Hi everyone,
I do not have multiple myeloma but my husband does, he was In complete denial of the whole situation, much as he was when he had his quadruple heart bypass 11 years ago, he is now nearly 66.
he was diagnosed after spending 6 months in severe pain in his arm from Christmas, long story but eventually MRI scan done in a May, funny bone in neck as they called it, turns out plasmacytoma and C6 and 7 are virtually missing, biopsy showed myeloma, paraprotein level of 16, after now being in the middle of treatment with Velcade, thalidomide, dextramethasone etc we are now in the middle of treatment cycle number 4 and his levels at the end of. Treatment cycle number 3 were down to 2! So that was fab news and been reffered to Oxford for stem cell retrieval and transplant, appointment being on 10th October, when we will be in middle of chemo number 5!
he had no symptoms at all on first two cycles! then on second one it hit him like a lead balloon! had dizzy spells! unstable! tired and fatigued! this latest cycle! his legs seemed to hwve stopped working and he is in considerable pain with his feet inparticular, horrible taste in mouth! doesn’t want to eat much! he is completely exhausted all of the time! ai am too! having to do all the things he normally does around the house as ell as working myself albeit only part time since September due to the situation…..
sorry just needed to blurt this lot out! you all know what it’s like! is there a support group for carers for myeloma? I also have a brother and father with terminal cancer at the moment and am struggling to deal with it all, we have three children who are under 20 as well so that is difficult too…….thanks for listening!
chuck……..
