Many thanks to all for replying. It really helps to know there are others out there. I will certainly look into support groups and info days when we get back. I guess all will be much clearer once we are there and hear what the UK doctors have to say. We will appreciate the NHS, although there are much less options available, it is much easier to access, without all the stress of medical insurance!!
Rebecca, thanks for the much needed light at the end of the tunnel, like you say, it is really hard to believe right now that life for my husband can get back to near normal. I feel much more positive reading your post!
Take care everyone and I will post when on your side of the pond…
