clarkie replied to the topic Stopping treatment in the forum Treatment 7 years ago
Hi Jenny,
Sorry to hear your Dad is so unwell. I suffer from aches rather than pain if that makes any sense and yes it is worse in the night. I was as fit as a fiddle before diagnosis- found in a routine blood test – but now feel everything is falling apart. My hips, legs, arms and shoulders ache all the time which is very debilitating. I am…[Read more]
clarkie replied to the topic Stopping treatment in the forum Treatment 7 years ago
Hi, thanks for your responses. I have only just felt able to start researching myeloma as I think I have been in denial till now. Not sure the research is a good idea as beginning to agree that a little knowledge is dangerous but needs must. My consultant told me that the SCT was my best hope of a drug free period of time but then I picked up f…[Read more]
clarkie started the topic Stopping treatment in the forum Treatment 7 years ago
I was diagnosed with Myeloma in December 2017. My paraprotein value has reduced from 34 to 2.5 after nearly 3 rounds of VDT which is great. 3 more to go. I have now been referred for SCT. The more I read about Myeloma the more confused I get. I get the impression from my Consultant that I really only have two choices of treatment, either the…[Read more]
clarkie became a registered member 7 years ago