Myeloma Forum | clarkie | Activity https://forum.myeloma.org.uk/members/clarkie/activity/ Activity feed for clarkie. Tue, 07 Apr 2026 07:33:03 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 38cad77d0a2ad1f8ad3e6429224364e4 clarkie replied to the topic Stopping treatment in the forum Treatment https://www.myeloma.org.uk/forums/topic/stopping-treatment/#post-137858 Mon, 07 May 2018 10:01:44 +0100 Hi Jenny,

Sorry to hear your Dad is so unwell.  I suffer from aches rather than pain if that makes any sense and yes it is worse in the night.  I was as fit as a fiddle before diagnosis- found in a routine blood test – but now feel everything is falling apart.  My hips, legs, arms and shoulders ache all the time which is very debilitating.  I am…[Read more]

]]> 45f1fd85119b1675a7a2f1d306f6992c clarkie replied to the topic Stopping treatment in the forum Treatment https://www.myeloma.org.uk/forums/topic/stopping-treatment/#post-137828 Wed, 02 May 2018 18:45:04 +0100 Hi, thanks for your responses.  I have only just felt able to start researching myeloma as I think I have been in denial till now. Not sure the research is a good idea as beginning to agree that a little knowledge is dangerous but needs must.  My consultant told me that the SCT was my best hope of a drug free period of time but then I picked up f…[Read more]

]]> 6af357b809f9ae6d57e88a5afaccb9c0 clarkie started the topic Stopping treatment in the forum Treatment https://www.myeloma.org.uk/forums/topic/stopping-treatment/ Tue, 01 May 2018 18:08:58 +0100 I was diagnosed with Myeloma in December 2017.  My paraprotein value has reduced from 34 to 2.5 after nearly 3 rounds of VDT which is great. 3 more to go.   I have now been referred for SCT.  The more I read about Myeloma the more confused I get.  I get the impression from my Consultant that I really only have two choices of treatment, either the…[Read more]

]]> 5b8b854a6c56bc9494a274e00bdec587 clarkie became a registered member https://forum.myeloma.org.uk/activity/p/53198/ Tue, 24 Apr 2018 23:28:01 +0100 0