Myeloma Forum | colinpates | Activity https://forum.myeloma.org.uk/members/colinpates/activity/ Activity feed for colinpates. Sat, 11 Apr 2026 21:50:51 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 e4ab0e12fae1145b099f46077cd708f7 colinpates replied to the topic Advice most appreciated re clinical trial or no clinical trial in the forum Newcomers https://www.myeloma.org.uk/forums/topic/advice-most-appreciated-re-clinical-trial-or-no-clinical-trial/#post-127833 Mon, 02 May 2016 20:35:51 +0100 Dear Rebecca-thank you so much for your advice here-both regimens include the dex, so such strategic planning is very important to keep some element of control for me.

The trial is tempting me at the moment, but I’ll look into  the issue of the cytogenics–

Whichever track my gut instinct guides me to, I am determined to watch my reactions over…[Read more]

]]> bbe5f60fa8f0f9adf29950e2a5b259b1 colinpates replied to the topic Advice most appreciated re clinical trial or no clinical trial in the forum Newcomers https://www.myeloma.org.uk/forums/topic/advice-most-appreciated-re-clinical-trial-or-no-clinical-trial/#post-127830 Mon, 02 May 2016 12:39:08 +0100 Dear Rebecca, thank you for your further really helpful advice, which has given me a real lift!! my sport passion is my tennis, which I so enjoy, but haven’t been able to play for some months now due to pain-so I am keen,  whichever path way I choose,  to gradually try to get back to my tennis & running while I am on treatment– They have said i…[Read more]

]]> 144acc0f49674527eff95825fc136dbd colinpates replied to the topic Advice most appreciated re clinical trial or no clinical trial in the forum Newcomers https://www.myeloma.org.uk/forums/topic/advice-most-appreciated-re-clinical-trial-or-no-clinical-trial/#post-127826 Mon, 02 May 2016 10:42:09 +0100 Dear Ann, Rebecca, Val and David

Thank you for your helpful responses-it makes such a difference to hear from people on their own special journeys.

Trouble is, having never heard of multiple myeloma, I have now read so much in the last two weeks I feel so full of facts and figures, I think I could go on mastermind with MM as my specialist…[Read more]

]]> 89be585c2a5f31f16b29d0e6209da18e colinpates started the topic Advice most appreciated re clinical trial or no clinical trial in the forum Newcomers https://www.myeloma.org.uk/forums/topic/advice-most-appreciated-re-clinical-trial-or-no-clinical-trial/ Sun, 01 May 2016 15:30:48 +0100 Hi all, my name is Colin, aged 60, am a keen sportsman, married with two daughters–I have already found it helpful to read posts on this site.

I have just been diagnosed with Stage 1 Multiple Myeloma, & have to start treatment next week– I need to make a decision by Tuesday whether I want standard treatment ( VTD & upfront ASCT or clinical…[Read more]

]]> d5d10be2b7f0d352d8675333b64ce334 colinpates became a registered member https://forum.myeloma.org.uk/activity/p/45290/ Sun, 01 May 2016 12:09:39 +0100 0