[colpotParticipant]

Hi Lorraine
Just read you great message it gives us all hope and more determination,I hope your PP stays where it is and you stay pain free good luck when you see your Prof' most of all stay positive.
Be happy
Colin

[colpotParticipant]

Hi Carol

I am at present on 20mg dex every Mon and Tue I find it really helps me through the week but it does disrupt my sleep on these days.I hope the revlamid works well for you, I know a number of people on it and they are doing ok. Forgot to say the dex takes away my back pain!
GOOD LUCK
COLIN

[colpotParticipant]

Hi Min

Sorry about the delay in replying but original reply went astray ( don`t ask how ).
Intratect is an immunaglobulin replacement made from human cells and this boosts my immune system, I have an infusion every month and have been on it, or similar drug, for about 5 yrs.I have had chest infections but nothing major and have had flu once in that time I think it works for me.
My dex` dosage is 10 x 2mg each Mon & Tue and it makes me feel good for about 4 days, no pain and more energy but broken sleep at night.
I also have a monthly infusion of Pamdidrinate (think thats right) for my bones. I sometimes feel a bit flu-ish after this treament but only on that day.

Cheers Col

[colpotParticipant]

Hello Min
I haven't had S C T and probably wont have it because of my age ,although my general health is ok ish.
I am on the same dose as when I started treatment(25mg daily and dex' on Mon & Tue).
I am being treated at Aintree hospital in Liverpool by fantastic staff I also have Intratec each month for my immune system and an infusion for my bones.
Thanks for your kind words,
Keep smiling Col

[colpotParticipant]

Hi I am new to this forum ,but I feel I must share my experience of Revlamid. I was diagnosed with myeloma 5 yrs ago and it has affected my spine mostly,making it hard to walk very far.
After a course of chemo Iwas put on thalidomide which made me ill,although my paraprotein level came down I had to come off it.
Iwas given Revlamid which had an immediate effect on paraprotein level,I am now on my 38th monthly course and although there are some side effects, the benefits far outweigh them.
I believe that 38 courses is the longest in UK.
It has been very good for me this far and I hope you find it beneficial.
Cheers Colpot

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