myeloma.org.uk/forums/topic/im-so-happy/#post-131626 Sun, 22 Jan 2017 16:02:08 +0000 Hi Angela, time flies! It got better because last summer I stopped taking Dexy and the Revlimid has been reduced to 10mg. Had an MRT scan last month, bone damage is stable and frankly doesn’t really bother me. I do get increased bone pain in my shoulders if I don’t drink enough or exercise enough, I have a season ticket for the local pool but I’ve…[Read more]

]]> 973b3045d4282383b9cc2ca492bd5ab9 RichardB replied to the topic Initial diagnosis in the forum General https://www.myeloma.org.uk/forums/topic/initial-diagnosis/page/5/#post-130314 Thu, 03 Nov 2016 06:44:38 +0000 Hi Dean,

I’ve not been on the site for a while but I had my SCT at about the same time as Rebecca, just about everyone here who made it to SCT managed it and was back home within weeks, it isn’t easy but it is doable. Don’t worry if it is not a great success because there are other options. Mine didn’t really work, the medics were talking about…[Read more]

]]> e9e1315b4a5466127e6f59b22df10a44 RichardB replied to the topic One year on in the forum End of Life and Grief https://www.myeloma.org.uk/forums/topic/one-year-on/page/3/#post-129115 Sat, 06 Aug 2016 17:30:39 +0100 Hi Eve, great to hear from you again, just a shame about your news. It’s a case of using life’s previous experiences to help you with todays new problems. I am sure you’ll be most welcome here whenever you need a chat and of course, being the Oracle that you are, there are a lot of people that will need your advice.

As for Slim, it doesn’t seem…[Read more]

]]> 21221b59cd4c17ed8cec1ef85c815272 RichardB replied to the topic Stem cell transplant - share your experience? in the forum Newcomers https://www.myeloma.org.uk/forums/topic/stem-cell-transplant-share-your-experience/#post-128517 Sun, 26 Jun 2016 11:19:30 +0100 Had my SCT in Jan’14. Prepare yourself mentally, it is not easy and you will feel low especially if you have the nausea and diarrhea but in the grand scheme of things it won’t last long. Do everything the nurses tell you. I was told to change my toothbrush every week to reduce the risk of infection. I had to change my own bedding everyday, the…[Read more]

]]> 6fa91aa1748cbf0077e78f32caaec81a RichardB replied to the topic Feeling helpless in the forum Carers https://www.myeloma.org.uk/forums/topic/feeling-helpless/#post-128516 Sun, 26 Jun 2016 11:08:03 +0100 Hi there,

Rebecca speaks a lot of sense, people seem to concentrate so much on the inflicted to the detriment of the carer but the role of the carer is as important as the medics. Rebecca and Cashong’s point about tough love is important, my wife gave me s..t some days and at the time I hated her for it but thank her now. It is not easy when…[Read more]

]]> 3401853aa8d0bca8e244dd96d9810eed RichardB replied to the topic returning to work in the forum Newcomers http://www.myeloma.org.uk/forums/topic/returning-to-work/#post-127465 Wed, 30 Mar 2016 11:27:26 +0100 Can’t help with work issues but if worse comes and you need to claim for ESA you should be put in the Support Group and that means you will be entitled to the higher amount with a review every 2 years. It’s still pants but at least it’s better than a lot of others.

]]> 3d28352de950333c7dc5e4c34767e407 RichardB replied to the topic Initial diagnosis in the forum General http://www.myeloma.org.uk/forums/topic/initial-diagnosis/page/5/#post-127417 Sat, 26 Mar 2016 14:56:53 +0000 Hi Stanley, good to know things are going well, know what you mean about colds, my daughter picked up a cold from school and it’s hit me really viciously. The system here in Germany is that I have to see my GP first for initial treatment and then go to the consultant if it gets really bad. So far just feeling washed out, my GP phas prescribed…[Read more]

]]> cec7c48de2f39fb4a18eef76d72607f4 RichardB replied to the topic Mum in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/mum-2/#post-127235 Wed, 16 Mar 2016 20:43:14 +0000 Hi there, really sorry to hear about your loss but at 87 your mother most certainly outlived a lot of other people. Time to remember the good times and it’s really good to know that the MM didn’t overall cause her pain or too much discomfort.

All the best for the future

]]> cb8ce8392b6fe52668e055e2d8c89392 RichardB replied to the topic Shortish post in the forum Treatment http://www.myeloma.org.uk/forums/topic/shortish-post/#post-127176 Sun, 13 Mar 2016 19:04:39 +0000 Nice to hear you’re still around and making the most of things. Shame about the 40mg dose, hopefully one day they may be able to reduce it. At least with the sleepless nights we know we will hear from you as that’s when you tend to post.

Richard

]]> 9ced1b46b384809c928fe75d8777e8d6 RichardB replied to the topic Craving in the forum General http://www.myeloma.org.uk/forums/topic/craving/#post-127172 Sat, 12 Mar 2016 15:41:55 +0000 Can’t help you with the Marmite craving but when I had my SCT I had a craving for Gingsters Cornish Pasties. I had no chance of getting one as I was still in isolation in a German hospital. It was absolute torture.

]]> 3f2edd7fcaca68b62f7983fbd6af41c8 RichardB replied to the topic Allow me to introduce myself.. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/allow-me-to-introduce-myself/#post-127148 Thu, 10 Mar 2016 18:37:56 +0000 Hi Lorraine,

Well, for a 2nd SCT I think for me it will be done after all other options have been exhausetd. As I said the first one didn’t really working in thjat it reduced my IgG from 36 down to 24. I think the other problem is that whgen they harvest the stemcells, they cannot guarentee they have removed all the affected paraprotein cells so…[Read more]

]]> 92d4ec9a8c1d2941e0c9b799ddad3f50 RichardB replied to the topic Allow me to introduce myself.. in the forum Newcomers http://www.myeloma.org.uk/forums/topic/allow-me-to-introduce-myself/#post-127047 Tue, 01 Mar 2016 21:03:43 +0000 Hi there,

Sorry to hear about your Liver problem and I had something very similar when I first started with Chemo. I had PAD which caused a very high increase in Liver enzymes, so much so the Medics stopped the Chemo for a couple of months hoping the enzymes would drop. They did eventually but it was a tough call whether to continue Chemo or wait…[Read more]

]]> 11f9fc7aa45f81a7dc4438897e043558 RichardB replied to the topic It's back. Feeling lost and confused in the forum Under 50s http://www.myeloma.org.uk/forums/topic/its-back-feeling-lost-and-confused/#post-127005 Fri, 26 Feb 2016 10:50:39 +0000 Morning, before commiting to any new treatment I think you need to do your research as to the risks and side effects. Read trial reports, research documents, anything written by professional bodies. There’s plenty available on the internet, some are quite old though. One of the reasons I rejected an allo transplant was because the risks of…[Read more]

]]> 2ab2e0243da65693f6351481e6d4d9f6 RichardB replied to the topic It's back. Feeling lost and confused in the forum Under 50s http://www.myeloma.org.uk/forums/topic/its-back-feeling-lost-and-confused/#post-126998 Thu, 25 Feb 2016 19:17:19 +0000 Hi there,

Like you I was in my 40’s (just a few month’s before my 50th) when I had my diagnosis and later had the auto SCT which also turned out to bit of a bit of failure. My IgG dropped from 36 to 24 only but stabilized enough for it to be left alone. It wasn’t even classed as remission by the medics. Unfortunately after 14 months it started to…[Read more]

]]> 44a6fe45e7e65ea3465b22a8e07c7d57 RichardB replied to the topic Exercise and anyone not gone threw with an SCT in the forum Under 50s http://www.myeloma.org.uk/forums/topic/exercise-and-anyone-not-gone-threw-with-an-sct/#post-125563 Fri, 01 Jan 2016 14:51:33 +0000 To just to follow on from Andy, I had SCT and it didn’t really work. My IgG went down from 36 to 24 post SCT. I believe in the UK they wouldn’t even consider SCT if the Paraprotein level is above 1(I live overseas). The other point is that for a lot of people remission post the first SCT only lasts 12 -18 months as was my case. After all that it…[Read more]

]]> 4e955d1c657c57c6f5dce153d69c6ab5 RichardB replied to the topic Thank you.. in the forum Off topic http://www.myeloma.org.uk/forums/topic/thank-you-2/#post-125559 Fri, 01 Jan 2016 10:24:20 +0000 Good thought Tony and we must thank all those internationally doing research to to find a cure. I think we should also remember all those who didn’t make it this year, let’s be positive about our future as so many of them were for theirs.

Oh and Leicester City FC are still working miracles so lets see if we can.

Richard

]]> 74245a636f623f83da00bdbc2375a1d6 RichardB replied to the topic Vigilance - temperature and feeling unwell in the forum Treatment http://www.myeloma.org.uk/forums/topic/vigilance-temperature-and-feeling-unwell/page/2/#post-125292 Fri, 04 Dec 2015 06:43:29 +0000 Morning Andy,

Things are ticking along here quite nicely. My IgG is far lower than post SCT so the medics are looking at reducing Rev to 15mg and Dexy to 20mg. I’m waiting on the results of the latest blood test. I still have to provide a urine sample and did have a MRT last month. The scan showed no increase to the bone lesions so my consultant…[Read more]

]]> 2c69d85cbeb6d848df553906932c4243 RichardB replied to the topic Vigilance - temperature and feeling unwell in the forum Treatment http://www.myeloma.org.uk/forums/topic/vigilance-temperature-and-feeling-unwell/page/2/#post-124550 Thu, 08 Oct 2015 10:16:19 +0100 Hi Andy,

Sounds like another near miss, if a cat has 9 lives how many have you got? Good to know you’re on the mend.

Richard

]]> f6891b4d5a22de11de55b57e46c2c7e8 RichardB replied to the topic Vigilance - temperature and feeling unwell in the forum Treatment http://www.myeloma.org.uk/forums/topic/vigilance-temperature-and-feeling-unwell/#post-124158 Tue, 15 Sep 2015 18:38:28 +0100 Hi Andy,

everything OK? Not heard anymore for 6 days.

]]> e75227b608915715d8e5550ce81c9c54 RichardB replied to the topic Removal of Revlimid and pomalidomide from Cancer Drugs Fund in the forum General http://www.myeloma.org.uk/forums/topic/removal-of-revlimid-and-pomalidomide-from-cancer-drugs-fund/page/4/#post-124152 Tue, 15 Sep 2015 13:34:14 +0100 Sorry Jeff, if your talking about the MP for Rutland and Melton, don’t hold your breath and I speak from personal experience. He will not do anything to upset his mates, I believe he also has one of the worst records for attending debates in the House. Remember the protests against David Wilson Homes building on Dalby Airfield? He couldn’t even be…[Read more]

]]> 8816482c97e1f82b9b6c85b1c1312352 RichardB replied to the topic To Transplant or not to Transplant? That is the question? in the forum Under 50s http://www.myeloma.org.uk/forums/topic/to-transplant-or-not-to-transplant-that-is-the-question/page/2/#post-124121 Mon, 14 Sep 2015 08:59:37 +0100 Hi Helen,

Just for your interest, I live in Germany, post SCT here they like to do a BMB 4 weeks after SCT. The first I had the doctor said it will be no worse than visiting the dentist to which I replied after you must have crap dentisits in Germany. The second, by another specialist was a lot better. But for the third post SCT, I discussed the…[Read more]

]]> 0102a065c5c31a8a1f6f3faf74542b41 RichardB replied to the topic Removal of Revlimid and pomalidomide from Cancer Drugs Fund in the forum General http://www.myeloma.org.uk/forums/topic/removal-of-revlimid-and-pomalidomide-from-cancer-drugs-fund/page/2/#post-123957 Sun, 06 Sep 2015 12:45:35 +0100 Er, can we keep political views out of this and just stick to the facts and perhaps how we can lobby to have the policy changed.

]]> f90cc4cde67a0d4c7472e71ebd9a3382 RichardB replied to the topic One year on in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/one-year-on/#post-123945 Sat, 05 Sep 2015 19:12:49 +0100 Sorry Ann, haven’t heard from Tom as I don’t use social media either. I’m sure if anything happens he will post and let us know. As for David, I wonder if he’s finished his coffin yet.

Richard

]]> ff090f52ec27847af9bbff5905d261b8 RichardB replied to the topic One year on in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/one-year-on/#post-123930 Sat, 05 Sep 2015 13:42:35 +0100 Hi eve,

So good to hear from you again. Your posts about Slim and your life were really a bit of inspiration at times and sometimes full of hope as well as sadness. I have to say that you along with Tom and Vasibite helped me in particular to deal with MM.

Life has moved on for all of us and although I do not have the self determination and will…[Read more]

]]> 346335bdd0860e08503072da0e47d393 RichardB replied to the topic Colin in the forum General http://www.myeloma.org.uk/forums/topic/colin/#post-123580 Sat, 15 Aug 2015 14:23:19 +0100 Dear Vicki,

we are bothsaddened to hear of the loss of Colin. You both battled so hard, especially over the last couple of months and you achieved some notable things, your marriage for one. Now it is time for grieving but please remember you have a life to live as well. I know when it’s my time I would want my wife to go out and start living…[Read more]

]]> 46c99d99a3735b50845fb93eeec807b8 RichardB replied to the topic life after the transplant in the forum Under 50s http://www.myeloma.org.uk/forums/topic/life-after-the-transplant/page/2/#post-123503 Thu, 06 Aug 2015 11:15:45 +0100 Like your attitude Bernard, for some, post SCT can be an anti-climax but for most it’s another chance. Whilst we will never be wealthy enough for me to take early retirement or just not worry about finances, we have totally reassessed what is important to us as a family and me as the inflicted. I’m afraid I don’t have much patience with those who…[Read more]

]]> fb797018f5590633f6388d4d1ffc071d RichardB replied to the topic My latest Consult in the forum Treatment http://www.myeloma.org.uk/forums/topic/my-latest-consult/#post-123226 Wed, 22 Jul 2015 05:12:10 +0100 Morning Andy,

An attitude can be a really positive thing, It’s just difficult when you’re right and everyone else is wrong and they don’t know it 🙂
As for my exams, passed the first two and presently doing a practical in an old people’s home. I’m supposed to be doing care work but helping more with activities such as gentle exercise, crafts and…[Read more]

]]> 7f21361b1ff48e83adbeacc0d3d770de RichardB replied to the topic My latest Consult in the forum Treatment http://www.myeloma.org.uk/forums/topic/my-latest-consult/#post-123145 Mon, 20 Jul 2015 17:14:13 +0100 Good news Andy, Does it have anything to do with attitude? Enjoy the rest of the summer.

Richard

]]> 18425301a357cf603961bb90ba664f1b RichardB replied to the topic Worried in the forum General http://www.myeloma.org.uk/forums/topic/worried/page/3/#post-123022 Sat, 11 Jul 2015 21:13:16 +0100 Wey hey! Bit of a surprise. Good on you for doing it. If Colin can get to the Church then he can have the energy to ensure he enjoys a lot more time with you.

What about the honeymoon?

]]> a6e3c6f7b3f7cdf97393fdd6f00ff176 RichardB replied to the topic my husband is well so why is it all so difficult? in the forum Carers http://www.myeloma.org.uk/forums/topic/my-husband-is-well-so-why-is-it-all-so-difficult/#post-122956 Mon, 06 Jul 2015 19:12:05 +0100 Fatigue comes from the Dexy. It is one of those things that cannot be helped. Unfortunatetly that is the way it is. The thing is both of you need to reassess what can be done and what can’t and then readjust your lives accordingly. Life will never be the same again, it takes time to adjust to the change. Expecting things to be how they were will…[Read more]

]]> 6af28ba95e6f8cbaeff970f568b8df89 RichardB replied to the topic Worried in the forum General http://www.myeloma.org.uk/forums/topic/worried/page/2/#post-122943 Sun, 05 Jul 2015 19:15:51 +0100 Hi Vicki,

Very sorry to hear your latest news. As I said before, it’s not over until the fat lady sings, strange things have happened in the past and can again. Be prepared for the following emotions from Colin:

denial, anger, hope/ wishes for the future, depression and acceptence.

He must believe there is hope. Having read your many posts in…[Read more]

]]> cf7e5e0cdc6e49006df86b06e836c215 RichardB replied to the topic I'm so happy! in the forum Off topic http://www.myeloma.org.uk/forums/topic/im-so-happy/#post-122825 Sun, 28 Jun 2015 19:02:45 +0100 Hi Carol and Maureen,

I was just so pleased I had to let it be known. Really it’s about not giving up. My original diagnosis was just weeks after moving out here. My original plans were blown out the water and it was a case of finding something that I could do to ensure that I have as normal a life as possible, hence the start of retraining for a…[Read more]

]]> 022e11923cd8710f2b8638a5e8a81a22 RichardB replied to the topic Worried in the forum General http://www.myeloma.org.uk/forums/topic/worried/#post-122824 Sun, 28 Jun 2015 18:57:09 +0100 Really sad to hear about your predicament. Just remember it’s not over until the fat lady sings. Who knows what’s around the corner. Is there no chance of a donor or does he have any Stemcells left that they can implant? Sorry if I sound a bit thick but sometimes solutions come from asking dumb questions.

If they are certain that nothing can be…[Read more]

]]> acca27750e79c750d3c1f75636e0762e RichardB started the topic I'm so happy! in the forum Off topic http://www.myeloma.org.uk/forums/topic/im-so-happy/ Fri, 26 Jun 2015 10:26:54 +0100 In January I started two courses here in Germany, the first is the middle level German Language course and the exam is in two weeks :(. The other is a basic care course with a very heavy medical content covering such things as Strokes, Dementia, First Aid and Nutrition amongst others. Naturally all in German. Well, I took the final exam yesterday…[Read more]

]]> da32e119242e6d975d59318fa975d74a RichardB replied to the topic To Transplant or not to Transplant? That is the question? in the forum Under 50s http://www.myeloma.org.uk/forums/topic/to-transplant-or-not-to-transplant-that-is-the-question/#post-122588 Sat, 13 Jun 2015 16:54:55 +0100 Hi there,

I might fit into your criteria. I had SCT after 6 courses of VCD, my IgG dropped from 52 down to 36 and then leveled out. As I don’t live in the UK, there was no criteria of proteins to be below a certain level before SCT. Post SCT my IgG dropped to 24 and stayed there for just over a year. I am back on treatment again because since…[Read more]

]]> 2aae8197c44062a905cfb68bfcc7f156 RichardB replied to the topic Worried in the forum General http://www.myeloma.org.uk/forums/topic/worried/#post-122587 Sat, 13 Jun 2015 13:25:54 +0100 Hi Vicki,

The Mephalan is there to destroy the MM and unfortunately it is non dicriminatory so does literally destroy the good cells as well. There is not a lot that can be done, it’s down to the medics now and Colin. Sorry I can’t be more positive, you just have to sit with it and I expect the medics are doing their bit as well.

]]> 8952edc1f31b51abcee2de84e3e0c306 RichardB replied to the topic Ian home after SCT in the forum General http://www.myeloma.org.uk/forums/topic/ian-home-after-sct/#post-122332 Sun, 31 May 2015 18:32:00 +0100 Hi Maureen,

Sorry to hear Iain’s back in, still it’s probably the best place for him. As for me, my Heamoglobin dropped to about 10 so they were a bit concerned. I had another blood test last week, while they recovered my Leucocytes have dropped now. Still not doing too badly. I had the mock exam a few weeks ago and scraped by – blame that on it…[Read more]

]]> 3b684b3978439730f046722fba170b45 RichardB replied to the topic Ian home after SCT in the forum General http://www.myeloma.org.uk/forums/topic/ian-home-after-sct/#post-122330 Sun, 31 May 2015 18:05:52 +0100 Good news he is home, there will be a couple of ups and downs but make the most of it.

Richard

]]> c04cce9e1732e2a4c62d3574fd722a19 RichardB replied to the topic Early signs of myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/early-signs-of-myeloma/#post-122240 Fri, 22 May 2015 19:46:06 +0100 I’m afraid we all go through the “have I, haven’t I stage” There is not a lot you can do about it. Be aware that some people have non secretary MM, that means it won’t show up by an increase in protein level in the blood so your husband may have to give a large Urine sample (taken over 24 hours) and a Bone Marrow Biopsy. All the best and I’m sure…[Read more]

]]> ff33fc46e2ca533a5cbbfed45f082e1b RichardB replied to the topic Early signs of myeloma in the forum Newcomers http://www.myeloma.org.uk/forums/topic/early-signs-of-myeloma/#post-122237 Fri, 22 May 2015 18:59:45 +0100 Hi there,

Yes blood tests can fluctuate although not by very much. Another factor will be if the samples are tested by the same laboratory. Different equipment will give slightly different results.

As for the cold, ear infection and sinuses, I’m afraid I had the same before diagnosis. I blamed it my daughter bringing home allsorts of weird and…[Read more]

]]> 291492419406eb77b9cf29668b4fd717 RichardB replied to the topic SCT in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-4/#post-122117 Tue, 12 May 2015 10:55:41 +0100 I wish you both well. It’s not easy – for the partners as well as the patient but others have done it and there is no reason why you can’t. Just lots of TLC required afterwards and expect the odd hiccup.

Richard

]]> 80b21eb5bed294016f8a3d62a0f70c5f RichardB replied to the topic Bendamustine treatment in the forum Treatment http://www.myeloma.org.uk/forums/topic/bendamustine-treatment/page/2/#post-122010 Thu, 30 Apr 2015 12:42:33 +0100 Sorry to hear about your dilemma, At least they are still talking of options and who knows, Colin may be invited to take part in some new trial or treatment. We just don’t know what’s around the corner. Although I have found the doctors here very good at putting a positive spin on everything, I also found them to be realistic. Your consultants…[Read more]

]]> 180e43cdfceba4cbef71eb61c467ee58 RichardB replied to the topic Good while it lasted. in the forum Treatment http://www.myeloma.org.uk/forums/topic/good-while-it-lasted/#post-121914 Sun, 26 Apr 2015 19:22:28 +0100 Thanks Andy,

I’ve only been on the treatment since Wednesday and already I have had the extreme tiredness. the warm sweats, diarrhea and constant itching of the scalp. I am not looking forward to the next few weeks. My concentration levels are really low which is a bit of a bugger because I have a possible mock exam tomorrow and lots of homework…[Read more]

]]> 8a5e1a3fef72301b43657226f3b34261 RichardB replied to the topic Possible transplant in the forum Treatment http://www.myeloma.org.uk/forums/topic/possible-transplant/#post-121909 Sun, 26 Apr 2015 08:17:46 +0100 You have nothing to lose, If it works you won’t regret it, if it doesn’t you should still get some remission but then will probably have to have it at a later date. Trouble is they won’t allow you to have a SCT after a certain age or if you are not physically fit enough. The few weeks in hospital are a pain but will be a memory afterwards.

I…[Read more]

]]> a2a96de753dc41856b811a6405ffdc1b RichardB replied to the topic Good while it lasted. in the forum Treatment http://www.myeloma.org.uk/forums/topic/good-while-it-lasted/#post-121885 Thu, 23 Apr 2015 06:56:57 +0100 That’s alright Maureen, The medics tell me that there are not too many side effects and shouldn’t be anything that won’t show up without a blood test. However I’ve found them to be over optimistic here, as if they spend a large chunk of their training on how to reassure the patient. As an example, at my initial diagnosis, my GP said to me that “…[Read more]

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