GeraldineWebb

  • clearwell replied to the topic HERE WE GO AGAIN !! in the forum Treatment 12 years, 1 month ago

    Hello Bridget,I can't add anything else to what everybody has said but my heart goes out to you and I just want you to know that I am thinking about you.As you know my journey with this is just beginning so I am interested in all comments.I have had my op and see the Doc next week to find out when the treatment is going to start.
    You stay strong…[Read more]

  • clearwell replied to the topic newly diagnosed. in the forum Newcomers 12 years, 3 months ago

    Hi Carol,thank you so much for your best wishes.I have gone through all the looking on the internet purely because I didn't know anything about myeloma but as I said you cant beat speaking to people who are actually going through the same thing.
    The hardest thing for me was telling my mum who is 82.A very fit and active lady and she has seen me…[Read more]

  • clearwell replied to the topic newly diagnosed. in the forum Newcomers 12 years, 3 months ago

    Hello Tom,you found me on f/b and I will be gentle!!Either my keyboard has shrunk or my eyes are getting worse.
    I am so glad that things are on the up for you that makes me feel so much better.All the books and leaflets the hospital give you to read is to much to take in,there is nothing like actually talking to people who are going through the…[Read more]

  • clearwell replied to the topic newly diagnosed. in the forum Newcomers 12 years, 3 months ago

    Hi Jo,
    Thank you for the welcome.It is nice to have somewhere to go where you can chat to people who know what your going through.
    I found I was getting cross with people who were getting upset when I told them but thinking about it I would probably have done the same if roles had been reversed.
    I am and will always be a very positive person…[Read more]

  • clearwell replied to the topic newly diagnosed. in the forum Newcomers 12 years, 3 months ago

    Hi Tom,Well you did make me laugh with your quip about Tesco's.My poor husband whose name is Eric didn't know what to do or say cause I hadn't shown any emotion at all up until then.
    It's difficult with the friends and family who burst into tears at the drop of a hat.I am still feeling very positive about it all even though I know there isn't a…[Read more]

  • clearwell replied to the topic newly diagnosed. in the forum Newcomers 12 years, 3 months ago

    Hi Tom and Bridget,I'm sure there will be lots of questions at some point and also lots of rants too.
    I have been having regular blood tests for the mgus every 4 months and the paraprotein level stayed at 5 for about seven years and At Easter last year I started to get awful pains in my hip lower back down to my knees to the extent I couldn't…[Read more]

  • clearwell replied to the topic newly diagnosed. in the forum Newcomers 12 years, 3 months ago

    Hi Tina,do you know what treatment you will be having yet or haven't you got to that stage.
    My Doctors are all talking to one another and I go for my pre op next week for the bowel op so I may hear something then.Are your Doctors good? How did they find you had it?This is all new to me so I'm interested.
    I wish you luck to and really hope all…[Read more]

  • Hello,I have just been diagnosed with myeloma so I could do with any help I can get.
    My Doctors are very good and have been completely honest with me.It started with mgus which I have had regular blood tests for over the last eight years.I then got crohns and I have had a lot of problems with that.
    I am due to start chemo and then a stem cell…[Read more]