[cjleedsParticipant]

Hello again,
Firstly a thank you to Glenc and David for their responses.
I met with one of the consultants at St James’s Leeds on Wednesday and although they agreed I am a relatively fit 70 year old they suggest that DRD rather than SCT would be best for me. They did say they would do a SCT if I absolutely insisted but both treatments offer potential remission for 5 years and DRD comes without the risks of SCT which they said was up to 2% or 1 in 50 at my age. Good news is my creatinine has fallen again but my free light chains are continuing to rise so looking at starting treatment in a month or two.
One thing I forgot to ask is about treatment options after DRD . I noticed from the website the sone have had Daratumumab as a second line after SCT but I need to ask what happens as a secondary treatment after DRD
Thank you all again

[cjleedsParticipant]

Hello , I’m another newcomer to the site and I’m in the process of being diagnosed. I’m 70 years old and my problem was found when I had free light chains in my plasma and urine . I have just had a bone marrow biopsy this morning which was uncomfortable but not too bad . For me the most painful part was the aspiration rather than the bone sample bit. I find reading about people’s experiences with the disease is a real help in allowing me to come to terms with what the future may hold so I just wanted to introduce myself and say thank you to everyone who posts on this forum.

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