claireroe50

  • Hi all mine only lasted 5month pp came up week a was suppose to be having my allo transplant but a suppose its as well it showed then & not week i started the treatment. Im now waiting for results ofbone marrow biopsy and wil take from there see whats suggested eh .there is lots of different drugs and trials i know its wether we can get on one. At…[Read more]

  • Hi mick i asked about mini allo but would be full one
    But did say that would prob find the treatment not as hard as auto which is what scott said but the recovery period much longer. But haven.t gone through any graphs i took it that would be in my best interest that had it and in long term for the best but a do worry as have said before.as you…[Read more]

  • claireroe50 replied to the topic relapse what next in the forum Newcomers 7 years, 2 months ago

    Hi mick .hope your ok .yeh read the comments it is a scary thought the allo and i think your right it is good to hear peoples experiences ..because my pp have started to go up only 5month from 1st transplant they now watch amd monitor levels and then treat.then the plan is auto and then allo quite quickly after auto providing everything goes to…[Read more]

  • claireroe50 replied to the topic relapse what next in the forum Newcomers 7 years, 2 months ago

    Hi mick yeh not too bad hopefully find out more next week.just been up and down at minute think knocked the stuffing out of me . What treatment did you have before your last transplant?. Hope you continue to recover well..ypur right though good to talk .claire x

  • claireroe50 replied to the topic relapse what next in the forum Newcomers 7 years, 3 months ago

    Really i live down the road in h.pool. yeh am a born worrier about anything cant help it lol.. doing my best though, been fit and healthy just bit achey at minute.i know really good shes a match.you got your own room mind a suppose more private if you had side effects which i did yeh ive nipped in maggies before to have a look about.i have a good…[Read more]

  • claireroe50 replied to the topic relapse what next in the forum Newcomers 7 years, 3 months ago

    Hi mick thanx for reply.im going back to freeman in 2weeks so il see what they say.said in future if get it down another is possible and stil even maybe in future an allo as my sister was match.its just in my head all the time at minute the feeling achey and whats next .waiting for next blood tests .getting me down a bit which has,nt been like me…[Read more]

  • Hi found out 11month ago i had mm age 49.had 6 cycles of velcade which worked and in sept had a auto transplant.
    have been a bit achey in arms and back. unfortunately my pp has appeared and i was due for allo next week which now wont be happening .my head is goin round and round..they.l now keep an eye on pp and other bloods and treat when they…[Read more]

  • claireroe50 became a registered member 7 years, 3 months ago