clarkie

  • clarkie replied to the topic Stopping treatment in the forum Treatment 7 years ago

    Hi Jenny,

    Sorry to hear your Dad is so unwell.  I suffer from aches rather than pain if that makes any sense and yes it is worse in the night.  I was as fit as a fiddle before diagnosis- found in a routine blood test – but now feel everything is falling apart.  My hips, legs, arms and shoulders ache all the time which is very debilitating.  I am…[Read more]

  • clarkie replied to the topic Stopping treatment in the forum Treatment 7 years ago

    Hi, thanks for your responses.  I have only just felt able to start researching myeloma as I think I have been in denial till now. Not sure the research is a good idea as beginning to agree that a little knowledge is dangerous but needs must.  My consultant told me that the SCT was my best hope of a drug free period of time but then I picked up f…[Read more]

  • clarkie started the topic Stopping treatment in the forum Treatment 7 years ago

    I was diagnosed with Myeloma in December 2017.  My paraprotein value has reduced from 34 to 2.5 after nearly 3 rounds of VDT which is great. 3 more to go.   I have now been referred for SCT.  The more I read about Myeloma the more confused I get.  I get the impression from my Consultant that I really only have two choices of treatment, either the…[Read more]

  • clarkie became a registered member 7 years ago