compass007

  • compass007 replied to the topic SCT in the forum Treatment 8 years, 2 months ago

    Hi David, thats a great way to put it, although like I said I am a little aprehensive about the SCT I am generally a positive person and have a “what will be will be” attitude, I am quite young and quite strong, so I hope that will play to my advantage, However I am also mindful of the fact that this cancer doesnt care about age, I know of people…[Read more]

  • compass007 replied to the topic SCT in the forum Treatment 8 years, 2 months ago

    Hi Jan and thanks for the best wishes…my message may be a little confusing, it was my PET scan that I had at the QE Birmingham on Saturday the SCT treatment is at Birmingham Heartlands, although my consultant is Dr Wandroo at Sandwell, who I think is fantastic (and his team), I tried Velcade for my first Chemo treatment but it didnt work for me,…[Read more]

  • compass007 replied to the topic SCT in the forum Treatment 8 years, 2 months ago

    Hi nickyr can I ask what Chmo you had prior to the SCT, I wish you well with your remision.

  • compass007 replied to the topic SCT in the forum Treatment 8 years, 2 months ago

    Hi thanks for the reply I am 50 and I hope I get to the remission you have its quite confusing as to why some can get only a few months and others over ten years right now i would be thrilled with somwhere inbetween but I know that may not be possible but like I said I am quite a positive person and of course I have hope…….

  • compass007 started the topic SCT in the forum Treatment 8 years, 2 months ago

    Ok my cells have been harvested all went well I have enough for 2 lots of SCT if needed the date is booked for 7th March for the actuall treatment, I had a lung function test last week, and have a PET scan booked for this Saturday morning at the QE Birmingham, I have had lots of scans and x-rays CT scans MRI scans but not a PET scan apparently…[Read more]

  • compass007 replied to the topic Recently Diagnosed in the forum Newcomers 8 years, 4 months ago

    Thanks for your advise very helpful, sorry for the late reply as I am back in hospital now, and typing from an I phone so please excuse grammar and spelling, having an enhanced course of chemo that has gone a little wrong, when I came in the did a central line procedure that went fine and I was to have 2 x 24hrs packs of chemo after the first…[Read more]

  • compass007 replied to the topic Recently Diagnosed in the forum Newcomers 8 years, 4 months ago

    Thank-you for your reply I am generally an up beat person and this may sound a bit wierd but after the last 8 months Ive had not really knowing….the diagnosis has given me some sort of relief/closer perhaps not the right words….however I do fully understand the situation and how it can affect one person completely different to another, well I…[Read more]

  • Hi I am a 50 year old male and have just been diagnosed with Mutiple Myeloma it all started some 6-8 months ago when I went to hospital and had to have fluid drained off my right lung, I then had some xrays and a scan where they found a tumour on my right kidney at this point I was told I had cancer that had probably spread to the lung, however…[Read more]

  • compass007 became a registered member 8 years, 4 months ago