colinpates replied to the topic Advice most appreciated re clinical trial or no clinical trial in the forum Newcomers 8 years, 11 months ago
Dear Rebecca-thank you so much for your advice here-both regimens include the dex, so such strategic planning is very important to keep some element of control for me.
The trial is tempting me at the moment, but I’ll look into the issue of the cytogenics–
Whichever track my gut instinct guides me to, I am determined to watch my reactions over…[Read more]
colinpates replied to the topic Advice most appreciated re clinical trial or no clinical trial in the forum Newcomers 8 years, 11 months ago
Dear Rebecca, thank you for your further really helpful advice, which has given me a real lift!! my sport passion is my tennis, which I so enjoy, but haven’t been able to play for some months now due to pain-so I am keen, whichever path way I choose, to gradually try to get back to my tennis & running while I am on treatment– They have said i…[Read more]
colinpates replied to the topic Advice most appreciated re clinical trial or no clinical trial in the forum Newcomers 8 years, 11 months ago
Dear Ann, Rebecca, Val and David
Thank you for your helpful responses-it makes such a difference to hear from people on their own special journeys.
Trouble is, having never heard of multiple myeloma, I have now read so much in the last two weeks I feel so full of facts and figures, I think I could go on mastermind with MM as my specialist…[Read more]
colinpates started the topic Advice most appreciated re clinical trial or no clinical trial in the forum Newcomers 8 years, 11 months ago
Hi all, my name is Colin, aged 60, am a keen sportsman, married with two daughters–I have already found it helpful to read posts on this site.
I have just been diagnosed with Stage 1 Multiple Myeloma, & have to start treatment next week– I need to make a decision by Tuesday whether I want standard treatment ( VTD & upfront ASCT or clinical…[Read more]
colinpates became a registered member 8 years, 11 months ago