https://forum.myeloma.org.uk/members/claicarter/activity/ Activity feed for Farmers wife Claire. Fri, 24 Apr 2026 05:52:17 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 5c98180d045b775bc7c9aa2f393630a3 https://www.myeloma.org.uk/forums/topic/sct-9/page/2/#post-136568 Wed, 03 Jan 2018 22:07:21 +0000 Sorry for the long gap between updates but its been a busy few months.  Anthony had his SCT 6 weeks ago tomorrow.  It was incredibly hard going for about 2 weeks, Ant was very poorly from the day after the high dose chemo. He slept constantly for the first week, then the S&D kicked in!  He lost a stone in weight in 3 weeks. He was discharged on da…[Read more]

]]> 86615e3f96d432079f867ecdd9ee0d6d https://www.myeloma.org.uk/forums/topic/sct-9/page/2/#post-135096 Thu, 21 Sep 2017 13:10:40 +0100 Wow 6 million is amazing!  Does he have a date yet for his high dose chemo? Just wondering how soon after the harvesting out is done.  Wishing you both all the best for the next bit. Claire x

]]> b90ba88498fc7f7060776095e17ea131 https://www.myeloma.org.uk/forums/topic/sct-9/page/2/#post-135074 Wed, 20 Sep 2017 07:08:11 +0100 Thought I’d share some good news – hubby’s PP is now down to 2 after 3 rounds of VDT and he’s been cleared for his SCT after round 4,  which he started yesterday.  We’ve had the SCT process thoroughly explained and whilst some of it does sound daunting we are more determined than ever to get through this and out the other side. We are aiming to g…[Read more]

]]> dd2618d6b34a2012d435558241dc0a50 https://www.myeloma.org.uk/forums/topic/sct-9/#post-134858 Sat, 09 Sep 2017 08:06:32 +0100 Also how bad is the chemo they give you after the harvest during the SCT process.   Our consultant has described it as “being on a thimble full of chemo now and going into a bucket load during SCT”. How did people come with this?  Thanks

]]> f02348617a3799d8a67a86e79b654faf https://www.myeloma.org.uk/forums/topic/sct-9/#post-134857 Sat, 09 Sep 2017 08:03:06 +0100 My hubby has just finished round 3 of VDT.  His FLC were down to 6 after round 2. Our local hospital has a backlog for the PP level results but the consultant is confident that with the FLC coming down so much the PP level should be somewhere near.   I know the reduction can slow down with each round.   Can anyone tell me what there round 3 and 4…[Read more]

]]> acfaacea9d88d0d2af2b33ac0927a6d1 https://www.myeloma.org.uk/forums/topic/curcumin-case-report/#post-134527 Mon, 07 Aug 2017 17:22:40 +0100 Wow, 38 to 10 is excellent after just one round.  Were you at all disapointed that it then only dropped by 4 after round 2, although still a great result? It would be great to hear his round 3 results when you get them as your hubby sounds just ahead of mine in terms of treatment. Are they planning  SCT too?  C

]]> 644b259f39edeb01ee0f5706db2dcfe3 https://www.myeloma.org.uk/forums/topic/curcumin-case-report/#post-134522 Mon, 07 Aug 2017 13:40:14 +0100 I put my hubby on Curcumin capsules (with an extra ingredient built in to aid absortion) the minute he was diagnosed with Myeloma before the doctors got him on anything else. His para protein levels have been coming down ever since. However, he’s also had radiotherapy  (only reduced PP level from 31 to 29.7) and today we got some great news that…[Read more]

]]> 9d5261d8669b6b5b7c10a4fd4afee799 https://www.myeloma.org.uk/forums/topic/hi-i-am-from-the-country-so-i-dont-know-any-one-with-this-illness-my-problem/#post-134521 Mon, 07 Aug 2017 13:32:05 +0100 Hi Helen, my husband (47) was diagnosed in May and at first we did seem to be waiting around a lot for results once you get a full diagnosis though it usually speeds up dramatically.  3 months in and he’s been operated on, started and finished radiation therapy and has just completed round 1 of chemo with some excellent results!  What stage of d…[Read more]

]]> da74061c4a961d25ac69c1cd84d634d0 https://www.myeloma.org.uk/forums/topic/curcumin-4/#post-133936 Wed, 21 Jun 2017 07:48:34 +0100 There was also a lady on Radio 4’s food programme who sounds like the same one. You can download the pod cast from BBC online. I’ve put my hubby on  Curcumin capsules with an added ingredient to aid absorption. Every little helps!

]]> 5599ff225c5be130cf8da9d8bb5421d7 https://forum.myeloma.org.uk/activity/p/49626/ Tue, 09 May 2017 14:45:45 +0100 0 05682dd9d504cae5b5e530c1a3491dcd https://forum.myeloma.org.uk/activity/p/49625/ Tue, 09 May 2017 14:44:13 +0100 0 65af065943113d9c1b08097455869040 https://forum.myeloma.org.uk/activity/p/49591/ Sun, 07 May 2017 18:14:41 +0100 0