[compass007Participant]

Hi David, thats a great way to put it, although like I said I am a little aprehensive about the SCT I am generally a positive person and have a “what will be will be” attitude, I am quite young and quite strong, so I hope that will play to my advantage, However I am also mindful of the fact that this cancer doesnt care about age, I know of people in there low thirties that have it, and although no cure as yet I do hope for at least some remission.

 

Take Care

Regards

Les

[compass007Participant]

Hi Jan and thanks for the best wishes…my message may be a little confusing, it was my PET scan that I had at the QE Birmingham on Saturday the SCT treatment is at Birmingham Heartlands, although my consultant is Dr Wandroo at Sandwell, who I think is fantastic (and his team), I tried Velcade for my first Chemo treatment but it didnt work for me, I had a plasmo cell tumour behind my right eye that was biopsied and this confirmed MM but since have had DT-PACE chemo (more powerfull) and the tumour has all but gone, so Monday it is at Heartlands for SCT……

Good to here that long remission is possible, to be quite honest with the tumour and other problems I didnt expect to see Xmas….one day at a time hey….

Kind Regards

[compass007Participant]

Hi nickyr can I ask what Chmo you had prior to the SCT, I wish you well with your remision.

[compass007Participant]

Hi thanks for the reply I am 50 and I hope I get to the remission you have its quite confusing as to why some can get only a few months and others over ten years right now i would be thrilled with somwhere inbetween but I know that may not be possible but like I said I am quite a positive person and of course I have hope…….

[compass007Participant]

Thanks for your advise very helpful, sorry for the late reply as I am back in hospital now, and typing from an I phone so please excuse grammar and spelling, having an enhanced course of chemo that has gone a little wrong, when I came in the did a central line procedure that went fine and I was to have 2 x 24hrs packs of chemo after the first 24hrs pack the central line breached (quite serious) they rushed an antidote by taxi from another hospital and all seems well at the moment they are going to put a Hickman line in Tuesday and continue the chemo all being well …. I never expected it to be easy and I’m still in very good spirits and what will be will be ….one day at a time…

[compass007Participant]

Thank-you for your reply I am generally an up beat person and this may sound a bit wierd but after the last 8 months Ive had not really knowing….the diagnosis has given me some sort of relief/closer perhaps not the right words….however I do fully understand the situation and how it can affect one person completely different to another, well I will take it a step at a time and live every day as best I can, will just have to see how things unfold.

Good Luck and Kind Regards

 

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