• claro70 posted an update 9 months, 2 weeks ago

    Hello – I have used this website a lot for information but feel a bit alone at the minute as a carer. My husband had a stem cell transplant in December 2018, after a diagnosis of multiple myeloma stage 3 in April 2018 but his cancer became active again in summer 2020. He has been part of a clinical trial and was due to have his second stem cell transplant next week – however, the chemo for the trial worked initially but within 3 weeks of finishing it, his levels have gone straight back up. He has now been put on the maintenance drug lsatuximab as the stem cell transplant wouldn’t have worked.

    I was just wondering if anyone else had experienced anything similar – just feel like we are going round in circles – consultants have been brilliant and certainly know they are doing everything they can.

    Thanks people – hope you’re all doing well.