<?xml version="1.0" encoding="UTF-8"?>
<rss version="2.0"
	xmlns:content="http://purl.org/rss/1.0/modules/content/"
	xmlns:atom="http://www.w3.org/2005/Atom"
	xmlns:sy="http://purl.org/rss/1.0/modules/syndication/"
	xmlns:slash="http://purl.org/rss/1.0/modules/slash/"
	>

<channel>
	<title>Myeloma Forum | crawf | Activity</title>
	<link>https://forum.myeloma.org.uk/members/crawf/activity/</link>
	<atom:link href="https://forum.myeloma.org.uk/members/crawf/activity/feed/" rel="self" type="application/rss+xml" />
	<description>Activity feed for crawf.</description>
	<lastBuildDate>Sun, 26 Apr 2026 13:10:55 +0100</lastBuildDate>
	<generator>https://buddypress.org/?v=2.9.4</generator>
	<language>en-GB</language>
	<ttl>30</ttl>
	<sy:updatePeriod>hourly</sy:updatePeriod>
	<sy:updateFrequency>2</sy:updateFrequency>
	
						<item>
				<guid isPermaLink="false">d9cfd345b3c87e371b89731012c5970a</guid>
				<title>crawf started the topic Zometa withdrawal symptoms in the forum Side-effects</title>
				<link>https://www.myeloma.org.uk/forums/topic/zometa-withdrawal-symptoms/</link>
				<pubDate>Sat, 31 Mar 2018 08:11:40 +0100</pubDate>

									<content:encoded><![CDATA[<p>I have just gone from 4 weekly infusions of Zometa to 3 monthly following a SCT in February 2016. I had my last one in January and am due my next in april. The last couple of weeks i have felt on edge and very &#8220;weepy&#8221;. Im wondering if its the change in frequency of the Zometa as I can&#8217;t think of anything else.Has anyone had anything similar happen. </p>
]]></content:encoded>
				
				
							</item>
					<item>
				<guid isPermaLink="false">8c57d67983327c192d65b09dd0853788</guid>
				<title>crawf replied to the topic Tremors in the forum Side-effects</title>
				<link>https://www.myeloma.org.uk/forums/topic/tremors/#post-134656</link>
				<pubDate>Wed, 16 Aug 2017 10:03:50 +0100</pubDate>

									<content:encoded><![CDATA[<p>Hi I had 3 cycles of VTD in late 2015 prior yo an Auto SCT in Feb 2016. I took the Thalidomide late at night and you d that I became very shaky after it so started to eat a couple of biscuits when I took it and it really helped. Not very scientific I know but anything is worth a try. Good luck x</p>
]]></content:encoded>
				
				
							</item>
					<item>
				<guid isPermaLink="false">44234123d93e82b673f3e1e89152fa7b</guid>
				<title>crawf started the topic Long term zometa in the forum Side-effects</title>
				<link>https://www.myeloma.org.uk/forums/topic/long-term-zometa/</link>
				<pubDate>Wed, 16 Aug 2017 09:56:38 +0100</pubDate>

									<content:encoded><![CDATA[<p>&lt;p style=&#8221;text-align: center;&#8221;&gt;Hi I&#8217;m new to this forum after having an Auto SCT in Feb 2016 so far so good no issues and I just have a 15min zometa infusion every 4 weeks and have had now for about 15 months and am due to continue upto 24 months then once every 3 months. However recently I have started to feel dizzy/shaky/nauseous about 36/48&hellip;<span class="activity-read-more" id="activity-read-more-50804"><a href="https://www.myeloma.org.uk/forums/topic/long-term-zometa/" rel="nofollow">[Read more]</a></span></p>
]]></content:encoded>
				
				
							</item>
					<item>
				<guid isPermaLink="false">d6ebc2505fe42afdce18005a2b047cd4</guid>
				<title>crawf became a registered member</title>
				<link>https://forum.myeloma.org.uk/activity/p/50803/</link>
				<pubDate>Wed, 16 Aug 2017 09:44:54 +0100</pubDate>

				
									<slash:comments>0</slash:comments>
				
							</item>
		
	</channel>
</rss>