Farmers wife Claire

  • claicarter replied to the topic SCT in the forum Under 50s 3 years, 8 months ago

    Sorry for the long gap between updates but its been a busy few months.  Anthony had his SCT 6 weeks ago tomorrow.  It was incredibly hard going for about 2 weeks, Ant was very poorly from the day after the high dose chemo. He slept constantly for the first week, then the S&D kicked in!  He lost a stone in weight in 3 weeks. He was discharged on da…[Read more]

  • claicarter replied to the topic SCT in the forum Under 50s 3 years, 12 months ago

    Wow 6 million is amazing!  Does he have a date yet for his high dose chemo? Just wondering how soon after the harvesting out is done.  Wishing you both all the best for the next bit. Claire x

  • claicarter replied to the topic SCT in the forum Under 50s 4 years ago

    Thought I’d share some good news – hubby’s PP is now down to 2 after 3 rounds of VDT and he’s been cleared for his SCT after round 4,  which he started yesterday.  We’ve had the SCT process thoroughly explained and whilst some of it does sound daunting we are more determined than ever to get through this and out the other side. We are aiming to g…[Read more]

  • claicarter replied to the topic SCT in the forum Under 50s 4 years ago

    Also how bad is the chemo they give you after the harvest during the SCT process.   Our consultant has described it as “being on a thimble full of chemo now and going into a bucket load during SCT”. How did people come with this?  Thanks

  • claicarter replied to the topic SCT in the forum Under 50s 4 years ago

    My hubby has just finished round 3 of VDT.  His FLC were down to 6 after round 2. Our local hospital has a backlog for the PP level results but the consultant is confident that with the FLC coming down so much the PP level should be somewhere near.   I know the reduction can slow down with each round.   Can anyone tell me what there round 3 and 4…[Read more]

  • Wow, 38 to 10 is excellent after just one round.  Were you at all disapointed that it then only dropped by 4 after round 2, although still a great result? It would be great to hear his round 3 results when you get them as your hubby sounds just ahead of mine in terms of treatment. Are they planning  SCT too?  C

  • I put my hubby on Curcumin capsules (with an extra ingredient built in to aid absortion) the minute he was diagnosed with Myeloma before the doctors got him on anything else. His para protein levels have been coming down ever since. However, he’s also had radiotherapy  (only reduced PP level from 31 to 29.7) and today we got some great news that…[Read more]

  • Hi Helen, my husband (47) was diagnosed in May and at first we did seem to be waiting around a lot for results once you get a full diagnosis though it usually speeds up dramatically.  3 months in and he’s been operated on, started and finished radiation therapy and has just completed round 1 of chemo with some excellent results!  What stage of d…[Read more]

  • claicarter replied to the topic Curcumin in the forum Under 50s 4 years, 3 months ago

    There was also a lady on Radio 4’s food programme who sounds like the same one. You can download the pod cast from BBC online. I’ve put my hubby on  Curcumin capsules with an added ingredient to aid absorption. Every little helps!

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