Hi Gill,

I don't have much to say other than I am thinking of you and Stephen, love to you both xxxxx

Hi Jet,

I think you are dealing with the info you are given in the right way for you. My dad who has MM leaves all the figures up to my mum and myself to look into and if there is some numbers that will give him a boost on his journey he is happy to hear about them but he doesn't want to be bogged down with anylising numbers he just want to…[Read more]

Hi Eve,

Glad you have had a moan, it then allows the rest of us to follow suit and let you know you are not alone! My Dad is being looked after by 3 different hospitals which don't communicate they all just deal with the part of him that they specialise in, they don't look at him as a whole person which is very frustrating as all conditions are…[Read more]

Hi Tracey,

Thats great news about the reduction in your light chains, it certainly is encouraging and makes the side effects of CTD worth it to see them reducing in such high numbers. My Dad got his appointment in for August 10th/11th at the royal free so we cross paths!
It is great to share info, after reading your post i googled nephrotic…[Read more]

Hi Bluebird,

I don't know what I can say to take away your sorrow, having lost a brother who was aged 34 I can sympathise some what but to have lost 2 brothers in less than a year must be heartbreaking. My Dad has Myeloma and has had symptoms for approx 2 years before being diagnosed I can understand your anger and your grief. You will find…[Read more]

Hi Mark,

Great to hear you are going to be raising money for Myeloma UK this will give you something positive to focus on.

My Dad was diagnosed in January and it was a major shock as he has always been fit and well. You will find great support on this site and great info on treatment, side effects etc. There is so much info to take in and 2…[Read more]

Hi Tracey,

Thanks for your post back, my Dad is 62. Today we received the first of his results which read as follows 18/1/11 results from our visit to the Royal Free, CTD was delayed due to a chest infection.

18/1/11 Kappa 13.1 Lambda 502.0 Ratio 0.03
27/1/11 Kappa 11.6 Lambda 485.0 Ratio 0.02
22/3/11 Kappa 15.1 Lambda 137.0 Ratio…[Read more]

Thats wonderful news Shirley, no wonder your smiling like a cheshire cat! Its great to hear such positive news, love Clara xxx

Hi Tracey,

My Dad is on his 2nd lot of CTD for MM, he doesn't have any intolerences so I can't help with your connection there however my Dad was diagnosed with amyloidosis in January and MM in February so I can understand somewhat the minefield you have to go through and I send my best wishes to you on your journey.

Can I ask if you have…[Read more]

Thanks everyone, Dad has the hospital tomorrow they are going to give him some diuretics which should help, he has been putting cream on which has helped, thank you min! He's really struggling with the anti blood clot injection he has to take everyday, its very painful and he has a good pain threshold so its bothering him. Hopefully they can help…[Read more]

Thanks Bridget,

Thats given me some peace of mind, I'll give the nurse a call tomorrow,

Cheers clara xxxx

Thanks everyone!

Yes so far so good, however Dad has complained today of his feet being very cold but they are hot when touched, perhaps this is a side effect? He's feeling slightly queasy but hopefully the anti sickness pills will help.

He got an appointment in for the hospital for his Radiotherapy on Tuesday, typical I'm away with my work…[Read more]

Hi Em,

As someone with a Dad who is newly diagnosed I know how you feel. I welcome you to this site as will all the other members with MM and family members who feel they don't know what to do. You have came to the right place as I have found so much info and support which is so useful when you don't know where to turn. I wish you and your…[Read more]

Hi again only me!

Because i've had to take some flexi hours for my dads appointments I wasn't going to go next week for start of Dads CTD but after reading your post i'm wondering if i should? I hope you don't mind ne asking what age your mum is? My Dad is 62 but a young 62 if that makes sense? However all this info is hard to comprehend and…[Read more]

Hi only me!

Glad to hear your mum is a lot chirpier, you also sound more positive too which is great, and i think thats what will get us all through, those who have Myeloma and family members. So glad to have found this site, Kay I will catch up wwith your posts and hope all is going well with you. Sending positive vibes to all, hugs clara x

Hi Tanya,

Sorry I am unable to give much advice as I am new also to this site and trying to understand Myeloma, what I will say is there are lots of friendly helpful people who will guide you along. Best Wishes Clara xxx

Hope all went well with your Mum today xx