Myeloma Forum | johnpotter | Activity https://forum.myeloma.org.uk/members/colpot/activity/ Activity feed for johnpotter. Sat, 11 Apr 2026 10:36:35 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 1d493f703c58cadd29dc146c47b976d1 johnpotter started the topic live life. in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/live-life Sun, 21 Oct 2012 09:07:27 +0100 colpot I'm writing this message on my husbands site.He had myeloma for seven and half years.It was under control and we were having a great life.Then 6 weeks ago his breathing became really difficult.He died on the 9 oct but not from myeloma,it was misothelioma which is to do with asbestos.He worked with it in his teenage years Its hard for us to…[Read more]

]]> 3c09642544c2f0a3ebbcf39ecab335da johnpotter replied to the topic Revlamid in the forum Treatment http://www.myeloma.org.uk/forums/topic/revlamid#post-97579 Wed, 24 Aug 2011 10:37:48 +0100 Hi Lorraine
Just read you great message it gives us all hope and more determination,I hope your PP stays where it is and you stay pain free good luck when you see your Prof' most of all stay positive.
Be happy
Colin

]]> 649ad86ae5bc0d72f41aba8986179291 johnpotter replied to the topic Revlamid in the forum Treatment http://www.myeloma.org.uk/forums/topic/revlamid/page/3/#post-97601 Tue, 02 Aug 2011 15:03:06 +0100 Hi Carol

I am at present on 20mg dex every Mon and Tue I find it really helps me through the week but it does disrupt my sleep on these days.I hope the revlamid works well for you, I know a number of people on it and they are doing ok. Forgot to say the dex takes away my back pain!
GOOD LUCK
COLIN

]]> c81c55b44cb8ac42d27aeca8a1586592 johnpotter started the topic Revlamid. in the forum Treatment http://www.myeloma.org.uk/forums/topic/revlamid Tue, 21 Jun 2011 12:19:17 +0100 Hi all.
Thought I would let you know I am now on my 41st course of Revlamid< my consultant has reduced my dosage from 25 to 15 mg per day and so far so good.I feel really good for a change,I have been on reduced dose for 2months now so fingers crossed.

Keep smiling

colpot

]]> 103c7eaf154e21b6385f5a41f972cd22 johnpotter replied to the topic Revlamid starts and what happened next. in the forum Treatment http://www.myeloma.org.uk/forums/topic/revlamid-starts-and-what-happened-next/page/3/#post-97014 Tue, 15 Feb 2011 14:44:40 +0000 Hi Min

Sorry about the delay in replying but original reply went astray ( don`t ask how ).
Intratect is an immunaglobulin replacement made from human cells and this boosts my immune system, I have an infusion every month and have been on it, or similar drug, for about 5 yrs.I have had chest infections but nothing major and have had flu…[Read more]

]]> 4ea0e2895b880cb2550c77ca42b0f8cb johnpotter replied to the topic Revlamid starts and what happened next. in the forum Treatment http://www.myeloma.org.uk/forums/topic/revlamid-starts-and-what-happened-next/page/2/#post-97012 Sat, 12 Feb 2011 12:27:45 +0000 Hello Min
I haven't had S C T and probably wont have it because of my age ,although my general health is ok ish.
I am on the same dose as when I started treatment(25mg daily and dex' on Mon & Tue).
I am being treated at Aintree hospital in Liverpool by fantastic staff I also have Intratec each month for my immune system and an infusion…[Read more]

]]> 123928f85d7c6e3acb6991d5ee1c8b58 johnpotter replied to the topic Revlamid starts and what happened next. in the forum Treatment http://www.myeloma.org.uk/forums/topic/revlamid-starts-and-what-happened-next/page/2/#post-97009 Fri, 11 Feb 2011 14:08:24 +0000 Hi I am new to this forum ,but I feel I must share my experience of Revlamid. I was diagnosed with myeloma 5 yrs ago and it has affected my spine mostly,making it hard to walk very far.
After a course of chemo Iwas put on thalidomide which made me ill,although my paraprotein level came down I had to come off it.
Iwas given Revlamid which had an…[Read more]

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