https://forum.myeloma.org.uk/members/clare/activity/ Activity feed for clarebird. Thu, 23 Apr 2026 05:50:41 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 6f034cfe83156399566c517c893ec4a0 http://www.myeloma.org.uk/forums/topic/to-sct-or-not-to-sct/page/2/#post-95167 Wed, 22 May 2013 20:24:40 +0100 Thank you ComfortablyNumb, great song by the way..lol.. I'm happy you've had a,great result, thank you for sharing your experience with me and mum. It really helps her when it comes to making the next decisions regarding her treatment x

]]> 1482c30655884322624941d6a869e399 http://www.myeloma.org.uk/forums/topic/to-sct-or-not-to-sct#post-95163 Fri, 03 May 2013 09:51:49 +0100 A Massive thank you to all your replies.. just being able to hear other peoples experiences is wonderfully comforting..:) Dai. You make an interesting point, and I have looked at some American myeloma sites. However, I'm not sure yet what alternative treatments we have here in the UK. I will absolutely get as much info as possible, to help mum…[Read more]

]]> e57c41736349ef9e2e12f0abb57f7748 http://www.myeloma.org.uk/forums/topic/to-sct-or-not-to-sct#post-95151 Tue, 30 Apr 2013 09:49:51 +0100 Thank you…I will definitely start looking for that expert!..x all your advices have been very helpful.. I will show mum all you have said.. and I know she will feel a whole lot better about it all..I guess the first step is having a consultation at Barts, and seeing where that takes us. Interesting Tracy, I didn't know you could store cells for…[Read more]

]]> ce3d4265852edca5a61dda8b65654e33 http://www.myeloma.org.uk/forums/topic/to-sct-or-not-to-sct Mon, 29 Apr 2013 20:06:11 +0100 Hello Everyone, I'm Clare, and my 67 years young mum was diagnosed with myeloma in October 2012. She has just completed 6 cycles of CTD, and responded well, with her pp levels dropping steadily from 33.5 to 5. Her consultant has offered her a referral to Barts for SCT, but this treatment sounds terrifying, and we are all a little scared! does…[Read more]

]]> 6668ad792f8f64cea8a4fc56b1758edf http://www.myeloma.org.uk/forums/topic/new/page/2/#post-87515 Mon, 29 Apr 2013 19:34:52 +0100 Hello Ann and Pete. My name is Clare, and my mum was diagnosed with myeloma in October 2012. She has just finished 6 cycles of CTD, and has been offered a referral for SCT at Barts. Does anybody have any experience of Barts?and is this treatment as terrifying as it sounds? we are all a bit scared..she has responded well to the CTD, with her pp…[Read more]

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