[clairelouParticipant]

Thankyou Susan for your sharing and lengthy reply. I have been reading up on the significance of all the results I know so far but am aware the bone marrow biopsy results form a key part of diagnoses.

I’m try I gotta to be as prepared as I can be for any eventuality and what questions I need to ask based on this. Fingers crossed it’s MGUS but with the severe back pain also I am veering away from this. Only 6 days now until I get results so I will update when I know my diagnoses x

[clairelouParticipant]

*UPDATE*

I had my consultants appt brought forward by 5 days. Apparently the paraproteins found in my blood and urine sample was igG lambda. Although I didn’t get levels he did say it wasn’t sky high but higher than usual for benign. Since then I’ve had bloods , xrays a bone marrow biopsy and aspiration and an MRI scan.

So this weeks been a bit of a whirlwind. Feeling unbelievably stressed and can’t distract my self. Everyone just telling me to put it to the back of my mind just annoys me. Could they if it was them??

I have a telephone consult appt with the haematologist on the 13th for my results. So everything crossed it’s not the bad news I fear!!

[clairelouParticipant]

Thanks Shaun for your reply. Really does help to know it’s not a life sentence. I think the fact that I lost my little boy 2 years ago to health condition involving cancer stemming from bone marrow Has made it more difficult to be positive but this forum and being able to chat to people with first hand experience really helps.

[clairelouParticipant]

Thankyou so much Kevin for your reply. When you hear cancer incurable you immediately think the worst.
Good to hear positive tales 😊

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