https://forum.myeloma.org.uk/members/claireroe50/activity/ Activity feed for claireroe50. Thu, 23 Apr 2026 23:17:46 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 91b1e7dae918d246f2a30dc193389e6f https://www.myeloma.org.uk/forums/topic/what-happens-if-sct-fails/#post-132365 Mon, 20 Mar 2017 11:09:01 +0000 Hi all mine only lasted 5month pp came up week a was suppose to be having my allo transplant but a suppose its as well it showed then & not week i started the treatment. Im now waiting for results ofbone marrow biopsy and wil take from there see whats suggested eh .there is lots of different drugs and trials i know its wether we can get on one. At…[Read more]

]]> 73ea833076db6ed2dda8d528953fccbb https://www.myeloma.org.uk/forums/topic/allogeneic-transplant-need-honest-opinions/#post-132266 Mon, 13 Mar 2017 17:55:31 +0000 Hi mick i asked about mini allo but would be full one
But did say that would prob find the treatment not as hard as auto which is what scott said but the recovery period much longer. But haven.t gone through any graphs i took it that would be in my best interest that had it and in long term for the best but a do worry as have said before.as you…[Read more]

]]> e871d48e69469ed34b40c287f7a12f05 https://www.myeloma.org.uk/forums/topic/relapse-what-next/#post-132241 Sat, 11 Mar 2017 13:03:58 +0000 Hi mick .hope your ok .yeh read the comments it is a scary thought the allo and i think your right it is good to hear peoples experiences ..because my pp have started to go up only 5month from 1st transplant they now watch amd monitor levels and then treat.then the plan is auto and then allo quite quickly after auto providing everything goes to…[Read more]

]]> 458829e262d4865c179ce2f18ef04a52 https://www.myeloma.org.uk/forums/topic/relapse-what-next/#post-132078 Thu, 02 Mar 2017 20:35:51 +0000 Hi mick yeh not too bad hopefully find out more next week.just been up and down at minute think knocked the stuffing out of me . What treatment did you have before your last transplant?. Hope you continue to recover well..ypur right though good to talk .claire x

]]> 9ee2283d3455812061d0dff5c2f4c4e4 https://www.myeloma.org.uk/forums/topic/relapse-what-next/#post-131947 Fri, 17 Feb 2017 19:44:26 +0000 Really i live down the road in h.pool. yeh am a born worrier about anything cant help it lol.. doing my best though, been fit and healthy just bit achey at minute.i know really good shes a match.you got your own room mind a suppose more private if you had side effects which i did yeh ive nipped in maggies before to have a look about.i have a good…[Read more]

]]> 00348c9cc9e0e725f585bcb765935433 https://www.myeloma.org.uk/forums/topic/relapse-what-next/#post-131927 Fri, 17 Feb 2017 15:50:23 +0000 Hi mick thanx for reply.im going back to freeman in 2weeks so il see what they say.said in future if get it down another is possible and stil even maybe in future an allo as my sister was match.its just in my head all the time at minute the feeling achey and whats next .waiting for next blood tests .getting me down a bit which has,nt been like me…[Read more]

]]> bc0e341513e7e4ace25ab8af6c02038d https://www.myeloma.org.uk/forums/topic/relapse-what-next/ Fri, 17 Feb 2017 12:36:01 +0000 Hi found out 11month ago i had mm age 49.had 6 cycles of velcade which worked and in sept had a auto transplant.
have been a bit achey in arms and back. unfortunately my pp has appeared and i was due for allo next week which now wont be happening .my head is goin round and round..they.l now keep an eye on pp and other bloods and treat when they…[Read more]

]]> ea9e25c6c64206754b147a07d1fcacfd https://forum.myeloma.org.uk/activity/p/48545/ Tue, 14 Feb 2017 22:49:23 +0000 0