Kazzam2 replied to the topic It's back! 17 months after SCT in the forum General 9 years, 9 months ago
Hi Megan and Vicki,
Thanks for replying and your kind words. Good luck to Phil and Colin on their treatment/jouney.
Vicki, I have stem cells (my own), in storage, but whether they would do that so soon after my first. I went on trials after diagnosis, and did 4 or 5 cycles of Thalidomide, then prior to my sct had mephalan (made me very…[Read more]
Kazzam2 started the topic It's back! 17 months after SCT in the forum General 9 years, 9 months ago
Hi all,
I have not been on for a while, been busy feeling a bit sorry for myself, as my November check up revealed the dreaded mm has shown up again since August, my consultant said not to worry and they would see how fast itβs coming back in early January, it has increased from 1.8 g/l in November to 4.2 g/l early January, I was alarmed by t…[Read more]
Kazzam2 replied to the topic Bloods for 3 monthly clinic, what if???? in the forum General 9 years, 9 months ago
Hi all,
I have not been on for a while, been busy feeling a bit sorry for myself, as my November check up revealed the dreaded mm has shown up again since August, my consultant said not to worry and they would see how fast it’s coming back in early January, it has increased from 1.8 g/l in November to 4.2 g/l early January, I was alarmed by this…[Read more]
Kazzam2 replied to the topic Bloods for 3 monthly clinic, what if???? in the forum General 9 years, 9 months ago
Hi all,
I have not been on for a while, been busy feeling a bit sorry for myself, as my November checked up revealed the dreaded mm has shown up again since August, my consultant said not to worry and they would see how fast it’s coming back in early January, it has increased from 1.8 g/l in November to 4.2 g/l early January, I was alarmed by…[Read more]
Kazzam2 replied to the topic Can our profiles or posts give name of treating hospital @consultant? in the forum General 9 years, 11 months ago
Hi Dawn, I too attend attend the LRI, and like Tony I attend the special clinic as like Tony I am on the trial. However, my latest visit (12 days ago), I had to go to the usual clinic, there was a 2 hours delay as there was a shortage of consultants, I was eventually seen (Dr Barton) two and a half hours later, and then I was sent upstairs for…[Read more]
Kazzam2 replied to the topic Can our profiles or posts give name of treating hospital @consultant? in the forum General 9 years, 11 months ago
Hi Dawn, I too attend attend the LRI, and like Tony I attend the special clinic as like Tony I am on the trial. However, my latest visit (12 days ago), I had to go to the usual clinic, there was a 2 hours delay as there was a shortage of consultants, I was eventually seen (Dr Barton) two and a half hours later, and then I was sent upstairs for…[Read more]
Kazzam2 and cupcake70 are now friends 10 years ago
Kazzam2 and janw are now friends 10 years ago
Kazzam2 replied to the topic Getting to the scary bit now!! in the forum Newcomers 10 years ago
Hi Cupcake70,
Firstly hello and welcome, I do not get on here as much as I would like but it is great and a friendly and very helpful site, quite unique to us!
when I read your post and concerns it took me right back, I am post sct approx 22 month, not all plain sailing but well worth it. Like Wallace I found the Melphalan awful. but since early…[Read more]
Kazzam2 replied to the topic Testing for vitamin D levels in the forum General 10 years ago
Hi all, I too take the Adcal and Zometta, not sure if my blood is checked though. At my zometta seesion this week I was told my sessions are to be changed to every 3 months instead of every 6 weeks. Usher (nurse) said this is good news, I will ask at my next clinic though.
Regards to all
Karen
Kazzam2 replied to the topic The pain is back… in the forum General 10 years, 1 month ago
Hi Tom, sorry to hear this, I hope this next round of treatment achieves a longer remission and few side effects.
Good luck and very best wishes.
Take care
Karen
xx
Kazzam2 replied to the topic The pain is back… in the forum General 10 years, 1 month ago
Aye, it is a tricky bugger and no 2 cases are the same, which makes it even more difficult.
Wishing you well.
Karen
Kazzam2 replied to the topic Help needed! in the forum General 10 years, 1 month ago
Done! Good luck! x
Kazzam2 replied to the topic The pain is back… in the forum General 10 years, 1 month ago
Hi Tom, just read this, I get pains in the same part of my spine, ribs and sternum, I am still on Zomorph, I was told I will always have some pain as there was a lot of bone damage (late diagnosis), so I just have to control it. I had my sct in January 2013, so if my appetite goes or I am more tired, or pain is worse, I worry that it’s coming…[Read more]
Kazzam2 replied to the topic SLIM in the forum End of Life and Grief 10 years, 2 months ago
Dear Eve,
So sorry to hear that Slim has passed away.
Thoughts are with you at this very sad time.
Karen x
Kazzam2 replied to the topic Bloods for 3 monthly clinic, what if???? in the forum General 10 years, 2 months ago
Hi all land thanks for best wishes, and thanks too Peter for chin up π
I have still not had my protien results, I have had my copy off the doctors letter from the consultant, has my blood results, but says progressing paraproteins (sorry if spelling wrong), I am sure they would contact me if a problem.
Update on sore on my back, I seen a…[Read more]
Kazzam2 replied to the topic Bloods for 3 monthly clinic, what if???? in the forum General 10 years, 2 months ago
Hi TontF, I have just seen Dr Barton ( for the first time), I said hello from you, she said hello back to you! π She mentioned there may be a myeloma group starting back up.
My blood count is all within range, kidney function okay, calcium back up( it was borderline), just waiting for my paraprotien. I am in day ward waiting for zometta (45…[Read more]
Kazzam2 replied to the topic Bloods for 3 monthly clinic, what if???? in the forum General 10 years, 2 months ago
Many thanks David
Regards
karen
xx
Kazzam2 replied to the topic Bloods for 3 monthly clinic, what if???? in the forum General 10 years, 2 months ago
Thanks Tony,
I will say hi if I see her, never seem to get the same consultant twice in a row nowadays. Although I heard from Dr Garg recently, (emails) regarding holidays. She gave thumbs up as I am in remission! ;-).
Regards
Karen H
x
Kazzam2 started the topic Bloods for 3 monthly clinic, what if???? in the forum General 10 years, 2 months ago
Hi all,
just been for my bloods prior to my 3 month check and Zometta on Thursday, just to share the feeling of dread and what if’s. Yesterday was 19th months since SCT, I am well (apart from ongoing back pain, and a sore on back that won’t heal), but knowing how quickly thisawful thing can change can get one down sometimes!
So now I have said my…[Read more]