[colinpatesParticipant]

Dear Rebecca-thank you so much for your advice here-both regimens include the dex, so such strategic planning is very important to keep some element of control for me.

The trial is tempting me at the moment, but I’ll look into  the issue of the cytogenics–

Whichever track my gut instinct guides me to, I am determined to watch my reactions over the first few weeks and then begin to impose my life priorities on the interventions as far as I can

Thank you so much again for your messages–it is so appreciated

Do please continue to keep winning!

Colin

 

 

[colinpatesParticipant]

Dear Rebecca, thank you for your further really helpful advice, which has given me a real lift!! my sport passion is my tennis, which I so enjoy, but haven’t been able to play for some months now due to pain-so I am keen,  whichever path way I choose,  to gradually try to get back to my tennis & running while I am on treatment– They have said it may be possible, and that’s good enough for me!  For me, that’s about enjoying what we do , capturing a feel better factor,and taking back some control !

Thank you again Rebecca for such an encouraging and inspiring message!

Colin

[colinpatesParticipant]

Dear Ann, Rebecca, Val and David

Thank you for your helpful responses-it makes such a difference to hear from people on their own special journeys.

Trouble is, having never heard of multiple myeloma, I have now read so much in the last two weeks I feel so full of facts and figures, I think I could go on mastermind with MM as my specialist subject!

But quality-of-life  is so important to me,  so I guess it is down to gut instinct and I am now writing out the pros and cons! I’m also going to do some research on the myeloma Beacon and on the webinar & maybe speak to someone like Ellen.

With so many thanks again &  with very very best wishes to you and yours !

Colin

 

 

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