Myeloma Forum | CourtneyMyelomaUK | Friends Activity https://forum.myeloma.org.uk/members/courtneymyelomauk/activity/friends/ Activity feed for CourtneyMyelomaUK's friends. Sat, 11 Apr 2026 20:02:04 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 3dee22b88f19d0664cc0cac5c616f136 ellen changed their profile picture https://forum.myeloma.org.uk/activity/p/146090/ Mon, 22 May 2023 14:32:06 +0100 0 6b336b0bbe7b6a21f81f5a65fc31049c flemingk became a registered member https://forum.myeloma.org.uk/activity/p/142842/ Fri, 26 Aug 2022 13:24:20 +0100 0 800a4d0d489c9c966f82a457b2dc2fc5 Ellen Watters replied to the topic Blood Sugar while taking Steroids. in the forum Side-effects https://www.myeloma.org.uk/forums/topic/blood-sugar-while-taking-steroids/#post-137871 Tue, 08 May 2018 13:03:18 +0100 I am sorry that, as yet, no one has replied to your post. It may be that no one who has seen your post has had the same issues as you.

My name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK.

You are quite right that steroids can increase levels of sugar in the blood and in some (rare) cases can bring on steroid…[Read more]

]]> b93acbf467e521eded8a77dd64d9f6c3 Ellen Watters replied to the topic Blood Sugar while taking Steroids. in the forum Side-effects https://www.myeloma.org.uk/forums/topic/blood-sugar-while-taking-steroids/#post-137871 Tue, 08 May 2018 13:03:18 +0100 I am sorry that, as yet, no one has replied to your post. It may be that no one who has seen your post has had the same issues as you.

My name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK.

You are quite right that steroids can increase levels of sugar in the blood and in some (rare) cases can bring on steroid…[Read more]

]]> 92349c3b7d00aec2df7d3e7910c0290a Ellen Watters replied to the topic Myeloma XI Trial maintenance in the forum General https://www.myeloma.org.uk/forums/topic/myeloma-xi-trial-maintenance/#post-137423 Wed, 21 Mar 2018 09:14:55 +0000 Good morning Lorraine

Its Ellen here – I work with Debbie at Myeloma UK.

As far as we know, the trials office were going to issue letters to the consultants for them to pass on to patients so it may be an idea for your husband to get back to his consultant to query this.

I hope that is helpful but please do contact us if you have any…[Read more]

]]> 3d53aa7f5830d19a6ebb557cd016e9b0 Ellen Watters replied to the topic Myeloma Info Days - East Anglia???? in the forum General https://www.myeloma.org.uk/forums/topic/myeloma-info-days-east-anglia/#post-137069 Wed, 07 Feb 2018 11:16:17 +0000 Good morning Mr Allum.

It may be best if you could email the Infodays team at infodays@myeloma.org.uk

With best wishes

Ellen

]]> 7d597b2426a4a7d823cb2b2181d20782 Ellen Watters replied to the topic Costa Coffee Northwood in the forum General https://www.myeloma.org.uk/forums/topic/costa-coffee-northwood/#post-136945 Thu, 25 Jan 2018 15:56:11 +0000 Dear Ms Richards

Thank you for posting on our Discussion Forum, my name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK. I am sorry that no one has replied to this post as yet. I hope you don’t mind if I make you aware of some potential sources of support which you may find helpful:

• Talk to someone. The Myeloma Inf…[Read more]

]]> b0f5750eacece53631357f01053cd353 Ellen Watters replied to the topic Costa Coffee Northwood in the forum General https://www.myeloma.org.uk/forums/topic/costa-coffee-northwood/#post-136945 Thu, 25 Jan 2018 15:56:11 +0000 Dear Ms Richards

Thank you for posting on our Discussion Forum, my name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK. I am sorry that no one has replied to this post as yet. I hope you don’t mind if I make you aware of some potential sources of support which you may find helpful:

• Talk to someone. The Myeloma Inf…[Read more]

]]> dc855ae7698057f8f062a6b5fe9ee0f8 Ellen Watters started the topic Myeloma Infoline in the forum Off topic https://www.myeloma.org.uk/forums/topic/myeloma-infoline/ Mon, 22 Jan 2018 16:24:22 +0000 The Myeloma Infoline is currently available Monday – Friday, 9am – 5pm (closed weekends and some public holidays). We aim to have at least 80% of calls answered first time by a Myeloma Information Specialist and are committed to providing the best quality service to anyone who calls. We are trying to gauge if there is a need to extend the hou…[Read more]

]]> 14444c9548c1ff587dc178ae44cce5e9 Ellen Watters replied to the topic Not Diagnosed - Seeking Information in the forum Newcomers https://www.myeloma.org.uk/forums/topic/not-diagnosed-seeking-information/#post-136612 Wed, 10 Jan 2018 11:55:22 +0000 Thank you for posting on the Myeloma UK Discussion Forum. My name is Ellen and I am one of the Myeloma Information Specialists here at Myeloma UK. I am sorry that you haven’t had any replies to date – it may be that no one on the forum has had a similar experience.

Thank you for taking the time to outline the background information – your situa…[Read more]

]]> 6956fca11203574eec03f8f262b34c44 Ellen Watters started the topic Get involved (London area) in the forum General https://www.myeloma.org.uk/forums/topic/get-involved-london-area/ Wed, 20 Dec 2017 13:19:47 +0000 Hello everyone
I have been asked by Becky, the Macmillan Patient Experience and User Involvement Project Manager at UCLH to make you aware of some opportunities for patients and carers to help shape NHS services and make a difference in north and east London and west Essex.
Becky says:

To be eligible, you (or the person you care for) must have…[Read more]

]]> 9935fff569d36f153b0c538d3d4a474a Ellen Watters started the topic Guilt in the forum Carers https://www.myeloma.org.uk/forums/topic/guilt/ Wed, 08 Nov 2017 11:08:27 +0000 One of the issues which emerged from the first Myeloma UK Carers Infoday held in Newcastle earlier this year, was that carers have a very strong sense of guilt.

I wonder if anyone can relate to that or share your experiences for the benefit of others.

Ellen

]]> 2432749fc088f927f9bf463493724f77 Ellen Watters replied to the topic Raised blood sugar, cardamom trial in the forum Newcomers https://www.myeloma.org.uk/forums/topic/raised-blood-sugar-cardamom-trial/#post-135651 Mon, 23 Oct 2017 09:25:03 +0100 Thank you for posting on the Myeloma UK Discussion Forum. I am sorry that you haven’t had any replies to date. My name is Ellen and I am one of the Myeloma Information Specialists here at Myeloma UK.

I am sorry to hear that your blood sugars have gone up to 17 from a normal (for you) of below 6. The steroid drug dexamethasone is one of the d…[Read more]

]]> b35dc7ca1a22623c8fea1e66aac1c5c4 Ellen Watters replied to the topic Kidney failure in the forum Newcomers https://www.myeloma.org.uk/forums/topic/kidney-failure-3/#post-135443 Thu, 12 Oct 2017 10:06:23 +0100 Dear Myrna

Thank you for posting on the Myeloma UK Discussion Forum. I am sorry that you haven’t had any replies to date. My name is Ellen and I am one of the Myeloma Information Specialists here at Myeloma UK.

Some anti-myeloma treatments, alongside some supportive drugs such as zoledronic acid (Zometa®) and indeed the myeloma itself may ha…[Read more]

]]> d03ef849b178cddccc1658cdd52bd704 Ellen Watters replied to the topic Kidney failure in the forum Newcomers https://www.myeloma.org.uk/forums/topic/kidney-failure-3/#post-135443 Thu, 12 Oct 2017 10:06:23 +0100 Dear Myrna

Thank you for posting on the Myeloma UK Discussion Forum. I am sorry that you haven’t had any replies to date. My name is Ellen and I am one of the Myeloma Information Specialists here at Myeloma UK.

Some anti-myeloma treatments, alongside some supportive drugs such as zoledronic acid (Zometa®) and indeed the myeloma itself may ha…[Read more]

]]> 80f15b11fa15bb372153556dc68dee27 Ellen Watters started the topic Survey in the forum Off topic https://www.myeloma.org.uk/forums/topic/survey/ Fri, 08 Sep 2017 13:46:02 +0100 We have been asked to make you aware of a survey developed by Susan who is a final year student at the University of Buckingham. She is doing research on stress management by use of mindfulness, religious coping and social support. It takes about 8 minutes to complete.

https://www.surveymonkey.co.uk/r/98WH783

]]> 858438f0653c38e5fbd769bfc250b20f Ellen Watters started the topic Survey in the forum Off topic https://www.myeloma.org.uk/forums/topic/survey/ Fri, 08 Sep 2017 13:46:02 +0100 We have been asked to make you aware of a survey developed by Susan who is a final year student at the University of Buckingham. She is doing research on stress management by use of mindfulness, religious coping and social support. It takes about 8 minutes to complete.

https://www.surveymonkey.co.uk/r/CHV2QRC

]]> 601b23c228046fcd0865c3812b9ea13c Ellen Watters replied to the topic 3,2,1-go! in the forum Newcomers https://www.myeloma.org.uk/forums/topic/321-go/#post-133739 Thu, 08 Jun 2017 13:55:40 +0100 Dear Lisa

Thank you for posting on the Myeloma UK Discussion Forum. I am sorry that you haven’t had any replies to date. My name is Ellen and I am one of the Myeloma Information Specialists here at Myeloma UK.

Thank you for taking the time to outline the background information in your case – that is helpful.

Unfortunately as you may know at…[Read more]

]]> 7a2985d3d45475262443424240d281a2 Ellen Watters replied to the topic 3,2,1-go! in the forum Newcomers https://www.myeloma.org.uk/forums/topic/321-go/#post-133739 Thu, 08 Jun 2017 13:55:40 +0100 Dear Lisa

Thank you for posting on the Myeloma UK Discussion Forum. I am sorry that you haven’t had any replies to date. My name is Ellen and I am one of the Myeloma Information Specialists here at Myeloma UK.

Thank you for taking the time to outline the background information in your case – that is helpful.

Unfortunately as you may know at…[Read more]

]]> 40315bc3608950fbc332d44ee6957c92 Ellen Watters replied to the topic Tremors in the forum Side-effects https://www.myeloma.org.uk/forums/topic/tremors/#post-133504 Tue, 23 May 2017 15:35:36 +0100 I am sorry that, as yet, no one has replied to your post. It may be that no one has read your post yet who has experienced quite the symptoms you describe. I hope you don’t mind me replying – my name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK.

The symptoms you describe may or may not be due to side-effects of the…[Read more]

]]> b54efbf99b585dbdc3e96d40cdfdb671 Ellen Watters replied to the topic Family support....advice please! in the forum General https://www.myeloma.org.uk/forums/topic/family-support-advice-please/#post-132823 Wed, 05 Apr 2017 14:18:53 +0100 Hello and thank you for your post on the forum.

I am sorry to hear that your step mum is experiencing anxiety attacks and struggling to find support, I hope you don’t mind if I also make some suggestions? My name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK. We do have a number of services here at Myeloma UK as p…[Read more]

]]> a9a87977db133bda7f2ede856ab98e73 Ellen Watters replied to the topic Family support....advice please! in the forum General https://www.myeloma.org.uk/forums/topic/family-support-advice-please/#post-132823 Wed, 05 Apr 2017 14:18:53 +0100 Hello and thank you for your post on the forum.

I am sorry to hear that your step mum is experiencing anxiety attacks and struggling to find support, I hope you don’t mind if I also make some suggestions? My name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK. We do have a number of services here at Myeloma UK as p…[Read more]

]]> 0b7b3f3e693087346c00fbb75a06d48d Ellen Watters replied to the topic Family support....advice please! in the forum General https://www.myeloma.org.uk/forums/topic/family-support-advice-please/#post-132823 Wed, 05 Apr 2017 14:18:53 +0100 Hello and thank you for your post on the forum.

I am sorry to hear that your step mum is experiencing anxiety attacks and struggling to find support, I hope you don’t mind if I also make some suggestions? My name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK. We do have a number of services here at Myeloma UK as p…[Read more]

]]> 0b7b3f3e693087346c00fbb75a06d48d Ellen Watters replied to the topic Family support....advice please! in the forum General https://www.myeloma.org.uk/forums/topic/family-support-advice-please/#post-132823 Wed, 05 Apr 2017 14:18:53 +0100 Hello and thank you for your post on the forum.

I am sorry to hear that your step mum is experiencing anxiety attacks and struggling to find support, I hope you don’t mind if I also make some suggestions? My name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK. We do have a number of services here at Myeloma UK as p…[Read more]

]]> e6f633bf818946d3b4946cc075f6d200 Ellen Watters replied to the topic scarlet fever outbreak - can it be harmful to myeloma patients? in the forum General https://www.myeloma.org.uk/forums/topic/scarlet-fever-outbreak-can-it-be-harmful-to-myeloma-patients/#post-131963 Mon, 20 Feb 2017 15:47:55 +0000 Dear Pennie

I am sorry that you were unable to speak to a Myeloma Information Specialist or that no one replied to your post over the weekend.

As you know Scarlet fever is most commonly diagnosed in children but it is contagious and can occasionally affect adults. I suspect – although I can’t be sure – that your grandsons likely already had t…[Read more]

]]> 40aacbe92242c49f299dbb690272806e Ellen Watters replied to the topic Allo transplant in the forum Treatment http://www.myeloma.org.uk/forums/topic/allo-transplant/#post-127032 Tue, 01 Mar 2016 11:42:58 +0000 Good morning Dave
I’m sorry that you have, as yet, not received a response to your post – it may be that no one who has had an allogeneic (donor|)  stem cell transplantation (SCT)  has read your post. I hope someone comes along. In the meantime I hope you don’t mind if I reply.  My name is Ellen and I am one of the Myeloma Information Speciali…[Read more]

]]> c18b80d2a49be63ff1c236760d137946 Ellen Watters replied to the topic newly diagnosed in the forum Newcomers http://www.myeloma.org.uk/forums/topic/newly-diagnosed-3/#post-125973 Mon, 25 Jan 2016 15:32:59 +0000 I am sorry that, as yet, no one has replied to your post. I hope you don’t mind if I do, my name is Ellen, I am one of the Myeloma Information Specialists at Myeloma UK.

Anyone suspected of having myeloma should be referred to a haematologist. Myeloma is a very individual and complicated cancer and the diagnosis involves a whole range of tests…[Read more]

]]> 0e64c08034fa7827eb627ef0ce381a9d Ellen Watters replied to the topic newly diagnosed in the forum Newcomers http://www.myeloma.org.uk/forums/topic/newly-diagnosed-3/#post-125973 Mon, 25 Jan 2016 15:32:59 +0000 I am sorry that, as yet, no one has replied to your post. I hope you don’t mind if I do, my name is Ellen, I am one of the Myeloma Information Specialists at Myeloma UK.

Anyone suspected of having myeloma should be referred to a haematologist. Myeloma is a very individual and complicated cancer and the diagnosis involves a whole range of tests…[Read more]

]]> 0e64c08034fa7827eb627ef0ce381a9d Ellen Watters replied to the topic newly diagnosed in the forum Newcomers http://www.myeloma.org.uk/forums/topic/newly-diagnosed-3/#post-125973 Mon, 25 Jan 2016 15:32:59 +0000 I am sorry that, as yet, no one has replied to your post. I hope you don’t mind if I do, my name is Ellen, I am one of the Myeloma Information Specialists at Myeloma UK.

Anyone suspected of having myeloma should be referred to a haematologist. Myeloma is a very individual and complicated cancer and the diagnosis involves a whole range of tests…[Read more]

]]> 0403cf7dee051e4878cf1e46a51c3e42 Ellen Watters replied to the topic Loose bowels & occassional dizzy spells in the forum Side-effects http://www.myeloma.org.uk/forums/topic/loose-bowels-occassional-dizzy-spells/#post-125711 Wed, 13 Jan 2016 11:54:11 +0000 Hello Eric, I hope you don’t mind me replying. My name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK.

If you are taking Revlimid and have been having symptoms of diarrhoea or any change in the frequency or urgency with which you need to open your bowels then you should discuss this with your haematologist who may…[Read more]

]]> d10636692699f008cbda3fcd68389105 Ellen Watters replied to the topic Rash with Pomalidamide in the forum Newcomers http://www.myeloma.org.uk/forums/topic/rash-with-pomalidamide/#post-124694 Wed, 21 Oct 2015 14:48:37 +0100 I’m sorry that no one has, as yet, replied to your post, it may be that no one on the forum has had a rash with pomalidomide. I hope you don’t mind if I reply, my name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK.

Pomalidomide, like many other drugs including allopurinol, can cause skin rashes and in some cases the…[Read more]

]]> 85572e4d7310179932c22258ead8e9af Ellen Watters replied to the topic Removal of Revlimid and pomalidomide from Cancer Drugs Fund in the forum General http://www.myeloma.org.uk/forums/topic/removal-of-revlimid-and-pomalidomide-from-cancer-drugs-fund/page/3/#post-124039 Wed, 09 Sep 2015 14:58:53 +0100 Hello Jeff

We have just posted an update on our website on our actions and responses :-

Myeloma UK actions and response to FAQs

I hope this is helpful.

Ellen

]]> 1e15f3301528390538bca7340f24aea2 Ellen Watters replied to the topic Removal of Revlimid and pomalidomide from Cancer Drugs Fund in the forum General http://www.myeloma.org.uk/forums/topic/removal-of-revlimid-and-pomalidomide-from-cancer-drugs-fund/page/3/#post-124002 Tue, 08 Sep 2015 14:29:03 +0100 It is disappointing news with regard to the withdrawal of pomalidomide and Revlimid (at first relapse) from the Cancer Drugs Fund.

Myeloma UK are continuing to work with NICE on getting drugs approved for use on the NHS without the need for them to be provided via the cancer drugs fund as we believe this is a better sustainable long-term…[Read more]

]]> 77135299ec57d9df6cd8e8133688154b Ellen Watters started the topic Do you care for someone with myeloma? in the forum Carers http://www.myeloma.org.uk/forums/topic/do-you-care-for-someone-with-myeloma/ Tue, 25 Aug 2015 14:55:50 +0100 Myeloma UK is helping a company to explore the experiences of myeloma on both patients and their families/friends. Families and friends of myeloma patients are invited to share their views in this short survey http://survey.euro.confirmit.com/wix/7/p1844760167.aspx

Your views will help with the development of support programmes and the education…[Read more]

]]> ed1489bbf14e164834fcef2452c9a2e1 Ellen Watters replied to the topic Plasmacytoma after sct in the forum Under 50s http://www.myeloma.org.uk/forums/topic/plasmacytoma-after-sct/#post-123743 Mon, 24 Aug 2015 13:28:05 +0100 Thank you for posting, my name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK. I am sorry that, as yet, no one has replied, it may be that no one on the Forum has had a similar experience. I hope this won’t put you off posting on the Forum in the future.
Some myeloma patients can develop pockets of myeloma cells – k…[Read more]

]]> ed1489bbf14e164834fcef2452c9a2e1 Ellen Watters replied to the topic Plasmacytoma after sct in the forum Under 50s http://www.myeloma.org.uk/forums/topic/plasmacytoma-after-sct/#post-123743 Mon, 24 Aug 2015 13:28:05 +0100 Thank you for posting, my name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK. I am sorry that, as yet, no one has replied, it may be that no one on the Forum has had a similar experience. I hope this won’t put you off posting on the Forum in the future.
Some myeloma patients can develop pockets of myeloma cells – k…[Read more]

]]> 95917f25659012893d2fdb9ccf9d6ebd Ellen Watters replied to the topic A year and 4 months of AL amyloidosis in the forum AL amyloidosis http://www.myeloma.org.uk/forums/topic/a-year-and-4-months-of-al-amyloidosis/#post-123700 Fri, 21 Aug 2015 10:59:51 +0100 I’m sorry that no one has replied to your post

This may be because no one on the Forum has similar experience. I hope this won’t put you off posting on the Forum in the future.

I hope that your appointment at the NAC went well. It sounds as if you have wonderful support from your family and that they are doing their best to help, but I can app…[Read more]

]]> 18f42dcf9e6f0237587063b9fecbb6b8 Ellen Watters replied to the topic A year and 4 months of AL amyloidosis in the forum AL amyloidosis http://www.myeloma.org.uk/forums/topic/a-year-and-4-months-of-al-amyloidosis/#post-123700 Fri, 21 Aug 2015 10:59:51 +0100 I’m sorry that no one has replied to your post

This may be because no one on the Forum has similar experience. I hope this won’t put you off posting on the Forum in the future.

I hope that your appointment at the NAC went well. It sounds as if you have wonderful support from your family and that they are doing their best to help, but I can app…[Read more]

]]> fd868101ed8df799c900d4257c68b227 Ellen Watters replied to the topic A year and 4 months of AL amyloidosis in the forum AL amyloidosis http://www.myeloma.org.uk/forums/topic/a-year-and-4-months-of-al-amyloidosis/#post-123700 Fri, 21 Aug 2015 10:59:51 +0100 I’m sorry that no one has replied to your post This may be because no one on the Forum has similar experience. I hope this won’t put you off posting on the Forum in the future.
I hope that your appointment at the NAC went well. It sounds as if you have wonderful support from your family and that they are doing their best to help, but I can app…[Read more]

]]> 0f330fffa94e3d3aacc34954841bdccb Ellen Watters replied to the topic A year and 4 months of AL amyloidosis in the forum AL amyloidosis http://www.myeloma.org.uk/forums/topic/a-year-and-4-months-of-al-amyloidosis/#post-123700 Fri, 21 Aug 2015 10:59:51 +0100  
I’m sorry that no one has replied to your post This may be because no one on the Forum has similar experience. I hope this won’t put you off posting on the Forum in the future.
 
I hope that your appointment at the NAC went well. It sounds as if you have wonderful support from your family and that they are doing their best to help, but I can app…[Read more]

]]> dd345b2a64b5311c2d5c256e376bd9ee Ellen Watters replied to the topic Can anyone help in the forum General http://www.myeloma.org.uk/forums/topic/can-anyone-help/#post-123488 Wed, 05 Aug 2015 09:10:52 +0100 Dear Sandra, My name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK. I am sorry that, as yet no one has replied to your post, I hope this doesn’t put you off posting on the forum in the future, it is generally very supportive.

I am sorry to hear that your husband was diagnosed so late and that his kidneys had failed. A…[Read more]

]]> dd345b2a64b5311c2d5c256e376bd9ee Ellen Watters replied to the topic Can anyone help in the forum General http://www.myeloma.org.uk/forums/topic/can-anyone-help/#post-123488 Wed, 05 Aug 2015 09:10:52 +0100 Dear Sandra, My name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK. I am sorry that, as yet no one has replied to your post, I hope this doesn’t put you off posting on the forum in the future, it is generally very supportive.

I am sorry to hear that your husband was diagnosed so late and that his kidneys had failed. A…[Read more]

]]> dd345b2a64b5311c2d5c256e376bd9ee Ellen Watters replied to the topic Can anyone help in the forum General http://www.myeloma.org.uk/forums/topic/can-anyone-help/#post-123488 Wed, 05 Aug 2015 09:10:52 +0100 Dear Sandra, My name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK. I am sorry that, as yet no one has replied to your post, I hope this doesn’t put you off posting on the forum in the future, it is generally very supportive.

I am sorry to hear that your husband was diagnosed so late and that his kidneys had failed. A…[Read more]

]]> 810fad66bf8cb34bb0bb881edba139ff Ellen Watters replied to the topic Can anyone help in the forum General http://www.myeloma.org.uk/forums/topic/can-anyone-help/#post-123488 Wed, 05 Aug 2015 09:10:52 +0100 Dear Sandra, My name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK. I am sorry that, as yet no one has replied to your post, I hope this doesn’t put you off posting on the forum in the future, it is generally a very supportive forum.

I am sorry to hear that your husband was diagnosed so late and that his kidneys had f…[Read more]

]]> 1239b921e9c78fa427031941d1ca29b9 Ellen Watters replied to the topic Can anyone help in the forum General http://www.myeloma.org.uk/forums/topic/can-anyone-help/#post-123488 Wed, 05 Aug 2015 09:10:52 +0100 Dear Sandra, My name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK. I am sorry that, as yet no one has replied to your post, I hope this doesn’t put you off posting on the forum in the future, it is generally a very supportive

I am sorry to hear that your husband was diagnosed so late and that his kidneys had f…[Read more]

]]> cfb927fc8832423a315542db0dcd2900 Ellen Watters replied to the topic Bendamustine side effects in the forum Side-effects http://www.myeloma.org.uk/forums/topic/bendamustine-side-effects/#post-123408 Tue, 28 Jul 2015 14:30:08 +0100 I am sorry that no one has yet replied to your post, it may be that no one has had a similar experience to the one you describe.
I hope you don’t mind if I try to answer your question, my name is Ellen and I am one of the Myeloma Information Specialists at Myeloma UK
I am sorry to hear that you are experiencing achy forearms after your t…[Read more]

]]> 009571bbadbcd3e8aea56d9cc6986f14 Ellen Watters replied to the topic Any cyclist who ride regularly or compete in the forum General http://www.myeloma.org.uk/forums/topic/any-cyclist-who-ride-regularly-or-compete/#post-123013 Fri, 10 Jul 2015 13:26:07 +0100

Dear Karl I am sorry that no one, as yet, has replied to your post. I hope this won’t put you off posting on the Forum in the future. My name is Ellen and I am one of the Myeloma Information Specialist here at Myeloma UK, I hope you don’t mind if I try to answer your question.
It is good to hear that you have been in remission for a few yea…[Read more]

]]> 658ecd331d367760f7e045d357c1ac65 Ellen Watters replied to the topic Sue Lloyd Roberts difference in treatment in the forum Treatment http://www.myeloma.org.uk/forums/topic/sue-lloyd-roberts-difference-in-treatment/#post-122929 Fri, 03 Jul 2015 14:00:17 +0100 Dear Peter

I am sorry that, as yet, no one has responded to your post, I hope you don’t mind that I have tried to clarify things for you.

As you know, Acute Myeloid Leukaemia and Myeloma are different and as such are treated differently following many years of research in developing best current treatment and best current practice.

When Acute M…[Read more]

]]> 4532501c8af95d492a4a3bfbd3f74c50 Ellen Watters replied to the topic Children checked for this awful disease! in the forum General http://www.myeloma.org.uk/forums/topic/children-checked-for-this-awful-disease/#post-122926 Fri, 03 Jul 2015 12:06:19 +0100  
Good afternoon everyone. I hope you don’t mind me stepping in to clarify this a little if I can.

You are correct that myeloma is not considered to be a hereditary condition. We know that myeloma is not like some other cancers, for example some types of breast cancer, where a single inherited gene greatly increases the risk of developing it.…[Read more]

]]> 6ce162c1c0bb1b132ae4813ef8325de9 Ellen Watters replied to the topic Professor Cavanagh at Bart's and Pain Management in the forum General http://www.myeloma.org.uk/forums/topic/professor-cavanagh-at-barts-and-pain-management/#post-122550 Tue, 09 Jun 2015 15:49:32 +0100 Dear Kim

I’m sorry that, as yet, no one has replied to your post. I hope you don’t mind if I try to answer your questions. My name is Ellen and I am one of the Myeloma Information Specialist at Myeloma UK.

I’m sure there are quite a few forum users who are under the care of Prof Cavenagh, he is a well-respected world renowned haema…[Read more]

]]>